Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> General Discussion -> Need your advice
Post Info TOPIC: Need your advice
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Need your advice
Permalink  
 

Thanks my friends ...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

My condolences to you and Anastasia as well.

I have been following this and the world needs more people like you.

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

MM,

So very sorry to hear. Our condolences to you and Anastasia, may you both find peace in knowing you did every thing possible to help Alex. Our prayers are with you both in this sorrowful time. Find strength in knowing too that Alex will always be with you both.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Cheddy


Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

My condolences.  Yes, you were a stellar friend and you were all valiant fighters for Alex life.  I'm sorry this hurts so very much.  I know you will continue to help each other as you have been a team in helping Alex.  My best wishes is this new recovery.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Hard to find the words MM. My condolences. Everyone should have a friend as dear as you. My best to you, Anastasia and all Alex's family and loved ones. He is at peace. 

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
robertsamx


Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

http://www.youtube.com/watch?v=ZUnDKD1NMH4&sns=em



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hi Tig,

She's crashed. Devastated. I did... I did nothing, it's all Anastasia. She's a real figther in this battle. I was able provide the support and some unsuccessful researches to find the way how to do some legal pressure on doctors.
TIPS finally killed Alex, we know it now. The doctor convinced Anastasia to install it but just lied about probability of side effects and consequencies.
She thinks that it was her final decision, agreement to install the TIPS which killed her husband.
Don't worry about me, I'm OK, just my heart is crying.

Thanks for your support.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hey MM,

I'm so sorry to hear this. How is Anastasia holding up? And you? You worked very hard to see that Alex received the best care possible and never took no for an answer. He was in such a difficult situation following the TIPS procedure and never seemed to get past those set backs. You have been the best friend he and Anastasia could have asked for and I'm sure this is very hard to accept right now. You and Anastasia have my deepest condolences. Take care my friend and please keep in touch.



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

RIP, Alex...

Thanks for all yours prayers, my friends.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Hi MM, 

so sad to hear your latest news.

At least you know that you have been the best friend and support to them both throughout this.  You couldnt do any more and what you have done has made a huge difference to both of them. I hope Anastasia finds the  strength to cope with the immediate future.

Syd

 

 



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi MM,

Sorry to hear about this. Alex fought hard and you all gave it every effort, following every avenue you could possibly travel. 

Please know that we are all keeping you in our thoughts and prayers. Anastasia will continue to need your strength and support through the rest of Alex's journey. I hope you know we're here for you and if we can do anything, please let us know. 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

RAGDOLL wrote:

MM, so sorry to hear about your friends long battle.  I do know what Anastasia is going thru as I lost my first husband to Liver Failure.  He was 41 and I was 33 at the time.  He had HEP A.B.C,D, and E and no oppurtunity for a liver transplant.   But the battle was the same. At some point you have to let go and let God take him home.  I pray God gives you and Anastasia the peace and strength you need at this time.  Blessings.  CC

 

 Wow, ragdoll, that is unimaginable. How on earth did you both cope with all that? I was tested recently for other Hep's as I had a gallstone passing that played havoc. But I was fine. That is a lot of Hep to have gotten, did one make it more easier to catch the others?

Cyber hug! x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
RAGDOLL


Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

MM, so sorry to hear about your friends long battle.  I do know what Anastasia is going thru as I lost my first husband to Liver Failure.  He was 41 and I was 33 at the time.  He had HEP A.B.C,D, and E and no oppurtunity for a liver transplant.   But the battle was the same. At some point you have to let go and let God take him home.  I pray God gives you and Anastasia the peace and strength you need at this time.  Blessings.  CC

 



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

This is indeed sad, I am sorry to hear your friend is losing the war.

I guess the only thing you can do is to continue to be the good friend you have, and just help with any wishes he has left.

I hope you are bearing up ok...



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hello MM,

So very sorry to hear this most unfortunate news.

Your friend has put up a gallant fight and is so fortunate to have such steadfast and supporting friends as you and Anastasia.

It sounds as though everything humanly possible has been done on Alex's behalf.

Our thoughts and prayers are with you all, may Anastasia find strength in knowing that Alex will always be with her.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Only sad news. Alex's new liver doesn't work at all, he's connected to 4 vital systems but infection kills him... His body starts covering with open wounds - PLT <10 . Doctors ask Anastasia to sign reanimation refusal. This young woman is giving the way to despair.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks, friends!

Alex is alive but they didn't find any source of potential dangerous infection in suspected place... Another mystery. Anastasia is still waiting for updates from doctors.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

praying for Gods will to be with you all MM.



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Forgive me, but this is all I could think to say;

"Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God.

And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus."

The proper rendering of the term "careful" here is "anxious".

 

All will be as it should be.

Take Care!

 

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hey MM,

Alex is tough and has shown all of us that he wants to live. I have to believe he has a Guardian Angel with him and has shown him the way so far. Lets continue our prayers for him and I'll throw in a good word for you and Anastasia too. Give them our best and you stay strong Brother, you'll get through this...



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Prayers are on their way to your friend Alex and Anastasia,

MM and may the Doctors find guidance in saving your friend.

 

Best Wishes to you all,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Medics found a source of unknown infection in Alex's lungs. Antibiotics do not help to kill it. This pesthole is hidden and cannot be tested without surgical operation. Medics say Alex doesn't have chances to survive after this operation but transplant team insist to do it because the infection continues to kill Alex, Anastasia finally agreed with transplant team, giving them the permission for this operation. It will be today or tomorrow... She's asking for prayers to help Alex survive.
Thanks

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

He's still fighting...

Thanks, guys.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

I'm sorry to hear this MM! You have been so supportive of Alex and Anastasia but some things we are powerless over. You are all in my prayers.



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

My prayers are with all concerned at this sad time.

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

praying for all of you. Yes it is upsetting but please know you have been a great friend and support for them. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Received last update from Anastasia: for 2nd week Alex is in reanimation unit, kidney failure, liver doesn't work at all, sepsis and VRE. Medics are doing what they can do but the chances are too small.
Please, just pray for him...

P.S.: I'm OK, I cannot do something to help him, I'm just upset by these news... we known now when there's no updates from Anastasia the things go wrong...



-- Edited by malekula man on Tuesday 17th of May 2016 05:36:36 PM

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi again MM,

I`m so very sorry to read your latest update on Alex, and my heart goes out to him and Anastasia, and to you too.  You`ve been a wonderful support and friend to them and they both must be very thankful to have `met` such a kind and caring person as yourself. 

As Tig said, please do pass on all our very best wishes to them and let them know there are many good and kind people here who are thinking of them and sending support and hope.

Please keep in touch, and take care.. we`re always here for you too!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Okay buddy, thanks for the update. I know you're all doing the best you can. Continue the good job you're doing. Pass along our support and best wishes to everyone. Stay in touch here please and be sure you find time to take care of yourself too. Tell Alex and Anastasia hello from all of us. 

smile



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hi Tig,

I'm ok, thanks. I'm living my life with no major problems but what Alex with Anastasia are coming thru is very emotional to me.
Anastasia gives the us updates rarely, she knows we are waiting for good news but...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hey MM,

You sound pretty down my friend, I'm sorry to hear that Alex (all of you) are having such a rough time of it. You have all tried so hard, don't give up now. I'm sure you are all exhausted. It has been a struggle from the beginning. You have been such a good friend and support for both Anastasia and Alex, keep it up. You are all a team and we have all followed your progress through treatment and then your assistance to both of them. Anyone looking back on your comments can only be amazed with what you have been able to do for them both. You should be proud of what you've accomplished, we certainly are. Chin up buddy...

When you're up to it, fill us in. Let us do what we can to help, a good word, a prayer, whatever we can accomplish together. You've shown us what being a supportive friend is all about and I hope we can provide some degree of that to you as well. 

Don't forget about yourself. You've been through a lot of your own personal stress, with treatment and now this, for months. Please take time to think about your health too. You're very important as well, don't forget that.



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

the way up and the way down... starting the April Alex has the problems, slow transplant rejection is present and the medical staff in rehab trying to stop this process. His liver now is F1-F2, the fibrosis grows up, his labs are very discouraging... Alex and Anastasia are both exhausted. I have nothing more to say, it's so sad...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Greetings MM,

This is by far the most incredible thread that I have ever been blessed with reading. A true testimony of the quality of man you are. To have "met" someone on a forum much like this one and taken that person so deeply into your heart is beyond words that I can find.

God richly bless all involved. Faith and confidence in Him make all the dirrference in our understanding of situations like this regardless of the final outcome.

God Bless Alex and the hands of those attending to him.

God bless the good wife Anastasia and may He keep her close and comfort her daily.

And God Bless you MM, for the kind heart of the Good Samaritan who stopped along the way to assist a stranger.

My highest Regards

 

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Nice to hear MM,

Yes, getting outside can do wonders for the mind, body and soul ... I can really relate to enjoying that!

How wonderful that your friend is doing better, what a dreadful fight but he is obviously a fighter!

 

Wishing Alex, Anastasia and you All the Very Best,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 



__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Thanks for the update MM! It's great news for sure. The chance to enjoy some blue sky and sunshine must've been quite a thrill after so long without it. Give my best to them both and I hope you're doing well too. Keep us informed of Alex's progress and yours. I'm so glad you were able to be there for both Alex and Anastasia. You can't put a price on friendship and support like that....



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Alex keeps going... He stays in rehabilitation center in Baltimore for liver transplants, recently did a first walk on wheel-chair with his friend from West Coast, for first time in 6 month he was able to see the sky and not a ceiling
Anastasia is so happy and believes will her husband soon, probably late spring.


__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks Linuxter!

Alex talks, his condition is stable. Doctors accept that they did an error to move him to rehabilitation unit too early. He's in transplant unit now, they cannot find why he has so much liquid in abdomen, promised to get him ou only when Alex be able to move on he's own. Only mashed food and water with thickener.
The battle continues...

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Thanks for the update MM.

Sounds like positive developments, hopefully with time Alex will be on the mend.

 

Best wishes to all,

Dave



-- Edited by Linuxter on Friday 29th of January 2016 01:43:41 AM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thanks Ladies and Gentlemen!

Alex moving a little bit in bed, understands discussion but not talking... Anastasia is thinking he's just refusing talk to staff because of enormous tiredness and weakness. Scans found two arterial thrombus in his legs, possible consequence of cardiac arrest, even his PLTs are low. So, he had a urgent surgery for these thrombus.
He's still weak but alive.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

More prayers on the way MM

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Oh, what excellent news, MM.. I`m so happy to hear this!  We`ll be keeping you all in our thoughts and prayers.. miracles do happen!! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Outstanding my friend, simply outstanding!!

 

LIKE!

 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

It works! Don't stop!

He's woke up! Can respond "yes" with his eyes and move hands, legs when staff asks to try

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Continuing prayers coming your way...



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Prayers and healing thoughts are sent to you all....



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Thank you for your words, CG.


Anastasia is grateful for your thoughts, friends. She's asking only for the prayers, she understands clearly that now Alex's faith is in God hands. Every thought worth. Thank you all...

Alex is in cooling bath now because his heart is instable. So medical staff is unable to CT-scan brain and tell if Alex is still alive, low temperature may influence the procedure. His abdomen is full of water, 2 litres were in lungs.

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi MM, so sorry to hear about your friend`s recent setback, what a huge worry for Anastasia and for you too  He`s a fighter though and although he`s obviously very poorly there must still be hope for a good recovery.  I hope with all my heart that he will come through this.. 

You`re part of our `hepcfriends` family, MM, and as Tig said, we`re here any time to lend an ear and give you support, so please do keep us updated on your friend`s progress. 

Please pass our on our concerns and good wishes to Anastasia, she is in our thoughts.  Take care, you`re a good man for caring so much...

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Stay in touch, we're always here for ya....



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
malekula man


Senior Member

Status: Offline
Posts: 197
Date:
Permalink  
 

Hi Tig,
She's looking crushed... Her words may leave an impression she's giving up but I believe it isn't. She just needs a bit of time to brace up and continue this battle.
Me and Alex we started Harvoni same day, we are the same age and more... I was always looking how he does having a thought if he can win I will be able too. And it's so painful now to see him losing this step... I hope it's just a step and he'll win the final battle. I have many thoughts now. But I don't have the words to encourage Anastasia ...

Just praying for the best...

Thanks you all... Tig, Mike, Linux, Arianne

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
1 2  >  Last»  | Page of 2  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> General Discussion -> Need your advice
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.