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Hep C Discussion Forum -> On Treatment -> 3.5 weeks since EOT, still blowing my top!
Post Info TOPIC: 3.5 weeks since EOT, still blowing my top!
Thom


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RE: 3.5 weeks since EOT, still blowing my top!
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Matt Chris wrote:

Hey Thom

Congrats on fully completing your treatment, from its upward and onward to UND & SVR

We are cheering you on during these very important next 4 weeks.

matt

 Thanks Matt



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62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
Greg D


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Well CC I have good news. From my experience so far, 7 months EOT and one month SVR, you are probably doing just about as good as I was. Another piece of good news is that you recognize the 'rage' and are aware of what's causing it. I still get bouts of it but I am getting better at overcoming it's effects and undoubtedly have less in my system as time passes.

Your husband, like my wife, deserves all the love I could ever offer her and much more than I will be able to possibly give her in a lifetime and our world is in a beautiful place right now but the rage, however infrequently, persists. Why??? Makes absolutely no sense...I guess it's a matter of us giving Riba more time to settle out.

Throughout my like I have NEVER had troubles sleeping. I could drink coffees in the evenings and still sleep well but starting about a month after tx I am having a heck of a time getting to sleep. Seriously. The 'baby steps' rule of thumb still applies even after you think it's ALL behind you no. From my experience, Riba is like a bad smell...it takes it's sweet time leaving.

Congratulations on making it through tx CC. Really a great accomplishment.

 



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60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Matt Chris


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Hey Thom

Congrats on fully completing your treatment, from its upward and onward to UND & SVR

We are cheering you on during these very important next 4 weeks.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Thom


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I had my final Interferon injection on October 30 and my last Ribivirin and Solvaldi yesterday. This being my first day without taking any of that stuff, I feel markedly improved, although I am left feeling rattled and definitely like I have been through an ordeal.

 



__________________

62 years old. Probably became HCV positive in the early 70's. genotype 1. Started treatment August 15 2014 w/ pegasys, ribavarin, sovaldi.

Finished treatment on November 7th. Had no detectable viral load at week 6. Waiting until the fat lady sings.
OldenSlow


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Hi Cathy,

Riba's such a weird drug. I hated it. Couldn't sleep (like you, took sleep aids which have their own issues), brain didn't hit on all cylinders (I was used to that), and mysterious joint and muscle problems, especially in the lower extemeties. Added to that, we've taken it in conjunction with other meds that are far from completely understood.

I started weaning from the sleep aid (Temazepam) almost immediately and in about a month I was gladly done with it. Didn't do an AD of any sort, but you might consider hanging onto the Wellbutrin a bit longer as the riba may take its own sweet time clearing your system. They have their half-life formulas for all of this, but we're all different and my own improvement was far from linear. I'd have to say it's all fairly well resolved at 6 months, though I've got some work to do at getting back in shape.

It will get better. Hang tough. wink

wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
2willy


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from my own experience it tool close to 6 months to get rib out of system I was lucky my spouse left in week 40 of treatment, I am also lucky because I belong to a 12 step program and really had to practice meditation more, would limit my time at tasks and when I felt myself getting tense would take a break go for a walk or play with the girls, they told me here that it took time and it did over a year post treatment and OK, a friend is 4 months post and gets riled when I smile when she gets upset especially when I tell her you can't have what I have because it is not your time yet lol



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
anurse1985


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Hello there!

23 days since last dose! And yes, feeling somewhat better (all in my mind?) I will admit that the 'heebie jeebies' i was feeling during treatment have subsided; but the restless legs that became unbearable during treatment (and only rarely before) are still present. And, although I think the 'rage' (and mine manifested in ridiculous explosions at the stupidest things) has become less I still find myself reacting unreasonably. I maintain appearances publicly and at work (have to in my world) but man, when I'm alone or with my husband (poor thing) I STILL fly off the handle!

Here's the questionable part; anxious to rid my body of all toxins, including the routine medications I was on prior and during treatment, I have begun to wean myself off Ambien and Wellbutrin.

I'm thinking that maybe this might have been a little premature.

Thoughts?

Also, just to confirm that this is how RR is: example-- going about  my day, working as usual and one of the keys will stick on my keyboard. A rush of anger surges from my toes up through my chest until it's like I am the Hulk (or some other monster) I bang twice/three times on the stupid keyboard and then exhale, and it's gone. Good thing I work from home because I'd be screwed otherwise (or in more control?).  However, I have had days where the anger, once present, persists for several hours then drifts away almost as fast as it came. This happened just this last weekend which was very dissapointing because i haven't had a dose of Riba for 20 days. Could I have permanently lost my mind?

I know some of you have talked me down off this ledge before; and I apolgize for not posting in a more productive and positive manner. I promise that if I ever am able to bring my body and mind to a peaceful existance again I will share those good feelings as well.

But, tell me again (or not) is this how it manifests with any one else?



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