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Hep C Discussion Forum -> On Treatment -> question hav hep c geno 3 just started inerfuron peg pen ribovirn an solvaldi anyone else with that combo?
Post Info TOPIC: question hav hep c geno 3 just started inerfuron peg pen ribovirn an solvaldi anyone else with that combo?
Huey


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RE: question hav hep c geno 3 just started inerfuron peg pen ribovirn an solvaldi anyone else with that combo?
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hepcinbama wrote:

wow I can not believe the support an great advice I get from everyone here I will get that info an post it on my line an hopefully someday it will be a help to others thank you everyone sooooo very much for taking time with me I feel sooo much better .Monday when I go in an give blood I will get that info, an not to gross anyone out here but I feel we are all adults I just went number 2 an was very concerned but my stool was not dark in color at all .if I were bleeding in my gi would not my stool be darkin color from the blood ? thanks again mallani,huey ,isiscat2011 an miss lisa! you are all extremely kind an generous an thoughtful to always be helping others! 

 You have some complications, Wright them down, keep track of time, difference of any kind ,Go over it with your doctor.  He, or She has the big picture.,

This was considered normal for me, but with your low blood count, it may not be so.. This is ware your Doctor and you have to develop a relationship.



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
hepcinbama


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wow I can not believe the support an great advice I get from everyone here I will get that info an post it on my line an hopefully someday it will be a help to others thank you everyone sooooo very much for taking time with me I feel sooo much better .Monday when I go in an give blood I will get that info, an not to gross anyone out here but I feel we are all adults I just went number 2 an was very concerned but my stool was not dark in color at all .if I were bleeding in my gi would not my stool be darkin color from the blood ? thanks again mallani,huey ,isiscat2011 an miss lisa! you are all extremely kind an generous an thoughtful to always be helping others! 



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
mallani


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Hi Bama,

I'd be concerned about low Iron. Do you know your levels? Anaemia from Ribavirin is common, but it does not affect Iron levels. As your doc said, low Iron and anaemia may mean G-I bleeding. Have you had an Endoscopy to check for varices? If you could publish your levels of Hb and Iron, we could give better advice. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Huey


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I know of others who the Dr. cut back on the riba... It's ok,, he knows what he is doing.

It should not effect your treatment



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Isiscat2011


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Hi Bama:

If you are able to it is a good idea to keep track of your own lab work as well.  We can help you decipher the numbers and hopefully get through this a bit easier.  It also helps if you have a baseline for comparison.  The baseline shows where your blood/lab values were just before you started tx.

Hgb is the number that shows how anemic you are becoming.  If you are becoming anemic at 2 weeks in this is something you will need to keep an eye on. Your platelets may fall as well due to the interferon.  There are a couple of others blood/lab values that will be significant throughout your tx.  

Also, if you can include your stats in your signature line that helps us to know where you are at also.  Just look at others; they include level of fibrosis (whether you have cirrhosis), genotype, age, prior tx, things like that.  

You will be okay.  It just helps to stay on top of things so they don't get out of hand.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Loopy Lisa


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Hi again, it sounds like you are anemic, this is a common problem caused by Riba. They can reduce the pills, or boost you with other medicine. It depends on how this reacts with your other drugs too. You probably feel tired and moody with it, but they will look after you. I have to admit I was full of panic, and it did nothing but made everything 1 million times worse. Stay strong and we are all about if you need an ear. x



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
hepcinbama


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thank you lisa for the support I wish you the very best!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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huey the doc  called me today I took a blood test yesterday an the results were not supposed to be back for two or three weeks but he called me an said my blood was extremely low no iron an I might be bleeding in my gi He said cut back from taking 3 200 mil.ribavirn  in morning an same at night to just one 200 mil in morn a 2  200 mil at night basically cut in half  dose this mean my treatment will go longer? an he also said  I have to come in Monday an give more blood an every week until we get it to safe leavels he said my iron was norm when I started an now there is none :{  what dose the ribavirin do ? thank you from the bottom of my heart for yours an everyones help an support I don't fell as if I am alone .letting my pen warm up for my Friday night darts club ! getting ready to take shot number 3



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Loopy Lisa


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I asked about the diabetic question as type 2 runs a little in my family - some like their cakes too much! She told me to eat whatever I wanted and not to worry about all these things. Better to eat a cookie than eat nothing. 

I think 3 months on triple actually is very do-able when you think its only 12 weeks. 24 weeks sounds much longer. If I had been on the triple, I'm sure i'd have made the finish line, 24 weeks seems like an eternity on Interferon personally. Both have good cure rates, but actually I read the TX has a higher cure rate.

We all react differently, and some people can do 12 easily, and other not. I go again on the 8th for follow up as Solvadi is available here. I'm seriously considering the TX for 3 months, I didn't do too well with the pens and had panic attacks, but actually, I'm still considering the prospect of it being over with so fast. Either way guys, it is a cure. We all react differently. :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Huey


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hepcinbama wrote:

wow that's crazy it really looks like you have great doctors keeping tract of everything  today I had to give blood first time since tx started  I have a appointment with doc in two weeks but nurse said results wont be back in time for my appointment  but the doc will call you if your dying !she dident say that ,but I knew what she meant lol so with eating a lot of sugar during this time could it make my a diabetic?

 That is what happened to me, and if it happened to me it could happen to you as we are both geno-3 but just because it happened to me doesn't mean it will happen to you.  Use of the other drugs is a negative indicator for liver fibrosis.  no telling what other manifestations it causes.

Mind you , I didn't remain a diabetic, it was only temporary,  The Dr. might not realize this will accrue, just be ready for it, As long as you know what is happening to you, when it happens if it happens, "The sugar shakes" you can get through it ok/



-- Edited by Huey on Friday 27th of June 2014 03:56:54 AM

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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
hepcinbama


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wow that's crazy it really looks like you have great doctors keeping tract of everything  today I had to give blood first time since tx started  I have a appointment with doc in two weeks but nurse said results wont be back in time for my appointment  but the doc will call you if your dying !she dident say that ,but I knew what she meant lol so with eating a lot of sugar during this time could it make my a diabetic?



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
hepcinbama


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WOW OMAR RIGHT IT IS CONFUSING MY DOC TOLD ME IF I used the peg pen it would increase my odds from 93 % to 98% that's almost 100 percent now I have heard the same horror stories as you my sis in law took the interferon an it made her deathly ill as for me not so much the interferon has been tolerable an I think im the only one who is gaining weight on this treatment .but I need to be honest with you I take subboxone  it is like methadone I was addicted to opiates like heroin an the government gave me there version of heroin called subboxone it has kept me from going back to the heroine but the subboxone in its self is very addictive I have to take it every day or im dope sick.so maybe that's why the interferon is tolerable for me .tomorrow night when I take my shot I plan on being in bed all weekend but come Monday its business as usual got to work come home cause im tired at 500 I use to work two jobs every night till 100 am   but the rib I think makes me very tired I will keep you posted as tommrow is shot three of 12 my doc also said with this triple combo its only a 12 week treatment hmmmmmmmmm? best of luck omar!!!!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Huey


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here is a graph of what my glucose did, the alt drop goes along with my viral load as the glucose goes up then back down.

gluchart1.png

altchart1.png



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Omar


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Hi Myke

You must have seen my thread with the same query posted a couple of weeks ago...

Kindly do update us frequently about your experience with this triple therapy. I have heard a lot of horror stories about Peg_INF but it is certainly doable.

My story is, I consulted 3 liver specialists after being diagnosed, and 2 of them advised me to go for SOV+RBV or peg-INF +RBV for 24 weeks.

And both of them did not recommend for the triple therapy (i wonder why).

The 3rd Doc recommended for Peg-INF+RBV for 24 weeks and said Sovaldi is not so effective for GT-3.

This is so confusing...right?

 



-- Edited by Omar on Thursday 26th of June 2014 09:40:19 AM



-- Edited by Omar on Thursday 26th of June 2014 09:41:03 AM

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Male 31 Years Old

Diagnosed with HCV GT-3a in June 2014

Sovaldi+Riba for 24 weeks started on 8 August 2015

 
hepcinbama


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Huey omgosh my sweet tooth has had a vengeance I cant get enough ice cream an candy an sugar after being at this forum you have taught me more then my doctor has !I will lay off the sweets asap! thanks again for any tips you may have like I said you have been there my doc hasent!



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
Huey


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Hi, bama,, Geno 3 is what I have but I am not taking Peg-IN , My Tx is for 24 weeks. My side effects will not be the same as yours however I can tell you to watch your sugar intake. Geno 3 does something the other genotypes don't, It causes insulin resistance. Right now you are having what they call a RVR. That is when you are killing the most virus and the level of your sugar goes up the more you kill the virus. It goes back down to normal when the VL has been Undetected for a week or so. It is the virus itself that causes this not the drugs. Just know that this is the worst of the side effects and in just a few weeks it will ease.
We are all in this Together. Keep your stick on the ice.

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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
hepcinbama


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I was wondering if there is anyone else with hep c geno 3  taking the same drugs im taking? took first shot last week not bad to second shot on Thursday night an was down till sunday  dose each shot get worse ? is everone different?



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hep c geno 3     2,600,000 viral load   started 12 week tx of peg pen rib an solvaldi the wonder drug! first time being treated after living in Egypt for 6 years on a river called De-Nile!
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