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Mugsy


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RE: 1 problem Identified
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Huey wrote:

My mother , Who also had hep-c but didn't know what it was, Drank coffie first thing in the morn getting up from work, she made it twice as strong as it is supposed to be by adding more than double the coffie grounds for a pot of coffie, Then it would sit all night and would be stone cold.,  i would have to run get her a cup of this cold MUD , and I do mean mud. first thing and right NOW.  She would take it with 6 or 8 aspirin and her daily dose of cortisone

 Wow  she must have had a cast iron lined stomach!



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Huey


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My mother , Who also had hep-c but didn't know what it was, Drank coffie first thing in the morn getting up from work, she made it twice as strong as it is supposed to be by adding more than double the coffie grounds for a pot of coffie, Then it would sit all night and would be stone cold.,  i would have to run get her a cup of this cold MUD , and I do mean mud. first thing and right NOW.  She would take it with 6 or 8 aspirin and her daily dose of cortisone



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Mugsy


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Used to be a coffee snob ...only freshly ground French Press style for me but it began to make me nauseous, so I switched to tea a couple years ago.  With all this recent talk of how good for our livers coffee is I thought I'd give it a try again.  I found I needed food to go with it so I eat before I drink now and that seems to help. Can't drink it without half and half, though. 

Pretty coffee, that made me laugh!



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Trainhopper


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well, to be honest.... drinking coffee is like asking a vegan to go eat steak.... I hate it and it's like my body is rejecting it..... I know it's not but yeah... hate it... just drank 16oz of it... glad I have barbituates.... lol jkin



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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
Isiscat2011


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There is an upside to fatigue.  I can drink coffee late at night and will still be tired enough to get to sleep as soon as my head hits the pillow.  



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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I survive on "pretty" coffee, TH!! I finally decided to turn off my Keurig coffee maker around 7pm. That way I can drain and unwind from the caffeine buzz before bed! I live for coffee, lol! But it has to be "Pretty" biggrin

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Trainhopper


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Thanx for the info... to be honest I hate coffee.... Unless it's "pretty" That means a crap load of sugar and lots of flavored creamer...  By that point I feel it's counter-productive. But as per usual I will take this advice to heart and drink the sh*t. Making some now actually....  " I don't drink caffeine, but when I do, I prefer Starbucks. Stay tired my friends!" Quote from "the most interesting man in the world" Lol sorry, had to be done.... But I like my version better



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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
skewedButNotBroken


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For the last couple of years, I have drank 1 or 2 cups of strong coffee in the morning and on occasion a cup in the evening if I get too tired too soon.



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Diag. with hep c in 1992; A3:F2;  GT 1a; IL28B CT; VL 900k, ALT 150, AST 100 on 8/5/2014; SOT 9/5/2014  S/O ---VL 127 after 6 days; VL detected on day 18 but < 15.; --> UND @ EOT+ 1 year SVR!
Isiscat2011


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I drank decaf for many years but returned to the real stuff about a year ago.  2 or 3 cups per day helps considerably with my fatigue and I haven't seen any irrefutable evidence that it is harmful.  I am drinking a cup of French Roast right now.  Yum.  smile



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Brian1412


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Sweeet !  



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Tig


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Brian1412 wrote:

So coffee is good?   Music to my eyes ...    Is it sugar to avoid? 

 I think all things considered, if there are no outstanding reasons that indicate an obvious need to avoid it, then my favorite response "Everything in moderation" applies... But coffee has been shown to provide many benefits!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Brian1412


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So coffee is good?   Music to my eyes ...    Is it sugar to avoid? 



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Miss B


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Trainhopper, LC has a good point about coffee. It can help with headaches and is also good for your liver.  I gave up coffee years ago because I thought it might be bad for the liver. I started drinking coffee again after reading studies that show it is good for the liver.

You are smart to be very careful to not become dependent on the meds.  Good luck!

Participants who reported drinking three or more cups of coffee per day had lower levels of ALT, AST, ALP and GGT compared to those not consuming any coffee. - See more at: http://hepatitiscnewdrugresearch.com/coffee-consumption-and-chronic-liver-disease.html#sthash.Y88368GX.dpuf



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Miss B
56 years old. Genotype 1B, previous treatment with interferon 1994. Started Harvoni 12/8/14. After 2 weeks, VL dropped from over 4 million to 496. At 4 weeks, undetected, but at 8 weeks, <15 mL (detected), at 12 weeks/EOT UND!  
Huey


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I was wondering about you,,, Great, So you found a doc who know what she is doing, Finaly!! I have been busy driving my cab and have not been on to see how you were doing but did think about you with concern in my day.
We are all in this together keep your stick on the ice. 'Red Green Show'

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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
LC


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Well that's good thing. You're too young to feel so bad. I think you're wise to be concerned about the addiction issue. I have a good friend who got pretty strung out on crack, had to take him to rehab many years ago. Now he isn't on crack, but he goes from one prescription pill (illegally obtained) to other, for pain supposedly. I tell him if you're in that much pain, see a doctor yourself. Do you drink coffee? Sometimes it helps me when I feel a headache coming on. I wish I had scored a valium for my biopsy, then again, I'm a nervous nelly.

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Trainhopper


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P.S. I know the high risk of addiction with this chem I'm taking.... I hope (fingers toes legs yadda yadda crossed) that I wont become yet another barbituate statistic....I'm giving it a rest tomorrow... for at least 2 days if I can. I hate the F-ING headaches



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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
Trainhopper


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So my new Dr. is cool. Her name is Seyyad.... But she had a hunch of what might be my problem.... well, educated guess anyway.... She said after 10 or more years of I.V. drug use, she sees people with vascular problems due to scared veins. And I do have really scared veins... It takes a good blood tech to draw on me (hands are off limits unless its last option). So anyway she concurred with the G.I. in the whole tension headaches.... (????) Fine lady.... so she prescribed me Fioricet. Now I have never taken a barb before, really didn't want to.... But out of the sake of trying to feel better, I took it as prescribed. It's been 36 hours and I feel great (not high so much). She said she prescribed it because it has asprin and caffine in it to help thin my blood. She firmly believes that I am having a low flow of blood to the Liver. The tell tale signs (her words) are when I draw my knees up to my chest, and it exacerbates my symptoms..... So, needless to say she wants the ammonia lvl testing to stop... Also to stop taking the Rx. 7 days before biopsy on Nov. 5,.  Said take the Lactulose just to flush what ammonia lvls are there.... Oh she also said the barb was for the headaches. Told me that most H.E. peeps have elevated Iron as well as massive amounts of Billyruben. I have neither. Also a headache isn't indicative of H.E. said maybe 10 outta 100 may..... may get the headache.... and that's after confusion sets in... She did cognitive tests as well, and said as a herb smoker, I did amazing. So in conclusion... I feel great (hope its not just the barb). Oh said it is tension headaches because of all the head injuries I have sustained (prolly like 6 BAD ones that put me in hospital). 

So.... Everyone that has been so supportive.....THANK YOU.... Next hurdle.... The biopsy.... ooooooo num nums 



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34yr male Dx 1998 G.T.2b V.L. 2.5 million no current Tx 
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