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Hep C Discussion Forum -> On Treatment -> Gilead Harvoni Flounder
Post Info TOPIC: Gilead Harvoni Flounder
Brian1412


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RE: Gilead Harvoni Flounder
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You have to take charge and get your rep to contact medicare. Medicare cant allow you to be left out at this stage. Obama care says no but your rep who will fix this. Call them today

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dharmabum


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Write a short pointed email to your state attorney general; quickly.  If you google your state and attorney general you will find a dot gov email address.  Explain that you will be out of medication, end up sicker than prior to treatment, if you run out of medication.  The subject line should include "illegal denial of benefits"  sort of thing.

Include your insurance carrier, their phone number, and your policy number.  If feel threatened by Gilead's call, by all means tell the attorney general.  Good luck,

Joann

 

 

 



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16
Brian1412


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Write your congressman s office..they can and will fix it

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Gracie


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There is a guy on here with an extra bottle sitting around.... ;) 

I really hope they don't stop your treatment for money. Especially less than $2000 when they are getting almost $90,000 from your plans.

My co-pay is expected to be $3000 after my plan taps out and I switch to my husbands. The gilead lady said there is an excellent chance they would cover it. My pharmacist says for sure they will. Hope they don't do the same thing to me. While I could pay it, it would be difficult for sure.

it's so sketchy!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
bubble


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Hey Cool Heat, I am onboard with Hess. I went to the Gilead Support Path and got a $5 dollar coupon twice! Only to be shot down bymy insurance co. for Express Scripts for Vikera Pac. So go get them. Sounds like a familiar pattern With Gilead. Abbvie/Vikera-pac has been very smooth. Total cost of Vikera for 3 months was 15 dollars. Ribavirin was 36 dollars for 3 months.  All with finacial assitance program. Your not alone on this subject.



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60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Brian1412


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Hi cool heat... can you link or repost the post again ? I saw part of it but cant find it. Hang in there.. will PM faith..

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coolheat


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Hi Tess, and thanks to all who have responded.  Harovni or Gilead programs of help, I was told would not assist me.  Non of what I am saying has anything to do with whether I feel its worth it.  I do feel blessed that almost all  price has been granted through Medicare.  Some people are caught making too much to qualify for any help, and not enough to be at all times prepared for such situation.  I have trust it will work out.  He_L, you're all proof of that.  I have 11 pills left. Any and all information regarding this will be pursued.  I truly thank you and feel like y'all care. Can't buy that! Hugs, Marsha



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Tig


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Marsha,

As we discussed, here is the list we have on the forum. Don't forget your state attorney general and insurance commissioner's office as well. Good luck!

http://hepcfriends.activeboard.com/t56904226/payment-assistance-programs/



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Tess


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CH - have you tried Gilead Support Path? If your Medicare is Part D, they might not help, but otherwise they'll provide coverage. I have Blue Cross and got the coupon.  Even if you have Medicare Part D it's worth a call to Support Path, 1-855-769-7284 - they might have suggestions.  I hope you find some help!  Keep checking in.

https://www.harvoni.com/support-and-savings/co-pay-coupon-registration?evo_source=MYSUPPORTPATH&_ga=1.212510679.254394746.1434596223

"We believe that cost should not be a barrier to receiving treatment. Thats why the makers of HARVONI offer a co-pay coupon. If you are eligible, you may pay no more than $5 per co-pay.

Please note the following:

  • You are not eligible if you are enrolled in a government healthcare prescription drug program such as Medicare Part D or Medicaid. This includes when you are in the Medicare Part D coverage gap known as the "donut hole."
  • The HARVONI Co-pay Coupon Program will cover the out-of-pocket costs of your HARVONI prescriptions up to a maximum of 25% of the catalog price of a 12-week regimen of HARVONI. See Terms and Conditions below."


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HCV Gen 1a diagnosed 2001; Labs 11/13/14: VL 1.2 million IU/mL, ast 88, alt 111. Harvoni TX 12 weeks.  EOT - 2/18/15, VL UND & normal ast/alt.

4 wks after EOT, VL = UND; normal AST/ALT at 4, 8 and 14 weeks after EOT.  15 weeks after EOT = Undetectable!
Matt Chris


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Hello Coolheat

I am so sorry to read of your predicament. Their is a number of well funded foundations for helping with treatments but the question will be if they can respond fast enough to help.

The Pan foundation and many others

Here is a link to more info. http://hepcfriends.activeboard.com/t60274362/national-charity-offers-financial-assistance/    

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Rickk


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I'm sure some knowledgeable people will be along soon. We all care about your dilemma 



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coolheat


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Hi all, somewhat stressed here.  Has anyone had this happen to them in dealing with Gilead?  Gilead called me this afternoon and wanted to know if they could get my second months worth in order for shipping; I said a big "YES".  I am currently on my 3rd day of my 3rd wk. of treatment.  My original co-pay was almost 4,000.00 with Medicare and top insurance of Blue Shield.  At that time I ask the man if he knew what if any co-pay there might be in the future.  He said he did not know, but it would most likely be low.  So today, she said how would you like to pay for this and I said How Much Will It Be?  She said $1,675.00. I told her right now I am currently tapped out and what about my ins. and Medicare.  She just reiterated $1,675.00.  I ask if she could hook me up with the credit or some dept. that might have financial help.  Then she said that because I have medicare and Blue Shield I do not qualify for any assistance from Gilead.  Then she said; it will be too bad if I have to discontinue my treatment at this point.    ANY IDEAS?  CH 



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
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