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Gypsy Soul


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Thanks everybody for the timing advice!! I think I will definitely space my meds further apart.

First dose 8am  second 5pm. Yesterday felt pretty good just a little woozy like I had taken a valium or something..

I can live with that :) 



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 57 yo..Tx naive...Gen 3.. SOT 24 weeks Riba/Sovaldi...  June 20, 2015..VL 1,200,410. AST 73, ATL 85,

Fibrospect F-0, F-1

 

Kathy

 

'What if I fall?" "Oh but darling...what if you fly??"
wmlj1960


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Gypsy Soul wrote:
But....she said that I can take my pills at Breakfast and the others at lunch instead of dinner...as long as they are taken at least

4 hours apart and with food. Sounds good to me...anyone else do this???

Hi Kathy. I agree with everyone else. I took my Riba @ 8am with Sovaldi then another Riba @ 8pm.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Gracie


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I hear you Philbert, my doctor told me several times "your not cirrotic, you can wait!" And my enzymes were only slightly elevated. Then last month I had a fibroscan and wham! f4 and prescribed 24 weeks of harvoni!  It is still hard for me to believe, however, there are lots who improve after successful treatment and we will too! She said she would expect I would go back to F3 minimum after successful treatment, and maybe even more than that. And treatments have never been better so things are more positive for us f4s then they have ever been!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
philbert


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Hi Robert, I see you're stage 4 as I recently found I was. Fibroshure and untrasound type thing both confirmed as recent as 8 months ago I was stage F1. Only after a recent laproscopic biopsy did I find I was stage F4.. Lawd Jeezus what news! Anyhoo I'm now on 24 weeks Viekera/ riba... What tx are you presently on. 



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beingsassy


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Hey Kathy,

i also did tx with sovaldi and ribavirin and was told to take the riba 10-12 hours apart. I wake up early so I took you first one about 4 am and the second at 3pm. It didn't add to the insomnia I already had if I took the last one mid afternoon. Hope it all goes well for you. Since this combo can cause rashes I bathed in cold water and only used baby wash and baby shampoo. I never did get a rash.

gigi



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genotype 2 completed sovaldi and ribavirin on 6/4/14. SVR on 12/3/14
Scruffy


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hi ya Kathy

I was on an older tx that included riba. I took the riba three times a day along with other tx meds. I took the riba at 7-12 and about 6.  I didn't take the riba too late, the final med while I took it was at 11. If I took the riba to late it would interfere with my sleep.

Hang in there!!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Tig


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Kathy,

Just know that we have many members that said they have never slept better in their life, than when they were on Harvoni tx. Some mentioned having bizarre dreams too and another was told by her husband that she started singing in her sleep! Don't assume you will have problems, hopefully you're going to sail through all of it. The side effects are few, the success rates high, just stay positive and you're going to be done before you know it!

I also agree that you should take your Ribavirin at 12 hour intervals. That keeps the blood level constant.



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robertsamx


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Its important to keep the  blood saturation levels of the drugs constant.  Its my oppinion that they should be taken 12 hrs apart        I did mine    5am     5pm      RC



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 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Brian1412


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This will be your time to toss the dragon.

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Gypsy Soul


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Hey everybody!! Took my first dose at 8:00 am...feeling good..maybe just a little woozy and I noticed my pupils are super small.

I was required to go to a class by my Gastro Dr.... The Drug rep gave the class going over possible side effects.

She said when it came to me that one of the side effects is insomnia. Great...I have  hard time getting to sleep anyways.

But....she said that I can take my pills at Breakfast and the others at lunch instead of dinner...as long as they are taken at least

4 hours apart and with food. Sounds good to me...anyone else do this???



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 57 yo..Tx naive...Gen 3.. SOT 24 weeks Riba/Sovaldi...  June 20, 2015..VL 1,200,410. AST 73, ATL 85,

Fibrospect F-0, F-1

 

Kathy

 

'What if I fall?" "Oh but darling...what if you fly??"
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