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Hep C Discussion Forum -> New Members Area -> Intro. Glad you are all here. Thank you for that.
Post Info TOPIC: Intro. Glad you are all here. Thank you for that.
Cinnamon Girl


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RE: Intro. Glad you are all here. Thank you for that.
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Hi CH, I`m glad you`re feeling so much better already, Harvoni is a very powerful combo. 

Great that you`re starting to work out, just go a bit easy and don`t overdo it while you`re body is getting used to the meds. 

Best of luck, I`ll be looking forward to your next update!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
coolheat


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Hi, ready to take day 5 pill.  Still feeling better than in years.  I thought in my excitement, that I was imagining that my vision was better.  It is, I can see color more vividly and can now read the bottom caption on cnn without my glasses.  I had to run around a lot yesterday.  Last night my left knee was aching some and my L hip. Could be vertebrae, could be side effect.  Start working out with my trainer today for an hr.. Kinda keep waiting for the other shoe to drop, and it will be uncomfortable and back to the aching and pain.  So happy for a reprieve of hell. thanks, coolheat



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
coolheat


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Happy 4 U, must be a freedom.  It has also been suggested to me that it could be "chronic fatigue syndrome" that I have been suffering with.  They put me on a narc for 1.5 yr., that may have been the big decline in my liver function. Thanks for sharing.



__________________

65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
zavr


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coolheat wrote:

 Felt actually better through the day, aches and pains abated.  Slept like a baby 9 hrs..  

 Congrats on starting treatment, Cooheat!! Isn't it incredible how quickly this medicine starts working? Almost miraculous! 

Looking forward to reading more about you, and about your progress (both ups and down - however it goes!) on the treatment!



__________________

Gen 1b, 33yo. Started 12wk Viekira Pak on 2/28/2015. 

Baseline: VL=517K, AST=34, ALT=56. 

Wk4: VL=<15, AST=16, ALT=14.

Wk8: VL=UND, AST=17, ALT=14.

Wk12: VL=UND, Fibroscan: 3.4kPa, F0.

--->Viekira Pak financial and nurse support<---
Cinnamon Girl


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Thanks for asking, CH, yes I feel much better than I did before my treatment, achieving SVR has made a huge difference. 

My energy levels have improved a lot and the joint and muscle aches and pains I was getting have virtually all gone, along with other symptoms.  I had been suffering with debilitating fatigue for many years beforehand though, without realising just how much the virus was effecting me as I had also been given the diagnosis of CFS, Chronic Fatigue Syndrome. 

It`s not quite the same for everyone, but many people notice an improvement in energy levels and a new lease on life post treatment. 

I feel very thankful to have been able to clear the virus, even though it wasn`t exactly easy on the old Peg/rib 24 week protocol!

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
coolheat


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Posts: 209
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Thanks, I see that you are still EOT + 3 yrs.. Question, how do you feel? Did you notice a difference, or much of a difference from before to now? Thanks, on the side CH



__________________

65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Cinnamon Girl


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Hi there Coolheat, welcome!

Thanks for introducing yourself here and I see you`ve found the `Harvoni treatment train` thread too.  It`s all the same forum, just different threads in different sections, and visible to us all.

I`m glad you`ve found us, you`ll find this is a very friendly group so please feel free to join in and ask any questions you may have. 

You`ll see we have a `search` function at the top of each page, very useful if you want to look at previous discussions on a particular topic, just type in a key word or two.  And you`ll find a list of the forum abbreviations at the top of this section, the New Members` Area.

Wishing  you all the best of luck! 

~ Jill

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
coolheat


Senior Member

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Posts: 209
Date:
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Thanks for that, I try to find that one exactly. Coolheat



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Tig


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Hello Coolheat,

I'm glad you're here too, welcome to the group! I saw your other post regarding Harvoni, so I assume that's the protocol you're following. With your low viral load and treatment naive, I feel you should do very well. Having had the virus for years doesn't impact the likelihood of SVR (cure). The result for people with cirrhosis are equally good as well. Harvoni is a very effective treatment and most here are going on to SVR. We've had a couple of our members relapse but it's uncommon. The good thing is new treatments are always in development and hopefully soon we'll see an end to this disease, for everyone.

You mentioned seeing our thread dedicated to Harvoni treatment, called the Harvoni Train. I invite you to introduce yourself there too. You'll get the opportunity to hear from many friends here going through the same treatment. You can learn a lot from them. Their advice can make a big difference in how you're feeling, as well as help you understand the things you may experience. Especially during the first few weeks. So drop in there and say hi.

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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coolheat


Senior Member

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Hi, like the idea of the train to health. Understand concept of the Dragon, it slept for years.  Would wake up now and then, breath of fire, and fall back to sleep. Serious decline in the last couple of years, maybe 3-4 years. Went from years of stage 2 to toward the end of stage 3.  It is refreshing to hear others talk about what no one else understands; because they don't have the disease.  First day yesterday.  A little loopy for an hour or two after ingestion.  Felt actually better through the day, aches and pains abated.  Slept like a baby 9 hrs..  Waiting to take second dose soon.  Have made all preps to change diet, which will not be too much change.  6 smaller type meals @day, complex carbs + protein with each meal.   I'll be standing by on the side.  Thanks again for being there.



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
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