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Post Info TOPIC: greatings from alabama
Huey


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RE: greatings from alabama
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hepcinbama wrote:

dear huey great news today ! the pham called an I get my peg pen an ribavirin an solvaldi with no co pay at all not even the 5 dollars witch is great because I have not beenable to work my second job an im kinda broke but I have all I need ! I also saw your post on the inerfuron an the teeth since my treatment is only 12 weeks should I worry I have not had dry mouth or dry eyes  yet but this Friday will be my third shot .Huey thank you soooo very much for helping people its so very nice to find a friend when you really really need one!  

 Your Welcome!

We are all in this together Keep your stick on the ice, (Red Green Show)



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
hepcinbama


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taz kat I know there will be great news for you on the 25th!!!!! I want to hear you scream with joy all the way in bham  an if you could may the scream sound something like rooooooooooll tiiiiiiiidddddde! lol !



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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dear huey great news today ! the pham called an I get my peg pen an ribavirin an solvaldi with no co pay at all not even the 5 dollars witch is great because I have not beenable to work my second job an im kinda broke but I have all I need ! I also saw your post on the inerfuron an the teeth since my treatment is only 12 weeks should I worry I have not had dry mouth or dry eyes  yet but this Friday will be my third shot .Huey thank you soooo very much for helping people its so very nice to find a friend when you really really need one!  



__________________

hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Huey


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hepcinbama wrote:

huey doc said geno 3 with onset of cirrhosis's on liver that's why he did not want to wait till oct when huey lewis an his new drug came out tee heee teee heee. so he said lets attack with rib the peg pen an solvaldi the first month got covered by my Obama care but I just got a letter in the mail saying rising cost I have to use blue cross blu shd  speciality pharm don't know what that is going to do to my cost hopefully My Jesus will make sure im covered both by his blood an obama care 

 OK Bama. I have talked to more than one Dr. about cirrhosis,  an ultra sound is NOT definitive enough to know if you have cirrhosis.  A biopsy is still the Gold standard but some use a fibro=scan

to measure fibrosis/cirrhosis. I think I would seek another opinion on the cirrhosis because if you don't have proof the insurance will resist approval.



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
TazKat


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i sure hope for the very best for u bama.. the heat is really sucky for treatment. I have had to stay inside at work & home. til august. I should know my results by july 25th..smile

just stay cool.....



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
hepcinbama


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huey doc said geno 3 with onset of cirrhosis's on liver that's why he did not want to wait till oct when huey lewis an his new drug came out tee heee teee heee. so he said lets attack with rib the peg pen an solvaldi the first month got covered by my Obama care but I just got a letter in the mail saying rising cost I have to use blue cross blu shd  speciality pharm don't know what that is going to do to my cost hopefully My Jesus will make sure im covered both by his blood an obama care 



__________________

hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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thank you taz kat from da dirty hot south dose being hot hurt anything? ie effectiveness of meds, recovery time ,anything else



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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THANK YOU TIG ! MY GENO IS 3 AN AFTER A ULTRA SOUND THEY SAID I HAD ONSET OF CIRROSSES ON MY LIVER!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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THANK YOU SOOOO MUCH MARY!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Huey


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hepcinbama wrote:

huey the doc said at first it was going to be a six month treat.,but the day we started he said it might only be a 3 month treat dose that sound right? also I see everyone has numbers they are keeping I want to be involved in my treat ,what numbers do I ask him for next visit ? is that question going to piss doc off? thanks again huey!!!!

12 weeks with Peg-IN sovaldi ribavirin.........twice as long without Peg-IN.  24 weeks  I suppose it all depends on your condition but the only reason I see  for having to take the Peg-IN is the cost/  you need to ask your Doctor if the insurance is mandating this.  If you can hold off and get a treatment that is without the Peg-IN ,that is what I would do . one is soon to be out that is only a 12 week coarse but it is not out yet and other drugs too are soon to be out.

  As to the numbers, the VL is talking about how many bugs you have in your system, Your Viral Load.  The other is the Genotype. think of the genotype as a number that represents a population. 1=USA  2= Mexico 3=Pakistan ect.  Each genotype is different in little ways and has to be treated accordingly.   your Dr. will tell you this.



-- Edited by Huey on Wednesday 25th of June 2014 02:32:13 AM



-- Edited by Huey on Wednesday 25th of June 2014 02:39:37 AM

__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
TazKat


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well howdy partner. I am next door in misissippi.. welcome. everyone here are the greatest & cheerleaders.  ask ur docs any questions.. it is your body & health.. smile  stay cool cause we are hot here in the south... 



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Tig


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Hey Myke,

Welcome to the forum! I'm so glad you found us. You're among friends here and we consider ourselves friendly and non judgemental, so feel free to get involved. We invite your questions and concerns, I'm sure you have more than a few!

The things I would recommend you ask are copies of your lab tests as the are completed. You have a right to those copies and they often prove helpful when questions arise. You also need to know what your genotype is, like 1a/b, 2, 3, 4 etc. that will determine your type and length of treatment. You should know what your baseline viral load is (viral quantity). Have you had a biopsy or fibroscan? These tests determine your liver inflammation and fibrosis scores. I mentioned getting all lab tests but particularly the ALT and AST (liver enzymes) are good to know. When you have that information you can add it to your signature line (via the profile page) it helps us reply to your questions and let's people know more about you.

I want to point out our search function. It's at the top center of each page. We have a lot of good data stored on these pages. We also use a lot of abbreviations here. You can find them in the Knowledge section and I recommend you take a look at them, they are quite helpful. Let us know if you have any questions and again, welcome to the forum!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Marypetrecz


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Nothing you ask should ask should piss off the docs.  You need to be informed,

I'm 1a and am on the S/O meds for 12 weeks.....I was undectable at 4 weeks and am going into my 7 th week of treatment with almost no side effects.....I feel great.  I was 1,300,000 and do not have cirrhosis. I was on the interferon and ribo for 4 months...in 2006....then hospitalized..it was brutal and I was unresponsive,,....I love sovaldi!

good luck.



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hepcinbama


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huey the doc said at first it was going to be a six month treat.,but the day we started he said it might only be a 3 month treat dose that sound right? also I see everyone has numbers they are keeping I want to be involved in my treat ,what numbers do I ask him for next visit ? is that question going to piss doc off? thanks again huey!!!!



__________________

hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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thank you huey!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Huey


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Welcome. I am a geno 3 and taking sovaldi and riba but not any Peg=IN . Mine will be for 24 weeks, yours may be shorter. your in a good place to start.

__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
hepcinbama


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new to site!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
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