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Post Info TOPIC: update Mt Sinai
tomyboy


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RE: update Mt Sinai
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Tom's apt with his GI isn't until Feb 19th. I think it is far off. Tom thinks it is ok as he wants to give his body a break from all the medications.  Thanks for the positive thoughts, we hope he can get approved for the harvoni.  Happy new year to all. 



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Ro


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Laura,

Know my  prayers and l positive thoughts are with you and Tom!  

Praying 2015 brings us all comfort and healing.

Ro



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Michaele


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TomBoy  My prayers are with you .  Michaele



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MDodrow
Cinnamon Girl


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Hi Laura,

So sorry the Sovaldi/Riba treatment hasn`t worked for Tom, I really feel for you both with this news.  After all that you`ve been through it must feel like such a blow especially as it seemed to be going so well.  Try to keep your spirits up as best you can and best of luck with Tom`s CT scans.  Thank goodness anyway that the cancer hasn`t come back, that is certainly something very positive to hold onto.

Let`s hope that Tom will get a speedy approval for Harvoni treatment and that 2015 will be a much better year for you both.

All my best wishes to you and good luck!  smile

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi Laura,

Sorry to hear Tom's results. Sovaldi/Riba is not that effective for Geno 1's, so hopefully he can get access to Harvoni.

Good luck with the CT. You deserve some good news. 2015 will be Tom's year!  Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
tomyboy


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Hi all,

Hope this message finds everyone well , in good spirit, and completing their own treatment with success.  I am very sad to report that we just received Tom's latest blood work results from Mt Sinai  and the treatment didn't work.  His hep C has returned.  Although his cancer has not returned this is not anything either one of us was expecting.  Tom is beside himself and depressed again.  I told him hopefully they will have him do the newest solvadi treatment which came out in October.   He was doing the solvadi and riba (six pills) and felt terrific.  It was his five week after treatment check up which reports it came back.  He is a geno type 1 which we know is hard to beat, but we really felt this time he won the battle.  He will make an appointment with his GI here and pray he gets approved again for treatment.  I can only pray and be grateful that his cancer has not returned.  Two more CT's and then we just go every six months for an MRI on his liver.  Hopefully 2015 will be the year.  A little down, but just thought I would let you know.  He was second guessing that maybe because he was on chemo and hep c treatment, that impacted it, but deep down inside, I know that it isn't true.  I'll keep you posted and wishing all of you success in your own battles. 

Laura



__________________

Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

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