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Hep C Discussion Forum -> On Treatment -> New Treatment Side Effects, What to expect
Post Info TOPIC: New Treatment Side Effects, What to expect
Tig


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Let us know what you find out Lon. Keep up the great attitude, it's a big plus! I love the old Devo phrase too, and an appropriate one! Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Lon


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Thank you everyone for the excellent information.  After I sent the e-mail this morning my doctor called and said this morning's MRI found something on my liver.  I have to get more blood work done in the morning.  They don't know what it is but it's routing the blood flow differently that it was during the last MRI.  I'm sure it will be fine.

I can't wait to start the treatment.  We've all been waiting decades for this thing.  Let's get this show on the road I say.  

As Devo once said, "Whip, Whip it Good." biggrin



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(Geno type 1, VL 3 million, stage 2-3, took (8) weeks of Harvoni that completed on May 1, 2015, I'm showing undetectable today)

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Fireman Rob


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Hi Lon,

Find out which meds exactly you will be taking. I have two weeks left of Sovaldi/Olysio and it's a great combo. You will likely be able to work long, hard hours on this combo. Good luck!

-Rob



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

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sandypsych


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Hi Lon and welcome.  You have found a great place for information, support and encouragement.  

My husband just finished a 12 week course of Sovaldi/Olysio.  Without Ribaviran or interferon.   I'm not sure if that is what you were prescribed.  He had also been on four different series of treatments trying to beat this disease.  He never was able to finish the others due to either severe side effects or them just not working.  This however he describes as 'a walk in the park compared to the others".  The only side effects that he experienced were some increases in emotional responses (he seemed to have PMS to me!), a few headaches and occasional insomnia.  He also found that his gums became very tender and bled easily.  Once in a while he would feel tired/exhausted, but it was hard to tell if this was medication or just from insomnia.   But that was it.

He is retired, but does volunteer work, and found after a few weeks he actually had MORE energy than before.  He even did some major yard work this summer!  He was undetected at 8 weeks, and we are waiting not-so-patiently for our EOT viral load.  

Best of luck to you!  Keep us posted. 

Sandy



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Hubby profile:  Genotype 1a.  Hep C since late 70's.  Cirrhosis.   Interon/Riba 2x.  Incivek/interf/riba:  Und at 8 weeks, but had to stop due to DRESS syndome.  Olysio/Sovaldi started 6/18/2014.  Cleared virus 11/05/2014
tomyboy


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Hi and welcome to the forum.  My husband is 61 and retired.  He just started his new treatment today. This is his fifth attempt at beating this virus. He is taking the solvaldi and ribovirin and we are pretty excited as we are hearing such positive results with the new meds. There is a lot less side effects and this will be beneficial for you. In the past, my husband did very tired, weak with flu like symptoms, but we have heard, the side effects are so much less. Each person feels different and only you will know after you begin treatment.  Wishing you the best of luck in your journey, and hope you can continue to feel well during your treatment.  What will you be taking?  You will find a wealth of information on this forum and everyone is helpful. Please feel free to ask many questions to the nore experienced people. 

Good luck,

Laura



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Tig


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Hi Lon,

I believe you're referring to Sovaldi (Gilead) and Daclatasvir (BM). Are you going to be involved in a trial? I know BMS applied for FDA approval in April, but haven't seen that approval yet. Anyone else have an update on this? Regardless, the combination is an excellent one and you will do well. Reports of side effects have been limited and I would expect them to hopefully be minimal. Until there are some miles put behind that combination, you will find most of your questions answered via trial data. I look forward to hearing your progress reports, good luck!

Tig

 

http://www.hepmag.com/articles/daclatasvir_Sovaldi_2501_25081.shtml

http://hepatitiscnewdrugs.blogspot.com/2014/01/its-back-daclatasvir-plus-sofosbuvir.html



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Lon


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Hello,

I had my MRI today and I'm meeting with my Gastro next month to start on the new non-Interferon combo treatment that Gilead and Bristol Meyer have out (I think that's them).  It will just be the 12 weeks of pills without the Interferon. 

I feel pretty good now except for the foggy mind and constant exhaustion.  I have to decide if I'm going to try to make it into work on the new 12 weeks of treatment or if I'm going to apply for short-term disability.  My job is in Boston, requires a long commute, I work at a computer, get up at 5:00 AM and get home from work around 7:00 PM.  I'm 61 years old and the whole job thing is physically and mentally exhausting to me.

If you are taking one of the new combo drugs, I would appreciate your sharing your side effect stories with me so I can plan accordingly.  I know everyone is different but by hearing your stories I can better prepare on how to manage my work schedule while on treatment.

Thank you.  

Lon

 

 



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(Geno type 1, VL 3 million, stage 2-3, took (8) weeks of Harvoni that completed on May 1, 2015, I'm showing undetectable today)

"Everyday is a gift, that's why they call it the present."
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