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Hep C Discussion Forum -> Post Treatment -> My first day post treatment - Sol/Oly
Post Info TOPIC: My first day post treatment - Sol/Oly
patiently_waiting


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RE: My first day post treatment - Sol/Oly
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Dzdayscomin wrote:

To be honest the fact these drugs are so effective and the results are now coming in fast to the dr's .......that I'll bet you'll stop seeing these "feel good VL tests" being done.

I know I wanted them too, but didn't push because it wouldn't change the tx outcome, my guess is you will see that it will be a 12wk post tx test and that's it.

If you have the virus there is no real point in getting tested at the start of tx, and after tx is pretty much of no use because the protocol as I understand is 12 weeks, so if it doesn't do it in that time frame it's not going to, so why not just wait  till the SVR test...I know if drives you crazy waiting for some good news but it's a mind thing.

And even if you found out it didn't work EOT what would do? ask for 4 or 8 more weeks of something that's not working? or do you think they'd start another tx that soon?

 

Just sayin.... don't shoot me !

 

 Everything you say is true.  I just think 12 weeks is a hell of a long time to wait.  Since most relapses occur within 4 weeks I think it's sensible, but not required, to get one done at 4-6 weeks EOT as well.  Of course there's a cost so that means the insurance company and anyone else footing the bill should be ok with it, but I'm more than willing to fork over cash for it.  Also, if you do relapse there is value in knowing sooner so you can plan accordingly for next steps.  If I relapse I will immediately start planning to start a new regimen ASAP.



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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
Dzdayscomin


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To be honest the fact these drugs are so effective and the results are now coming in fast to the dr's .......that I'll bet you'll stop seeing these "feel good VL tests" being done.

I know I wanted them too, but didn't push because it wouldn't change the tx outcome, my guess is you will see that it will be a 12wk post tx test and that's it.

If you have the virus there is no real point in getting tested at the start of tx, and after tx is pretty much of no use because the protocol as I understand is 12 weeks, so if it doesn't do it in that time frame it's not going to, so why not just wait  till the SVR test...I know if drives you crazy waiting for some good news but it's a mind thing.

And even if you found out it didn't work EOT what would do? ask for 4 or 8 more weeks of something that's not working? or do you think they'd start another tx that soon?

 

Just sayin.... don't shoot me !

 



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

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patiently_waiting


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Yes, I have no idea why we're doing the EOT one either, but I've decided not to argue about it so long as they'll give me another at 4-6 weeks.

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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
Fireman Rob


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PW,

Good for you on completing tx. Let's get this mess over with once and for all! Keep us posted. I can't wait to see some good news from my treatment buddy, PW.

Fingers crossed,

-Rob



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

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OldenSlow


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Isiscat2011 wrote:
If I had to choose I would definitely have the EOT+4 weeks instead.  

Ditto. With almost all Sovaldi failures happening within the first month, this is the one I would insist upon.  

PW..   If memory serves, Sovaldi takes about a week to clear the system. Truthfully, I don't see the point in an eot VL and elected not to have one. Demanded the 4-weeker, though. wink

wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Isiscat2011


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patiently_waiting wrote:

 Yes, Tig, purely psychological.  I know the 12 week is the big one, but twice before I've relapsed almost immediately after stopping treatment so I would like to know if that happens again.  Not a necessity but would be nice.  They may tell me no - we'll see.

I understand the EOT +4 week test; I would want that too.  The one that has me puzzled is the EOT because you were just tested a couple of weeks ago.  It is extremely unlikely that a relapse would show at EOT.   If I had to choose I would definitely have the EOT+4 weeks instead.  

Hopefully, you will SVR, PW.  No way to predict, and we have seen a few relapses, but I still have confidence in this combo.  Most people are going to SVR on it. 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Hey PW,

If you want me to dust off my Magic 8 Ball, you let me know! It has been pretty good at predicting SVR's, lol!! Good luck buddy!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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patiently_waiting


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Tig56 wrote:

Good job PW! I assume the EOT+4-6 VL is just a morale booster right? As long as you're not putting out cash money for it, go for it. If you're UND at EOT, I'd be very confident that you'll be UND at week 4-6. EOT +12 is the biggy though. I'm not sure what the S/O half life is, but the Riba can hang around up to 6 months after EOT. If you're still UND at +4-6, your rate of relapse drops into the nether zone!! Good luck my friend!!

Tig

 Yes, Tig, purely psychological.  I know the 12 week is the big one, but twice before I've relapsed almost immediately after stopping treatment so I would like to know if that happens again.  Not a necessity but would be nice.  They may tell me no - we'll see.



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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
Tig


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Good job PW! I assume the EOT+4-6 VL is just a morale booster right? As long as you're not putting out cash money for it, go for it. If you're UND at EOT, I'd be very confident that you'll be UND at week 4-6. EOT +12 is the biggy though. I'm not sure what the S/O half life is, but the Riba can hang around up to 6 months after EOT. If you're still UND at +4-6, your rate of relapse drops into the nether zone!! Good luck my friend!!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Groupergetter


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Happy for all those finishing tx.  Onward to SVR.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
patiently_waiting


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LOL Wayne...sounds like a scene out of Office Space. :)

Isiscat2011 wrote:

Well done, PW.  smile

That is an odd VL testing schedule.  Appx. 2 weeks before EOT and then again at EOT?  Will you have another at 4 or 12 weeks EOT?

 I'm going to ask for another one at 4-6 weeks after, but I know I will at least get one at 12.  I guess Friday may tell me if I've immediately relapsed but I'm not even sure that's enough time for the meds to clear my system.



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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
Isiscat2011


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Well done, PW.  smile

That is an odd VL testing schedule.  Appx. 2 weeks before EOT and then again at EOT?  Will you have another at 4 or 12 weeks EOT?



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
OldenSlow


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Good to hear from you, PW. Congrats on getting to the end of it. I beat my last emptied bottle of riba to death with a hammer. Jury ruled justifiable homicide. Keep us posted.

wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
patiently_waiting


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Took my last 2 pills yesterday.  After that I threw out everything related to treatment...pill bottles, inserts, everything. I'm not sure why - I guess I just want to feel healthy again and I don't want any reminders.  I was UD as of ~2 weeks ago and will test again Friday.  Next stop SVR, I hope! :)



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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
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