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Hep C Discussion Forum -> General Discussion -> The ball is in motion ... #$%$% finaly
Post Info TOPIC: The ball is in motion ... #$%$% finaly
shadow10cats


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RE: The ball is in motion ... #$%$% finaly
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I have to respond to just a couple things:

1"i usualy only eat a can of chilli and a tv dinner a day" - seriously?  Unless they are Anne's Organic have you read the labels? Your liver is the cleansing organ & you need to be trying to keep as much stress off it as possible. That means eating the best quality food you can with the least amt of toxins, and other crap.  Don't come back with how organic is too expensive. Because I'll come back with: Do you smoke? how much is that pack of cigs or Do you own a cell phone- how much is that costing?  

2  "God has control ... once you know that nothing else matters " - NO YOU have control.  I hate when people say that. I find it an excuse to sit back and do nothing.  (not that YOU are - I don't know what you do; I'm just saying in general).  If everything was in "God's" hands he wouldn't have given us will or a brain. You have to take initiative to take care of your body, I can just see "God" sitting up there yelling us "come on people! get off your butts my hands are only so big!"

:)



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Diagnosed 10/04 / VL 12.7 M / Genotype 1b - Grade 2, Stage 1 / 2007 -Pegylated Interferon & Ribavirin - Stopped Due to Sides / 2011 - Telaprevir, Interferon & Ribavirin - Stopped Due to Sides / APR 2015 - COMPLETED HARVONI So Far Undetectable :) 
Josh Haynie


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thanks U guys for your insight as always....



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genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon
Rubye


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Hi Josh,

I was able to get Sovaldi and Olysio with Medicare and Medicaid in Oregon. Oregon is one of the hardest states to get treatment in if you have Medicaid. However, the hardest part for me was finding a doctor to write the prescription. It took me 9 months and three doctors until finally a nurse practitioner gave me a script. And I have had Hep C for over 40 years and have cirrhosis. It's good you're not in the Willamette Valley because the doctors here all made some sort of pact to not allow treatment for anyone on Medicaid without cirrhosis. 

You should have no problem with getting Harvoni because you're right about if you're denied twice then Support Path will pay for you. It's sad that it has to be that way but whenever someone talks bad about Gilead and their pricing they must not be aware of how many people Support Path has helped. Who I find most offensive are the doctors who are keeping people from treatment. Not Gilead.

Anyway, I think it will happen for you and I'm glad you have the prescription. It is indeed very much a game but it sounds like you've figured out how it works. I wish you the very best in your treatment. Take care.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Beacon


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Josh,

Hang in there buddy and you'll be ok. You are still young and "relatively new" to this

hcv game I mean lots of us are 40 years or more in. At least you found out about having

hcv way before cirrhosis or even fibrosis has had a chance to set in. I didn't find out

until about 40 years in and then I found out I had cirrhosis almost in the same

breath. You will be able to get cured way before you get too much liver damage

so you can be thankful about that right. Sounds like you have had a rough time

for a minute, but the sun is about to break through those dark clouds and you

will be free of the dragon forever. Hang in there my friend.



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GT 1a, was tx naïve, cirrhotic(Fibrosure), 64 y.o. Started Harvoni 12/12/14 for 12 wks. EOT weeks 4, 13, and 24 HCV not detected! HVC not detected EOT plus one year.

A smooth sea doesn't make for a skillful sailor.

 
Tig


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Hey Josh,

Good to hear things are beginning to move forward for you! Seems everything takes a little more effort these days but when you finally get the train rolling down the track, very little gets in its way!

I used Bio Plus for my entire 28 weeks of treatment. They were fantastic to deal with. They handled everything and we're always right on time. They also provided excellent individual support anytime you have a question or concern. They can be trusted to do the right thing and were a great advocate between my insurance and doctor.

Hang in there and stay away from the booze, it's tough on an already tired liver. We've discussed it before so no sense doing it again, unless you need a reminder...

Stay strong, stay positive and don't quit...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Josh Haynie


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 I got a call on my phone from a specialty pharmacy by the name of BioPlus out of Florida ... they are the ones who will push my Oregon medicaid for Harvoni ....

i give credit to my gastro who never talks to me but who made good on her word to get it up and running after the beginning of January..... 

im 90 percent sure they will deny me 1nce or twice ..... if they do then will go to Gillead for the support path 5 dollar coupon ....  

this is how the game is played ....... im sure i will get it .....  i almost had a beer on the weekend ..... before i knew that finaly things are in motion....

my uncle wants to play pool and we all know where pool tables are ..... ya the bar ..... so Ill not drink for a while longer my plan is not to till i am SVR 12 in the least.......

 im working out and going to the gym again now after 8 months of not doing it..... saunas are good 2 ....... i weigh 123 lbs so im on the Eat high calorie out food tv dinner diet ... along with my 100 percent juice and vitamins .... my VL has droped on its own without TX since i havent been drinking so that alone indicates my body has the power to fight on its own aallbeit at a very slow pace... so the addition of Harvoni... hopefully will be the Knock out blow..... ive never had TX ..but am eager to finaly get this monkey off my back.... i gain weight a little easier if im working out so my calories go toward muscle repair and thus my metabolism holds the calories better..... that and i need to eat more ... i usualy only eat a can of chilli and a tv dinner a day ... so ya better eat more....and being in shape or at a healthy weight is always a plus ... hopefully Harvoni will be super dosed on my small frame ... if i take the same pill that you do and i weigh less then you then it would be more concentrated right ?  

 gastro called for the 8 week protocall so hopefully thatll be enough my VL is slightly un 6million 1a geno......dont think theyll give me ribavarin ... but id take it if they did .....but i hear just Harvoni.... i wish it were the 12 week protocoll but i know others on this forum are on the 8 week proto also ......  As far as the answer to your question that i saw before i posted this Matt Chris.. on relapse .... if i relapse or dont go undetected ... iLL just treat again later ...  i feel good everyday .... i physicly cant even tell i have hep c but i know its there in my mind anyway......

my lower back pain isnt as bad as it was another reason to hit the gym or go walking biking or running ... maeks muscles stronger makes pain go away without pills.....

 i will take pills if i think i really need them but its rare.... my back pain was a 7 or 8 and now its a 2-4 ... still got a bunch over 50 hydrocodone for anytime i feel the need  which pretty close to never ..... 

    im surrounded by people who have  cancer so my hep c is very non exsistent to me .... i will be paying nothing or $5 dollars if this goes though ... or theres a chance i wont get it but i think i will

 i can sleep 10 hours or i can sleep 1 hour and half like i did today..i like 5 or more ....... my advice to anyone who has sumthing they are battling is get in the best shape you can ... drink 100 percent juice if you can .. take vitamins milk thistle ...d3 ..folic acid plus a ton more that i dont want to list..... and do things that give you joy...STRESS alone can raise blood pressure ..cause anxiety or physicall pain...... im happy knowing that ive learned from the best and thats you guys ....

    and if i relapse you will be there for me as you know i will always be there for you .....  Just think to yourself you will win and if you are patient enough you will 1 way or another ....

thats why im ok with this  thing win or lose because ive made peace with both already ....  im going to continue to live Regardless for how long i dont know but ive already had a great 31 years ....

 i could die driving tommorow for all i know.....  i dont worry about it though..... i just go about helping others and entertaining myself .... DEATH is certain ... death smiles at all of us ... I smile back

 with no teeth in my upper Jaw :)  God has control ... once you know that nothing else matters .. dont let stress or anxiety weigh you down Gods brought us all this far ... will be fine :)

   we all help one another and i respect that alot even if im too stupid to listen I know you guys care .... and finding this forum and the people in it was not by chance i bet ...  

Anyway sorry for my padantic psyco babble but i get lost in thought sumtimes and i just you know confess what i think belive or feel .... 

  THANK YOU for Reading  and i will tell you if and when they deny or  approve ...  im always around even when you dont see me .. where the Hell is Isis cat or Huey...  

i miss people or wonder how thier doing when i dont see posts after awhile......  Faith and Works  gotta have both put the time in and believe and youll have it all .... Enjoy your time here ...

 since just last year ive had all my upper teeth ripd out ...a collapsed lung.... massive lowerback pain... my dads stage 4 cancer.... and though they all sucked im not too phased by any of it ...

 i dont deny i get depressed from time to time but its pretty fleeting as i tell myself gota keep going.... im thankfull for what ive had or got.....lol which is not much :) i value Friends ,Family and pets and the memories and pictures of the past more then anything elese that surrounds me.. and God is on top of that list too  :) i know where im going cause i know where ive been :)

off to listen to Bob Seager- your still the same on youtube 

  annnnnnnnnddddd now im done :)



-- Edited by Josh Haynie on Tuesday 13th of January 2015 05:29:37 AM



-- Edited by Josh Haynie on Tuesday 13th of January 2015 05:46:47 AM

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genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon
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