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Hep C Discussion Forum -> Clinical Trial Participants -> Do all clinical trials pay you to participate?
Post Info TOPIC: Do all clinical trials pay you to participate?
lilbit


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RE: Do all clinical trials pay you to participate?
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That is awesome and what a great thing to do.  So glad you were cured.  happy dance for you.

 



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64 yo Diagnosed in 1991 with Hep C, Genotype 1a, VL close to 16,000,000, Tx Abbvie Topaz II 9/5/14, Wk 2 and 4 und. End of treatment 11/27/14 undetected.  EOT+4 und  EOT+12 und.  EOT+24 und CURED, EOT +52 now I feel really cured.
lauralou57


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I was paid $1,000.00 for the entire trial which cured me of hep C.

This blew my mind away so I donated this money back to the medical school.



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lilbit


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I haven't been paid for any visits yet but have been told I will. They use a credit card system and its deposited to that card.

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64 yo Diagnosed in 1991 with Hep C, Genotype 1a, VL close to 16,000,000, Tx Abbvie Topaz II 9/5/14, Wk 2 and 4 und. End of treatment 11/27/14 undetected.  EOT+4 und  EOT+12 und.  EOT+24 und CURED, EOT +52 now I feel really cured.
LC


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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Isiscat2011


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Foiled again!  

Dippen.jpg (299×163)



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Ray


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I receive $50 per visit to cover gas.  It cost me about $45 per visit (I drive for two hours).  I use the other $5 to help with lunch before my drive back.



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Ray

G-1a, Long Term HCV (1969), Bridging Fibrosis, Started Merck C-Edge 12 Week Trial 07/14 finished 10/6/14, Beginning VL 4.2 Mil, as of Jan 09 still undetected.  Blood test every 4 weeks
LC


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Dzdayscomin, have you ever heard the saying "snitches get stitches"?

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
LC


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Isiscat2011 wrote:
LC wrote:
Let me know if you get wind of what that Isis is up to, if you would, ok?  

 Hard to say but she is keen on disguises.   She once crept past a German Shepard dressed as a poodle.  smile

It sounds like Isis is a Master of Disguise and will be a formidable opponent.  no  However it remains to be seen if Isis is able to disguise her true nature.   It would be a feline first. 

 



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Dzdayscomin


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I'll watch the back Isis !!!!



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53yr M 1a acq 12/83 cirr pre tx MELD 17  tx nv diag 1/29/12  tx S/O 3/5/14  trans list.

EOT 5/28/14 UND 6/12/14 SVR 8/29/14 MELD 14 dx HCC 9/5/2014 tumor ablation 9/24/14

In the 10K lakes State It's not about us but those around us.
Isiscat2011


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LC wrote:
Let me know if you get wind of what that Isis is up to, if you would, ok?  

 Hard to say but she is keen on disguises.   She once crept past a German Shepard dressed as a poodle.  smile



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
LC


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Isiscat2011 wrote:
Btw, Isis is very excited about your new mouse.  She may be planning a covert operation to get past your guard dog.  no  I'll keep an eye on her.  

  

Oh it's still me, I am just wearing a different outfit.  I'm going to be a mouseketteer for Halloween. smile  Let me know if you get wind of what that Isis is up to, if you would, ok?  We will be extra-cautious until we figure what on earth that evil creature could be planning.    I might have to add some extra security measures...



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Isiscat2011


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LC wrote:

I was just wondering if they all did that or what? confuse It was a nice surprise that they would actually pay me to go there.  On top of free very expensive medication.  smile  I wonder if it is for some legal reason, like they are worried we might try to come back on them if all doesn't go well?

______________________________________________________________________________________________________________

The contract you sign is for legal reasons; the money is for incentive or just to help out a bit with travel expenses, etc.   There are some people who participate in clinical trials regularly to supplement their income and some clinical trials pay more.  

HCV patients are motivated by the desire to get rid of the virus and everyone who participates has HCV.  I expect we will see an increase in volunteers until the tx becomes accessible to all.

Btw, Isis is very excited about your new mouse.  She may be planning a covert operation to get past your guard dog.  no  I'll keep an eye on her.  

 

 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Milliganus


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LC wrote:

I bet that is really pretty out there Marcy.  I want to buy an Airstream and stay in a lot of national parks when I retire. 

 I highly rcommend it.  We live in a beautiful country!



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Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
LC


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I bet that is really pretty out there Marcy.  I want to buy an Airstream and stay in a lot of national parks when I retire. 



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Milliganus


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I get $50 every time I go in. It deposits to a credit card same day. A nice little bonus! I rented an RV space here in SanDiego to go thru the trial. well worth it for what I have saved, plus there's worse places to spend a summer.

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Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
LC


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I already got 2 checks.  I deposited them in the ATM last night.  Maybe they just disperse the money differently.   Are you getting $75 a whack as well?  I'm going to use that on my credit card.  smile  I never asked them if everyone was getting it - no sense looking a gift horse in the mouth right?  wink



__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
lilbit


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LC my first thought was the same thing. But then I remembered that on a couple different test days they did the same thing with my husband. I think maybe it is because people have to travel sometimes a long way like you. Luckily I live about an hour away so it isn't quite so bad. I actually do not know when they pay you tho. I had to sign a form at my 4 week blood draw so they could pay but no mention when. If they wait until the end of study we won't see it for a very long time. hehehe

__________________

64 yo Diagnosed in 1991 with Hep C, Genotype 1a, VL close to 16,000,000, Tx Abbvie Topaz II 9/5/14, Wk 2 and 4 und. End of treatment 11/27/14 undetected.  EOT+4 und  EOT+12 und.  EOT+24 und CURED, EOT +52 now I feel really cured.
LC


Senior Member

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Posts: 473
Date:
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I was just wondering if they all did that or what? confuse It was a nice surprise that they would actually pay me to go there.  On top of free very expensive medication.  smile  I wonder if it is for some legal reason, like they are worried we might try to come back on them if all doesn't go well?



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
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