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Hep C Discussion Forum -> General Discussion -> Harvoni
Post Info TOPIC: Harvoni
Isiscat2011


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RE: Harvoni
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B161 wrote:

Hi, how is it going on harvoni? I am supposed to receive my first 30 days tomorrow. I treated w/trile TX back in 2011 but had to stop becuase of SE. I'm feeling really positive about it. Very similar, about to be 60, geno 1a, diagnosed in 1998. Tell me more about how its going if you will...thanks B

 Hi there B161:

I remember you from back in our Incivek days.  This time around should be a whole different story.  Good luck and good to see/read you!  smile



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
B161


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Hi, how is it going on harvoni? I am supposed to receive my first 30 days tomorrow. I treated w/trile TX back in 2011 but had to stop becuase of SE. I'm feeling really positive about it. Very similar, about to be 60, geno 1a, diagnosed in 1998. Tell me more about how its going if you will...thanks B



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B161-NH
Tig


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Hi Connie,

Dont lose your desire to treat. Having made it this long with low fibrosis scores and few problems is certainly a blessing. But don't allow that to cause complacency and a belief that nothing will happen. This is a slow developing disease that takes decades to do its damage. Look among our pages, it's the individuals with long histories (some not) that suddenly find themselves dealing with advanced fibrosis and the extra hepatic problems that long term infection cause. I hope you stick to your guns and commit yourself to the fight. The time has never been better! Why not take advantage of a nearly side effect free treatment? Hold onto hope and the desire to finally be Hep C free!!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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angelseven


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Looks like patience is the name of the game.... if I wait to long I may change my mind about treating,  been waiting 18 years already..... always been on the fence with low fibrosis and not feeling to bad



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62 year old female      1a, f1-2, had virus 40 years   STARTED HARVONI for 8 weeks 11/19/14, relapsed one month after tx  ended in 1/15.  Fibrosis level was only .5 after fibroscan 12/15. Began treatment with Mavyret on January 20, 2018 for 16 weeks!  Ending May 12.
darkstar


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Guys, thanks for all of the positive vibes.  Since relapse been waiting for new options and trying to stay in the best shape I can in the meantime.  My perception is that Harvoni approval is going to be a little bit slower than Sovaldi/Olysio.  But I can't wait.  Hopefully, the 99% success rate is a real one!



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maddie


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Glad to see you posting again. Wondered how you were these past few months.  This new drug is going to be "the one" for you, Darkstar. 

Sending all good vibes and wishes to you.  ~maddie  smile



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Dx. 2005-liver bx.: stg 2/gr 1. at that time  - GT 1a multiple transfusions in 1981.  Started Sovaldi and Olysio 1/16/14  (No prior treatments) Q80K present.  UND week 4,8 and at EOT.   UND at wk 4EOT, Und at wk 8EOT  SVR 12!!!..SVR 24 :-)
Gator Man


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Darkstar, good to see you posting again. I think you will feel as good with Harvoni as you did with S/O. However, this time you will get to SVR and be done with HCV forever!

Best of luck! Our fingers are crossed for all of you with prior tx experience.



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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
darkstar


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Isiscat,

 

I guess, but the squeeky wheel......  Fine fine between gentle pushing and being obnoxious.  If pushing gets it quicker I will do it.



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Fireman Rob


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Darkstar,

Good to see you on the forum again. You guys keep us posted on obtaining Harvoni. I've been wondering how you're doing and hoping your wait is brief for tx. Good luck.

-Rob



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Isiscat2011


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darkstar wrote:

As you all know, this agent was FDA approved on Friday.  Although I would have expected that it would be available immediately, it is not.  When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have the drug in their system to get prior approval.  Hopefully all of this will be straightened out by the end of the week.

This is going to require pre-authorization in most cases and there will be many patients in line.  I'm expecting a minimum of a 2 week wait between the doctor's appointment and the approval. If it happens sooner great. Pre-authorization=forms and supporting records needed.  At least 3 offices involved: doctor, insurance, pharmacy.  I've waited this long; no reason to stress over a few more weeks or however long it takes.  As long as I know they are working on it and my file didn't accidentally end up on Mars.  biggrin



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Groupergetter


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You're are soooooo right.  We need to get that back.  I can remember my wife commenting on all the new found energy biggrin   and actually getting lots'o stuff done on the weekends.  Guess until then we can dream. Even if we do feel like crap   biggrin    Be well sir.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
darkstar


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Let's hope so, I still remember two weeks into my last treatment feeling 20 years younger and wondering what was up....want to be there again!!



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Groupergetter


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Darkstar, good to see you around.  We're gonna slap this dragon silly.   In the words of Taz,

Peace, out  



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
darkstar


Senior Member

Status: Offline
Posts: 115
Date:
Permalink  
 

As you all know, this agent was FDA approved on Friday.  Although I would have expected that it would be available immediately, it is not.  When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have the drug in their system to get prior approval.  Hopefully all of this will be straightened out by the end of the week.



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