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Post Info TOPIC: 3 months post treatment: Very afraid


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RE: 3 months post treatment: Very afraid
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Hi, I am a geno-3a,  I am in the USA however and i just won't you to know that the Sovaldi works on our genotype.  i am SRV and had a few mishaps along the way, You will be too if you can take the Sovaldi-Ribavirin combo for 24 weeks.  Good Luck.



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 



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 There is also discrimination here in the US toward HIV, much more so than HCV in my experience. I learned early to keep my mouth closed back in the days when I had a job, semi-personal acquaintances with others, and a lot of 'fair weather' friends. These days I'm disabled, on a fixed income, with no job and limited personal contacts and life is so much easier not having to 'hide' my status due to fear of loosing a job, friend etc.

Yes, I had a cd4 count done 3 times. On days 25, 57 and 350 after the encounter. The cd4 counts were 854, 450 and 421 respectively.

 I'm no Dr or health care worker but in my opinion, although a CD4 count of 421 is not necessarily a cause for concern, I would think this rapid decline of 854 to 450 (404) within 32 days is certainly a cause for further investigation by your doctor. It doesn't make sense to me to be the result of HIV infection because your antibody presence test have been consistently negative, but something is wrong IMO. I suppose your immune system could possibly be affected in a way that prevents it from producing antibodies within this 1 year window, but that is not normal and is not my experience.

Can you give some tips to hold myself together mentally. I am not any good at it.

Yes. See your Dr and have further test done to see if any other type of infection can be found, anything that involves the immune system. You need fact based test results to plan your next move on as well as eliminating all the possibilities that your mind can dream up. Those possibilities can be even much more of a physiological burden to deal with than the actual illness your worried about.

 



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Thanks for such a detailed reply, Mike! I appreciate the effort you have put into it.

How are you doing my friend? 

If you do not mind, may I ask you, how was your life post being detected HIV and HCV positive?

How did people around react to it?

May I add that I am from India. While not too many people outside my family know about my HCV status, HCV is not that frowned upon. Most people do not even know what HCV s.

HIV is a completely different ball game together. There is a massive discrimination in India.

I am really scared. I am 31, I am looking to get married. There is this system of arranged marriage in India. I know its difficult for people in the west to understand this concept of arranged marriage :)

Yes, I had a cd4 count done 3 times. On days 25, 57 and 350 after the encounter. The cd4 counts were 854, 450 and 421 respectively.

The percentage too kept on decreasing. I have read a few cases where health care workers got pricked by needles containing blood off hcv and hiv positive patients and did not produce hiv antibodies till about one year after the encounter.

 

It is this that worries me. Any way my encounter was different. But I am still in doubt. And I cannot take the risk off getting married and infecting the girl.

Can you give some tips to hold myself together mentally. I am not any good at it.

My hiv test was a rapid blood test conducted in a lab. And in India, we are generally not covered by health insurance. So, we can run whatever tests we want to run, if we are willing to pay for the test. Hence the cd4 tests.

 

And thanks for listening!

 

 



-- Edited by mindovermatter on Wednesday 24th of September 2014 02:19:59 PM

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31 year old Indian

Starting viral load 2.3 million

Started treatment: 31/12/2013 with pegylated interferon and Ribavarin.

Fibroscan score : 5.3 kpa

GT : 3

EOT: 16th June 2014



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mindovermatter wrote:

I am wondering if I also acquired hiv from the encounter.

My cd4 counts are low at 421.

 

I have taken 5 rapid blood tests for hiv the last one was one year after the exposure and it was negative.

My low cd4 counts have really been bothering me. Can Hep C treatment lower cd4 counts?

Can simultaneous coinfection with hcv delay hiv antibody production. I have read on a few sites that it can and I am very scare to be honest.

Do not have the courage to fight another disease. Would some of fthe experienced members please chime in?


 Hi mindovermatter.

 I'm not very "experienced" or knowledgeable but I have some thoughts. Maybe a more knowledgeable member will chime in and educate us both.

Although CD4 counts for non-HIV infected individuals are generally higher than 421, and can be up to like 1600 or more, some can be as low as ~400.

I would think HCV treatment would have a negative effect on CD4 count and HIV VL, but I have not been able to find very much information about this. What little I have found suggest no significant reduction in CD4 count nor viral load in most cases. On the other hand, I've found a lot of information pointing towards HIV having many (some very significant) negative effects on the HCV virus and HCV treatment, but this would not concern you at this point.

 If it's been a year since the sexual encounter that has you worried, then, if infected, that is certainly enough time for seroconversion to occur and HIV antibodies to be present, therefore a positive rapid test result will be shown. Also the rapid (EIA) test has the potential for indicating false positives, but chances for failure to detect the antibodies is remote, so you can ease your mind if that was a concern.

 It's been over 20 years since I was tested using the rapid test, but I don't remember getting a CD4 count result. Where did you get your CD4 count of 421 from? Have you had a standard HIV screening test in which you had to wait a couple of days for the results to return from the lab?

Can simultaneous coinfection with hcv delay hiv antibody production. I have read on a few sites that it can and I am very scare to be honest.

 I say no. I suspect I was infected with HCV in 1985. Then I was infected with HIV in 1994 (I am certain of that) and was tested 6 months after that encounter with rapid test which showed positive result for HIV antibody. This is within the normal 6 month max time table given for HIV antibody production. So my answer to your question based on my own experience is no.

 I hope this eases your mind some. Maybe someone with more experience will be of more help for you and I. smile

 

 

 

 



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Hi All,

I am posting after a long time. Hope all of you are doing well. I see many member are undergoing treatment without interferon. Hope they are all doing well.

Do any of you believe that you acquired HCV from sex?

Because I had a sexual exposure with a CSW in August 22013.

 

I checked my AST, ALT and Bilrubin, 1 month and 2 months after the exposure. All of them were normal affter the first month and elevated after the second.

I am wondering if I also acquired hiv from the encounter.

My cd4 counts are low at 421.

 

I have taken 5 rapid blood tests for hiv the last one was one year after the exposure and it was negative.

My low cd4 counts have really been bothering me. Can Hep C treatment lower cd4 counts?

Can simultaneous coinfection with hcv delay hiv antibody production. I have read on a few sites that it can and I am very scare to be honest.

Do not have the courage to fight another disease. Would some of fthe experienced members please chime in?



-- Edited by mindovermatter on Wednesday 24th of September 2014 09:17:11 AM

__________________

31 year old Indian

Starting viral load 2.3 million

Started treatment: 31/12/2013 with pegylated interferon and Ribavarin.

Fibroscan score : 5.3 kpa

GT : 3

EOT: 16th June 2014

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