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Hep C Discussion Forum -> Living With Hep C -> SPAIN.PROTESTS.CORRUPTION
Post Info TOPIC: SPAIN.PROTESTS.CORRUPTION
Tig


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RE: SPAIN.PROTESTS.CORRUPTION
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Rebeca,

It's wonderful to see your optimism and positive attitude. That has a big impact on your success and helps in all aspects of your life, now and in the future. Keep it up and I hope you keep us informed of your progress! I like Matt's idea though. When you have achieved your goal of SVR, I hope you can return to Spain and help advocate for those less fortunate HCV sufferers. Every large or small thing we do matters. Good luck!

Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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rebeca


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Thank you all for understand me and for be there,

Yes ,I'm going to be cured, I have changed my signature, and I hope to change it again in three months.

 

Thank You friends



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52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 
RudiRoo


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Hi Rebeca,

Congratulations! Such a struggle, but you did it and you are going to be cured. 

We have lots of government corruption where I live also. It is disheartening to see people reduce themselves in this way when they could be making the world a better place.

Get better, and maybe you'll be able to pitch in and make the problems there better.

Take care,

~ Rudi

 



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
Matt Chris


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Hello Rebeca

I was happy to read your getting treatment with Harvoni, you will do well with the treatment as its has less side effects than any other protocol. 

Sorry to hear about Spain's corruption issues, sounds like more check and balances are needed in the government.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mallani


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Hi Rebeca,

Good to hear from you again. I'm sorry about the Harvoni problems in Spain. I'm happy you are finally on treatment, and look forward to good news.

Now, you have to change your signature line! Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


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Hello Rebeca, good to hear from you again!

I`m very pleased you`ve found a way to do your Harvoni treatment, even though you`ve had to travel over to England and pay privately to get it. 

I`ve read about the protests and marches that have been going on it Spain, which is very understandable when so many people with Hep C are frustrated at the delays and difficulties trying to get treatment with the new drugs, apart from the limited number who qualify for compassionate access. 

You`ve shown tremendous determination to get yourself treated and I know you`ve been waiting a long time for this, so I wish you all the best of luck!  You`re very lucky to have such supportive sisters who are giving you so much help, and I`m very pleased for you.

Hope you enjoy your time in London despite our dismal weather! 

Do keep us updated and thanks for sharing your good news!   



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
rebeca


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Hello friends,

Long time since I wrote in this forum. Last time, in September, my doctor told me they had got Simeprevir/ribavirina / interferon,to treat some people, but not for me, just to F3, F4.

During those  months Gilead and the Government have been in conversations, and the Health minister said that it would be Sovaldi if it was necessary ,(necessary?). She didn't want to tell at what  price they had got Sovaldi, but it seems at 25000 per 12 weeks treatment . She said they 'll give money for that. But it was a lie. People who was very sick denounced her lies. The acces was impossible. The doctors prescribed it but"it never arrived"., just some people got it via compassionate.

so, lot of people started doing "protest marches" and demonstrations. At Chistmas many people  locked  themselves in several hospitals in protest.At this time, the health minister gave up her position for corruption. She had stolen public money. New cases of corruption in Government appear every month. We aré angry.

In my case, as I 'm F2 ( last fibroscan December 2014: 8. VL: 1.500.000. Anemia. transm: elevated) I haven' t any possibility,but wait ( until F3?) or until simeprevir it would be possible.

in September, I started feeling depressed , I just could go to work and arrive home. I started thinking  that it would be better to get sick more, to get a treatment. One day a colleague at work asked me if I was OK, I said yes, and he said:" You look so sad" and I started crying. During September, October and December I have been really depressed . Then Harvoni appeared in Europe.

 Nowadays, You can't get it in Spain either prívate vía. I thought about buy Sovaldi by prívate vía ( 60.000 ) . Then my sister who lives in London told me that I could get Harvoni in London and that she and my another sister could lend me the money . So that I could give the money back next years.

I have accepted the offer.Now I ' m in London. The price of Harvoni in UK is £ 43.852 for 12 week course. ( prívate vía) public Health sistem had get it at. £ 38.979 for a 12 week course. 

I have got three weeks off work, I  have  had a consultation and I've got Harvoni. I am on my first week . I am feeling so good. The Black cloud over my head has gone.

OK, next time I write in this forum I ' ll do in the section "On treatment" 

thank you all for be there.

 



-- Edited by rebeca on Monday 16th of February 2015 02:30:53 PM

__________________

52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 
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