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Hep C Discussion Forum -> General Discussion -> I.V.F and Hep C
Post Info TOPIC: I.V.F and Hep C
Cinnamon Girl


Guru

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RE: I.V.F and Hep C
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Hello Lisa, good to hear from you!

Great that you`ll be able to start your IVF treatment so soon at last!  It must be very exciting for you, but I can also understand your concerns about the possibility of transmitting HCV to your baby, and that`s not an easy question to answer! 

The odds are certainly in your favour for giving birth to a healthy child but there is a definite risk, even though statistically it`s very low.  On the other hand, another thing to consider is that possibly this could be your only chance to conceive and give birth, and I know how important that is to you. 

I had both my children before I knew I had Hep C and when I had them tested they were both clear of the virus, but I realise that in your position it`s not at all an easy thing to weigh up.

Those are just my initial thoughts, and I wish you all the best of luck!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Loopy Lisa


Guru

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Thank you folks :D

 

To up-date, I have been given the go ahead, I start 18th December. I am excited, relieved and also worried. I would love to hear from anyone that was concieved and infected via vertical transmission. I had to think hard to proceed as now since treatment I have a very high viral load. They have put transmission risk at 5-10% with most cases of mother to child cases self resolving at 30%. I'm not sure how I would feel if I had a live birth and my baby was infected. I would like to know how it has affected people. My chances of a live birth is also a consideration, but I like to think positive.

PS: All panels remain good, just a slight elevation in white blood cells.

 

Many thanks,

L



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hi Lisa, I was wondering how you were doing and this is such good news!  How wonderful that you now have fresh hope of a chance for IVF, you must be so relieved and excited!!  Having such a good and thoughtful doctor can make all the difference in the world.

Wishing you all the very best of luck with this, and I do hope a more suitable tx will become available to you and others in the Netherlands before too long.

Do keep in touch!!  smile  Jill x



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
LC


Senior Member

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Posts: 473
Date:
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Hi Lisa, I remember you.  Sorry to hear you failed treatment, but I bet there's a magic bullet coming soon with your name on it.  That's great of your doctor!  Talk about going above and beyond!  I work in a hospital now, and the long hours I see some of them put in and their dedication is touching to see.  I hope it works out for you, and you can someday have the baby you want. 

 



-- Edited by LC on Tuesday 28th of October 2014 05:45:52 PM

__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
Loopy Lisa


Guru

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Posts: 895
Date:
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Hi guys,

It's been a while since my last post. I had lost all hope for I.VF as some of you know I failed TX this year and the drugs are available in the Netherlands but the insurance companies are playing the delaying game with the high price - so no one can access them yet. I have been trying to get on trails, asked to go back on the old TX - first two weeks I was neutropenic and anemic, and my Doctor doesn't want me back on it.

OK this is standard things. BUT.........my doctor who owes me nothing researched why I can't have I.V.F, had a meeting with a microbiologist etc. The issue is only the freezing aspect of the zygotes. Since I am already 40 it is highly unlikely there will be much to freeze as from one batch there are statiscally 1-2 viable eggs. Armed with her knowedge she arranged a meeting with my GYNO and Microbiologist all together to work out me having I.V.F still infected.

I have never been so touched in my life and when I got home I cried like a baby! I will hear soon what is going to happen and hopefully this will change things for future couples waiting for I.V.F that are more mature if they have Hep C. I have to say my Dr. is an amazing person that has touched me deeply with her kindness and concern not just for my liver, but for my want to have a child.  I just wanted to share this amazing news and how some Doctors are just totally amazing.

Hugs,

L

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
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