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Hep C Discussion Forum -> Post Treatment -> Not feeling good
Post Info TOPIC: Not feeling good
Tig


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RE: Not feeling good
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Hey Rufus,

Let us know what your GE doc has to say. I agree that there are bad days that come along, sometimes more often than we'd like. I'm wishing you more of those good days however and want you to know we'll be here whenever you need some helpful encouragement! Hang in there....



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Rufus1


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Thanks for your encouragement the last couple of days have been better I guess just have to take the good with bad for a while. I see My gastro Dr. this week and see what she says but I don't think they know as much as we do.  I wish us all SVR!      Thanks, A



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start treatment harvoni 12/8/2014 undetectable 01/07/2015  EOT undetectable  14 weeks svr  9 month eot Undetectable
basser


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it will get better mate.it takes time.saw that you didnt have to take ribivirin.thats a plus for you.wish you a speedy recovery and a great virus free life                                                                                                                                                              william



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
sunrise


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Hi Rufus1

I hope this note finds you feeling  better. Like Rubye, I was on Sovaldi Olysio for 12 weeks. For me I am having strange lingering side effects. Hope you get some relief . It has been difficult but hoping it gets better. My issues are still there, Tig mentioned ribivarin. I did not take that either, but still was affected by noint and muscle pain and inflamation, changes in my personality also. I've heard a year or so things will improve. Remember though, these are new drugs with unknowns. I certainly see it, but beating the virus is worth it.. Blessings Sunrise



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Rufus1


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Thanks for your replies I guess I am expecting to much I was undetected 4 weeks eot so my thinking by now I should be feeling better it does come and go probably just having a couple of bad days hope it wont last. I did not have ribavirin with my treatment. Thanks A



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start treatment harvoni 12/8/2014 undetectable 01/07/2015  EOT undetectable  14 weeks svr  9 month eot Undetectable
Rubye


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It took me 12-13 weeks after end of treatment before I felt like I did before treatment. I was on Sovaldi/Olysio though. Hang in there.



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Tig


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Hi Rufus,

Sorry these side effects are still hanging on. It shouldn't be much longer really, but as Jill mentioned, it does vary. I don't see where you mentioned if you had to take Ribavirin. Did you? If so that can take a full 6 months to clear. If you haven't mentioned these difficulties with your doctor you might bring that up before your next appointment. Don't forget to keep up your increased hydration routine until these issues pass And stay well rested. That can often reduce some of these issues. Good luck...



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cinnamon Girl


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Hi Rufus,

Sorry to hear you`re still having a struggle with low energy and brain fog, I`m sure it`s very frustrating for you.  It`s natural to expect to shake off the lingering side effects quite quickly but actually I would say it`s still early days for you yet at 7 weeks post treatment, so try to be patient and give it a bit more time. 

It does seem to vary quite a lot how quickly people recover from Harvoni treatment but it can be a slow process. 

Wishing you all the best, hope you start picking up soon!   I expect other people will have comments to add.

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Rufus1


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I am now eot 7 weeks and I'm looking for some energy, still a bit foggy and just not what I expected. How long does it take to get these meds to get out of your system. I was on 12 weeks harvoni  never been treated with f1-2 vl was 991,000. I just want to get back in order I have a lot to do. Thanks A



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start treatment harvoni 12/8/2014 undetectable 01/07/2015  EOT undetectable  14 weeks svr  9 month eot Undetectable
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