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Post Info TOPIC: New meds adventure
JakeAms


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RE: New meds adventure
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Thank you, Jill ; j



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JB
Cinnamon Girl


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Have a wonderful holiday then, Jake, do keep in touch and let us know how your treatment goes.  

All the best of luck!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
basser


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if you feel up to it mate have your holiday.at least you will get 6 weeks of tx under your belt.then see how you feel when you get home.day at a time before you know it tx will be done and dusted. and you can always use the forum to ask any thing.have a great holiday.bst of health to you                                                                                                                  william



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
Groupergetter


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Hi Jake, and welcome.  You're somewhat in a Catch 22 situation.  Obviously you want to get started on your tx asap, but don't want it to impact your vacation.  If you think you can tolerate the meds and still somewhat enjoy the vacation I'd agree with your doc and get started. 

If you aren't overly symptomatic (muscle, fatigue, joint, neuropathy or other) problems, I may agree with Jill and delay treatment.  Whatever you decide, good luck in your tx.  The 6 week vacation must be nice. :)  Don't recall ever having one of these in my 25 years of work.  If you decided to wait on the tx, maybe you could reduce the vacation time which would allow you to get started on treatment that much sooner?     Be well.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
JakeAms


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Hi Tig, thank you for the tips and welcoming me to the group.  Cheers, J



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JB
JakeAms


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Thank you!  I will start adap and still take vacation,  as my md said if I can tolerate peginterferon for 11 months this will be a piece of cake.  Cheers, Jake



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JB
JakeAms


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Thanks Willian for your response! It is very encouraging to me and congratulations on beating HCV.  my doctor advised to begin right away and still go on holiday.   Friday I can pick up the meds and begin.  Heres to feeling better and kicking hcv ass.  Cheers, Jake



-- Edited by JakeAms on Wednesday 5th of August 2015 08:56:26 AM

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JB
Cinnamon Girl


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Hi Jake, welcome!

Great news that you have been approved for this new DAA combo, and you`ll definitely find it a lot easier than your previous attempts with Peg/riba I`m sure. 

I`m glad to see that William (`basser`) has replied, as he and another of our UK members have both successfully completed this same treatment in recent months.

I can understand how ready you are to start treatment but I think if I was in your position I would want to wait until after your vacation, especially as you`ll be visiting family and friends.  There could possibly be some side effects with these drugs, especially from the riba which you are already acquainted with, for example irritation and anxiety.  It`s impossible to say in advance how it will be for you though and hopefully you`ll have a smooth easy journey to SVR with minimum side effects. 

Best of luck with whatever you decide, do keep in touch!  smile

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
basser


Senior Member

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Posts: 129
Date:
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hi jake.welcome to the forum.i was on the daclatasvir / sofobosavir and ribavirin.like you was on inteferon/riba twice.and was taken off twice it turned out i was interferon intolerant.went on the interferon free meds last september.was virus undetectable at 4th 8th and eot.was on it for 12wks.was virus undectected at 3months eot.am now classed as cured.again same as you im f4 cirrohtic.might still have to have a transplant.but being free from that vile hep c gives me great hope for the future.i just take it a day at a time.without a doubt i feel 100% better than this time last yr.i will stick my neck out to say i would be very surprised if you didnt clear virus.this forum has helped me greatly dont be worrird about asking for advice people are only to happy to help.god bless mate you will be ok best of health to you                                                                                                                                                                                                                                                    william



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
Tig


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Hi Jake,

Welcome to the forum, I'm glad you found us. We've got a good group and you'll be welcomed into the fold by many. Lots of good info on these pages. So ask any questions you might have.

You're on an excellent protocol, but we don't have too many people currently on it that I'm aware of. During the trials, we did and have quite a bit of first hand discussion on it. I want to direct you to our search function at the top. If you enter the single word "Daclatasvir" w/o quotes, you'll see several links to our discussions. The following link discusses side effects with a member Charlie, that mentions some of her journey. Check those posts out, I think you can learn some info from those discussions.

http://hepcfriends.activeboard.com/t57673346/solvadi-and-daclatasvir-side-effects/

As far as whether to start treatment pre vacation, that's difficult for me to say. These new treatments are nothing like the old days. You may experience some mild to moderate side effects, but you may find them easy enough to tolerate on vacation. Depending on your plans and if your doctor thinks you're okay to wait, that too might make it an easy decision. I'm sure someone else will give you their thoughts on it as well. So let's see what the consensus is. 

I'm glad you're here Jake and look forward to following your progress! Good luck buddy...



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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JakeAms


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Hello forum members.  I am grateful to be accepted in this community and would like to introduce myself.  I am Jake, 57 years old US expat (former-I never returned) living in Amsterdam, Netherlands.       I have HCV genotype2, HIV+ and stage 4a cirrhosis.  In the 1980's I experimented with intravenous drugs and was sexually promiscuous, so the cause of my infection is known to me. I was treated for 11 months in 2006 with Peg-interferon en Ribavarin, and once again for 7 months  in 2012,  both treatments were nonresponsive and stopped early.  Anybody who has taken this combination knows that it takes a massive amount of will power to endure.  But, when you focus on a positive outcome it is amazing what you are able to sustain.  I found out last November that my liver scarring had progressed into cirrhosis.   Since then I have been anxiously awaiting approval for US approved drugs to become available in the Netherlands.  Yesterday my doctor informed me that I was approved to start treatment with Sofosbuvir, Dactlativir and Ribavarin for 16 weeks.   I am looking forward to starting treatment and beat this once and for all.   I am not too concerned with the side effects since they are very mild in comparison to the interferon treatments, according to my doctor, and what I have read.  I would be curious  to hear from those that have done this treatment about their experiences with side effects.   My main concern is that I have a well deserved vacation planned for 6 weeks and if it would be wiser to start the treatment upon return.   On the one hand I want to start asap but I also do not want to be traveling and visiting family and friends and feel worse than I do now because of the meds.   Any tips, advice, insights or shared experiences would be greatly appreciated.

Many thanks,

Jake

 



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JB
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