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Hep C Discussion Forum -> On Treatment -> Excess Medication
Post Info TOPIC: Excess Medication
Cinnamon Girl


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Excess Medication
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Thanks Miss B, I`m glad you understand our position.  I know this is a very frustrating situation and all any of want to do is be able help people when the opportunity presents itself, but as the forum Admin team we have to act responsibly when it comes to sharing or transferring prescribed drugs, for the reasons I`ve mentioned. 

Obviously you`ve already spoken to Bob about this via PM but our position remains the same, that the only action we can recommend is that any spare meds are handed in to a physician or nurse. 

Thanks again, Miss B, Bob and everyone else for your helpful comments.  ~ Jill

Ps - This thread is now closed.



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Miss B


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Cinnamon Girl wrote:

I don`t want to be mean, Miss B, but we can`t condone these spare medications being used by someone they have not been prescribed for.  This is because of legal and medical reasons, I hope you understand. 

 I agree that you can't condone this. It would only be done with the approval the supervising physician.  In this situation it is no different than

...doctors will accept these spare meds to keep for emergency back up supplies...

It's a complicated situation, that's why I sent a message to Bob with the details, so the forum is not put in the situation of promoting the transfer of medications.  

-Cheers

 



-- Edited by Miss B on Saturday 6th of December 2014 02:55:44 PM



-- Edited by Miss B on Saturday 6th of December 2014 02:56:22 PM

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Miss B
56 years old. Genotype 1B, previous treatment with interferon 1994. Started Harvoni 12/8/14. After 2 weeks, VL dropped from over 4 million to 496. At 4 weeks, undetected, but at 8 weeks, <15 mL (detected), at 12 weeks/EOT UND!  
Cinnamon Girl


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I don`t want to be mean, Miss B, but we can`t condone these spare medications being used by someone they have not been prescribed for.  This is because of legal and medical reasons, I hope you understand. 

Thanks Bob for your kind offer and I agree that there really should be some sort of provision made for situations like this.  It quite often happens that for one reason or another people find themselves with spare medications that they don`t need or can`t use, and with the cost of these drugs being so high it seems like an insane waste of valuable resources.  We have heard that sometimes doctors will accept these spare meds to keep for emergency back up supplies so really the best thing would be to ask your doctor or nurse.

Thanks anyway, and we appreciate your consideration.  ~ Jill



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Miss B


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Posts: 123
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Hi Bob,

It is very thoughtful of you to try to find someone who can use these meds.  I do know of someone & will message you with the details.



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Miss B
56 years old. Genotype 1B, previous treatment with interferon 1994. Started Harvoni 12/8/14. After 2 weeks, VL dropped from over 4 million to 496. At 4 weeks, undetected, but at 8 weeks, <15 mL (detected), at 12 weeks/EOT UND!  
Ro


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Bob, 

I agree with Greg.  Check to see if our doctor will take them.. I know I have had problems when on Incevik with med deliveries and the doctor was able to me out until my meds arrived.

Ro



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Greg D


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Hi Bob and welcome to the forum!

At times my pharmacy would accidentally loose track of what they had on hand or who had ordered what for me and others (especially when pharmacy employees went on holidays) and I found myself a few times in the position of having to track down the meds I needed, so there was no gap in my med schedule, while they were in transit. Not a good feeling. I didn't want ANYTHING getting in the way of achieving svr. Luckily, on all occasions, I was able to track down what I needed and replace those once I received mine. My hep c nurse and hep doctor were the ones I turned to and they had fridges for extra medications just in case. Definitely do not throw them out but ask your doctor or nurse what to do with them.

Your question was a good one. Nice to meet you.



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Tig


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I agree with both of you. It's very unfortunate when something like this comes available but has to be discarded strictly because of legal repercussions And requirements. Such a waste of both money and the potential life saving benefits of the medication. Thank you again Bob for looking into it, your desire to help hasn't gone unnoticed. It would serve everyone well to develop a system where any new and unsealed medications could be returned (refunded) and put to use. We all know there is need for it. 

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Rubye


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It's insane really. But, I understand it in that you never know... Plus, there are so many people who love to tell on people that it's a risky business to offer them up. 

Still, there should be some sort of system in place when so many people can't get access to these drugs. 



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Bob54


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Thanks for the response. It's a shame as we're talking about $41,000 in med's. 



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60 yo; genotype 1b; VL: 11,000,000; No Fibrosis; Diagnosed Dec 2008; Treatment naive until Dec 8, 2014, started Harvoni/completed Tx Mar 1, 2015; awaiting test results.
Tig


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Hi Bob,

First, I'd like to welcome you to the forum! We're glad to have you here. Congratulations is also in order for both starting Tx and getting the difficult to obtain Harvoni. You've been fortunate to receive two very effective protocols. Keep us informed of your progress.

Unfortunately there is no system established to share or donate those medications that I'm aware of. We don't encourage sharing these very powerful medications anyway. You should contact your doctor and see if they keep an emergency supply of these drugs on hand. Often some will do that in the event there is a problem with deliveries to a patient. That also goes with some specialty pharmacies. I wish we could recommend and provide you with a means to do that but we must follow the letter of the law here on the forum. Good luck!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Bob54


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I recently recieved a prescription for Sovaldi and Ribapak. Since receiving them my treatment has been changed to the new drug Harvoni so the others are excess to me.  Any one need or know where I can donate these drugs? The Sovaldi is 400 MG, 28 Tabs. The Ribapak is 3, 28 day 2 a day dosepaks 600 MG each.  All are still in original, sealed packaging.  



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60 yo; genotype 1b; VL: 11,000,000; No Fibrosis; Diagnosed Dec 2008; Treatment naive until Dec 8, 2014, started Harvoni/completed Tx Mar 1, 2015; awaiting test results.
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