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Hep C Discussion Forum -> General Discussion -> Solvadi approved in the Netherlands without restrictions
Post Info TOPIC: Solvadi approved in the Netherlands without restrictions
Loopy Lisa


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RE: Solvadi approved in the Netherlands without restrictions
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Thanks Rebeca, I hope everyone can access it too. I go to the hospital on the 8th July with a big smile :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
rebeca


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Good news. More and more, people are benefiting from this new therapies.

In the long run, we all benefit.

I share your joy.

 All the best.

 

 



__________________

52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 
Loopy Lisa


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Tig56 wrote:

Congratulations Lisa! I'm so happy that you shared all of this wonderfully happy and uplifting news with us. You've been blessed with an opportunity to renew and repair your own life but also seems, with IVF in your future, there will be another new and special life coming your way as well. How wonderful this news is!!

Tig

 Thanks Tig, the I.V.F might not be a success, but being able to try makes a world of difference to us. I hope the rest of Europe follow suit. I still think Gilead are greedy animals though! :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


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Congratulations Lisa! I'm so happy that you shared all of this wonderfully happy and uplifting news with us. You've been blessed with an opportunity to renew and repair your own life but also seems, with IVF in your future, there will be another new and special life coming your way as well. How wonderful this news is!!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Loopy Lisa


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Thank you everyone, I feel like the future is bright again. I know I wasn't dying or anything, but it is still something that plays on all of us having Hep. I am glad that at least we can access here. I am still angry at the NICE reaction. Especially as the need is very high. I know that other diseases are important, but this is the worlds chance to curb this infection once and for all. Have a lovely evening everyone...Hugs fellow Hep C people, I'm glad I have met you all on here, it is the best thing to come out of it all. x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
jimbob


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Isiscat2011 wrote:

Lisa, this is such good news!!   For you and for everyone in the Netherlands.   Very good of Simeon to help publicize this issue as well.  

 I was just thinking the same Isis. It appears to have been a good idea to talk with Simeon afterall.

Woohoo Lisa for you! The train is pulling in the station....



__________________

jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Isiscat2011


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Lisa, this is such good news!!   For you and for everyone in the Netherlands.   Very good of Simeon to help publicize this issue as well.  



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Huey


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without restrictions!! does that men we can go to Amsterdam and get Sovaldi in a cafe ? along with some coffee. ??  lol I wish,, Great to see another population has access to a great cure.



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Loopy Lisa


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Matt Chris wrote:

Hey Loopy

Happy days for you, all the EU countries should respond so quickly. So happy for you. Also if I did my math right Sovaldi will cost for a 12 weeks course about $67,000 . Looks like a lower price than the States which is a good thing maybe Gilead is getting the (massage) on there image. Anyway Loopy the Netherlands are first in Sovaldi in the EU maybe they will be first in the World Cup LOL

matt 

 Hahah thanks Matt, it is still a hefty price considering that a whole course of Interferon and Riba came to only 12 thousend Euro! Saying that there is no price on health is there? People are on a football high here :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Matt Chris


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Hey Loopy

Happy days for you, all the EU countries should respond so quickly. So happy for you. Also if I did my math right Sovaldi will cost for a 12 weeks course about $67,000 . Looks like a lower price than the States which is a good thing maybe Gilead is getting the (massage) on there image. Anyway Loopy the Netherlands are first in Sovaldi in the EU maybe they will be first in the World Cup LOL

matt 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Marypetrecz


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We need like buttons....or better yet....love buttons.....so happy for ya Lisa!



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Loopy Lisa


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Marypetrecz wrote:

Yeah Lisa!  Clapping madly here in central Pennsylvania!  I'm so glad to hear this wonder drug is going to be available to you.  It's a world wide fight....and hep c is going to be losing.

 Thanks Mary, I just hope all countries follow suit. The cost of a liver transplant far exceeds the cost of this treatment. But I hope it is available to everyone sooner or later, we all deserve a chance to cure without having to go through older treatments that are so tough to take! x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Marypetrecz


Senior Member

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Posts: 123
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Yeah Lisa!  Clapping madly here in central Pennsylvania!  I'm so glad to hear this wonder drug is going to be available to you.  It's a world wide fight....and hep c is going to be losing.



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Loopy Lisa


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Scruffy wrote:

Thats great Lisa!!!!  Sorry for being excited???? We all shared the way you felt when you had to stop treatment. Now we can share in your happy time. How could you be sorry this makes us all happy biggrin

Best wishes for you!!!!

 Aww thanks Scruffy, I don't know how you managed to get through treatment especially looking after your mum. I'm keeping everything crossed you get your well earned post 6 month SVR. If anyone deserves it you do! I hope this time around my treatment is a lot less eventful :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Scruffy


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Thats great Lisa!!!!  Sorry for being excited???? We all shared the way you felt when you had to stop treatment. Now we can share in your happy time. How could you be sorry this makes us all happy biggrin

Best wishes for you!!!!



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Loopy Lisa


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mallani wrote:

Hi Loopy,

Great news. You have every reason to be excited!

By the way, even though The Netherlands won, it was a great match against Australia in the World Cup, and I bet we had you worried! Cheers.

Thanks Mallani :) 

Hahaha they were just giving you a little hope so your country wouldn't cry! ;) My house was full of orange dressed people yesterday eating pizza with beer - mine was alcohol free. :P



-- Edited by Loopy Lisa on Thursday 19th of June 2014 01:09:38 PM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
mallani


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Hi Loopy,

Great news. You have every reason to be excited!

By the way, even though The Netherlands won, it was a great match against Australia in the World Cup, and I bet we had you worried! Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Loopy Lisa


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Cinnamon Girl wrote:

Yes, a small price to pay indeed!  I know you`ll still have the riba to deal with but without the interferon shots it will be so much easier for you this time around. 

Do keep us posted, Lisa, and let us know how your hospital appointment goes!  smile

 I will ask to take something for panic in case it was due to the Riba. Forewarned is forearmed. I will not be doing this a 3rd time, so the viruses had better get used to the idea they are going to die :D

I will do, I'm excited now as I was assuming this was my lot for a long time. Thanks Jill :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Cinnamon Girl


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Yes, a small price to pay indeed!  I know you`ll still have the riba to deal with but without the interferon shots it will be so much easier for you this time around. 

Do keep us posted, Lisa, and let us know how your hospital appointment goes!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Loopy Lisa


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Cinnamon Girl wrote:

Please don`t apologise for sharing your excitement, Lisa!!I  I know you were planning to go in for IVF and so this is the best possible news for you on a personal level as well as being so good for people in your country.  And any good news is always very welcome where Hep C is concerned!

I`ve been reading some of Simeon`s articles and I must say I`m impressed with his depth of research and I`m glad you decided to share your story with him.  How good of him to phone you!  I must say from my brief correspondence with him he seemed very nice.

You`ve been waiting a long time for this and it also confirms that you took the right decision in stopping your previous peg/rib treatment. 

 He is indeed a very nice person, I am very happy his article may make a difference to someone, somewhere, and help them get treatment they need!

I'm so happy I decided to quit now, I had doubts and a little turmoil about my decision, and now I feel justified I made the right decision. I might have to postpone our family holiday because of the Riba, but it is a small price to pay. Looks like it is going to be a winter holiday now! :D

Thanks Jill, it was good to share it with you. :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Cinnamon Girl


Guru

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Posts: 5629
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Please don`t apologise for sharing your excitement, Lisa!!I  I know you were planning to go in for IVF and so this is the best possible news for you on a personal level as well as being so good for people in your country.  And any good news is always very welcome where Hep C is concerned!

I`ve been reading some of Simeon`s articles and I must say I`m impressed with his depth of research and I`m glad you decided to share your story with him.  How good of him to phone you!  I must say from my brief correspondence with him he seemed very nice.

You`ve been waiting a long time for this and it also confirms that you took the right decision in stopping your previous peg/rib treatment. 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Loopy Lisa


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Cinnamon Girl wrote:

Good morning LIsa, and what a good morning it is!! 

I just happened to be online when I saw this post appear...what excellent news for you and for everyone in the Netherlands who is waiting for this treatment!  You must be delighted, Lisa, and I couldn`t be more pleased for you.  Where did you hear this, from your hospital?

I hope NICE takes this onboard when they come to their final decision next month!

Well done the Netherlands for leading the way!  smile

 Hey good morning :D

I have contact with Simeon and agreed to be part of his article. I'm open about being infected so its no deal for me. He did the research and told me this morning. Yesterday the hospital called me asking me to come in for an appointment again, so I gather the approval to perscribe is full swing ahead and I will be popping pills very quickly :D 

Sorry if I'm very excited when I know people are waiting, but it makes a difference to me personally because it means I will get my I.V.F after all :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Good morning LIsa, and what a good morning it is!! 

I just happened to be online when I saw this post appear...what excellent news for you and for everyone in the Netherlands who is waiting for this treatment!  You must be delighted, Lisa, and I couldn`t be more pleased for you.  Where did you hear this, from your hospital?

I hope NICE takes this onboard when they come to their final decision next month!

Well done the Netherlands for leading the way!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Loopy Lisa


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Good morning everyone,

Today is a good day for me!!!! 

As each European country has their own governing bodies, the Zorginstituut has approved Solvadi WITHOUT restriction with Riba at a cost of 98.584 Euro for a 24 week course. The hospital also called yesterday for a new appointment so I suspect I'm going to get my drugs after all! :D

It appears that the "NICE" decision is having no impact over here and this information will be public in the next two weeks on the official website.

I just wanted to share the news, and my obvious excitement. :D



-- Edited by Loopy Lisa on Thursday 19th of June 2014 09:26:01 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
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