Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> 2X Non-Responder, Gen 1A, Getting on the Harvoni Train next week
Post Info TOPIC: 2X Non-Responder, Gen 1A, Getting on the Harvoni Train next week
wendyo


Guru

Status: Offline
Posts: 1031
Date:
RE: 2X Non-Responder, Gen 1A, Getting on the Harvoni Train next week
Permalink  
 

congrats my fellow dragon slayer!



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Wow third time really was a charm!!!

congratulations. So happy for you. 

Syd

🎉🎉😃☀ï¸ðŸ°ðŸŽ§âœ…



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Way to go 3 timer! Congratulations on achieving SVR, FINALLY!!! biggrin Gotta love that Harvoni for putting you in a position to live "the longest most productive life possible". Job well done!

Have you had your "March ultrasound" yet? A good report there will be icing on your big SVR cake. wink



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hey, what a fantastic result, congratulations on SVR12!!!  I would say that`s very good news, excellent in fact!!!  

You can finally move forward with your life knowing that you`ve beaten the Dragon once and for all, Hep C is history!!!  You`ve fought a long and hard battle, your success is very well deserved!!

You must have found Harvoni so much easier than your 2 previous treatments, and the 3rd time really was a charm.. I`m very pleased for you!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

The best news ever!!  It dosent get any better than that!  What a long road you have been on, and you made it to the end. Let the wake behind you settle out and enjoy the smooth ride ahead. you deserve it. Congratulations!   RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

You can say it now ok?

 

CURED



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Congratulations! That's exactly what you want to see! You're official SVR12, WOOT!!! After two times non responding, I'm sure you were nervous. Well, be nervous no longer my friend. You did it! Enjoy that new Hep C free life buddy....

 



Attachments
__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

So....I just got my 90 Day Labs post treatment with Harvoni. I was on Harvoni for 24 weeks, due to the fact I was a 2X non-responder. I see my Dr. on Friday, April 1st. Here is what it says:

HCV RT-PCR, Quant (Graph)

Hepatitis C Quantitation
HCV Not Detected

That's good news, right?

 



__________________
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks JoAnne and Merry Christmas to you and your family. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Congratulations to Wendy and 3rdtimecharmer on good labs!
So excited for you both. I beat Hep C 2nd treatment with triple therapy for 48 long weeks!
Such a relieve to reach SVR. You are on your way!!!


__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

You're right, it was 24. Did ribavirin and interferon when I was guest diagnosed, then triple therapy about 10 years later, peg interferon, ribavirin and incivek.

__________________
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

3rdTimesACharm wrote:

 After 16 weeks of Harvoni, I am officially undetectable!

In the meantime I'm just going to continue status quo and wait for my labs in February and my ultrasound in March.

 Hi Jonathan.
 What date did your treatment start. I was thinking you were on 24 weeks of Harvoni. Is that "16 weeks" a typo or am I missing something?

Also what other treatment ("3rd times a charm") were you on other than failing telaprivir/peg interferon/ribavirin after 12 weeks in 2013?

Either way congratulations on finishing your treatment. I'll be looking forward to you reporting SVR @ EOT + 3 months. Is the ultrasound in March a routine HCC precautionary exam?

 



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

I am right there with ya Jonathan....2 time non responder and just finished Harvoni. AND I have dragon tattoos down each arm. They were for born in the year of the dragon but now can have a double meaning. Merry Christmas to you and yours!



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

Thanks, Tig! It had to work out I had already gotten the dragons!!

__________________
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Jonathan,

Thanks for the upbeat update! Congratulations on successfully completing treatment. The three month wait will go by fast enough, as long as you're not counting off each day, lol! If your current lab values are good, then the drugs have done their job. Time to rest, recover and treat your body right. The drugs will clear fast and you'll start to experience improvements in many areas, but it takes time. Keep in touch and let us know when you get that good news! Good luck....

Merry Christmas and a Happy Hep Free New Year to you too!!!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

What a Christmas present! After 16 weeks of Harvoni, I am officially undetectable! Now I enter the 90 day wait and see phase before I can utter the "c" word. All of my labs are excellent, my liver is functioning normally. While I have stage 4 fibrosis, it is "Compensated". Basically that means the factory looks like **** on the outside but everything is functioning normally on the inside. In the meantime I'm just going to continue status quo and wait for my labs in February and my ultrasound in March. Lastly, I realize that I am very fortunate in that I had excellent insurance support both in this forum and more importantly from my loving wife. I send prayers and wishes to everyone in this forum who have struggled through the years to beat this insidious disease. We share something that is unique to us, and I say again that it's wonderful to have a place like this where you can communicate with people who truly understand and never judge. I wish everyone a very Merry Christmas and the happiest of New Year's and the longest most productive lives possible.

__________________
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

I had a feeling we must have spoken before, and I do remember reading your post in the New Members Area saying that you were back.  And I`m glad you are!

I do like your girlfriend`s user name, we`re all fans of SVR here!  Hope she`s doing well. 

All the best to you! smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

Thanks, Cinn. We've spoken here many times before, I had another handle when I was on my second round of treatment. Love the forum, and my girlfriend also signed up here too, her handle is SVR FAN!

Be so happy to put this behind me!



__________________
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi 3rdTime, yes Matt is right about your VL.  The other number, `log10 6.455`, is just another way of expressing it and means the same. 

Congrats on starting your Harvoni treatment, this one should do it for you! 

Best of luck!  smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hello 3rdTime

Welcome to the forum you have found a good place with many who care. The first number the quantitation number (2,853,310) is your viral count not quite 3 million. On the low side of average amount per HCV patient.

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

Ok, so I am looking at my labs from my most recent bloodworm, trying to figure out my "baseline" VL. I see two entries, one that says: Hepatitis C Quantitation 2853310 and the other says: HCV log10 6.455. I am presuming the latter is my VL. Anyone wanna jump in with an explanation here?

By the way, started Harvoni yesterday. Looking forward to "winning"!

__________________
Rickk


Member

Status: Offline
Posts: 43
Date:
Permalink  
 

I used a daily pill dispenser to insure I took the pill. I took my dose at 8am instead of bedtime. If you forget a dose at night it might be 8 hr later when you realize it. I also walked an hr a day on the treadmill to get the blood flowing. First week or two I found myself getting tired around 4pm. Later Rick



-- Edited by Rickk on Saturday 27th of June 2015 08:08:00 PM



-- Edited by Rickk on Saturday 27th of June 2015 08:09:07 PM

__________________
Ro


Senior Member

Status: Offline
Posts: 274
Date:
Permalink  
 

I too have been in your shoes, having failed twice (and was told the same, that  incevik triple was supposed to be a sure thing).  My viral load was over 35 million and I had developed chirrosis. After the difficult times I had on my previous treatments I was praying that the 3rd time was the charm..and so far it has been! I completed 24 weeks of harvoni on April 23.  I have remained undetected  since December 5!  My labs are nearly all normal now...my esophageal varicies are improving (stage 1 at this point).  I am told my liver can now,begin to recuperate...my energy level is amazing...I no longer need to nap...yes, I do have my aches and pains, but at this age I think they are part of my "maturity"  LOL...

My side effects on Harvoni were minimal and not incapacitating, and worth everything to have achieved SVR.

I wish you all the best in achieving your SVR..This train has been an amazing ride and my fellow passengers have been a great support system.biggrin

Ro



__________________
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

Hi Newbie,

I am in the same boat. Failed Rebetron, failed incevik crap, and am starting harvoni in a week or so. Already have it here, just going on a little vacation first for a week. its sitting in my cupboard and I check on it every day... Lol. 

There are lots on here who failed multiple treatments and went on to SVR. We are so lucky to be able to get this very successful treatment with over 90% cure rates. You'll rock it, I'm sure. Welcome to the train!!!!

 



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Rickk


Member

Status: Offline
Posts: 43
Date:
Permalink  
 

I failed 2x before I started Harvoni. At 4 weeks I was still detectable (52) I was bummed & stressed. I was sure it was going to fail like the past 2 treatments. My 12 week labs showed Und. Im hoping my next labs will be the same. I was glad to vent here. I tried real hard to be positive. It helps. You should be fine. Later Rick



__________________
3rdTimesACharm


Member

Status: Offline
Posts: 11
Date:
Permalink  
 

Ok people. We're gonna see if the 3rd time is really a charm. I start Harvoni next week, and I'm both excited and skeptical. I was given really great odds of a cure on round 2, which was triple therapy, inteferon, incivek and ribiviran. Looking for other two timers who are SVR on Harvoni their third time around.



__________________
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> 2X Non-Responder, Gen 1A, Getting on the Harvoni Train next week
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.