Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> Should I be worried?
Post Info TOPIC: Should I be worried?
Tig


Admin

Status: Offline
Posts: 9270
Date:
Should I be worried?
Permalink  
 

Hey Steven,

Good to hear from you but wish you were feeling better. It takes time buddy, sometimes more than we thought we'd have to give. This is a marathon, not a sprint, so slowing your pace and expectations for an immediate return to your previous youthful self, might help you deal with the changes. A little bit at least. You will likely see changes in some of your tests, that's only normal after going through a course of treatment with these powerful drugs. I know we've talked about the testosterone issue before and remember mine dropped below 100 during treatment. I could tell the differences, what man couldn't? It will come back.

I'm curious why you had a 10 week EOT viral load and now having a 12 week followup? If you were undetected at week 10, you will be at week 12, I'm positive of that. Many doctors aren't performing any viral load except the pre treatment and the EOT +12. Many insurance providers won't approve anything but that schedule due to cost involved. The price has dropped significantly in the last year or two. I think you can get one done now for $300-400 dollars. When I was having mine done in the latter part of 2013 they were $1800 apiece, so my insurance controlled them closely! Once you get the 12 week test done, you don't need to worry about it again, you're done. Some continue the process and get the 24 week test done, but relapse is very rare. 

 

Let me tell you a bit of a story, call it my story if you will. One I'm very thankful to have lived through and came out on the good side of...

We all see improvements, but it takes time. Let me tell you, I know you want to hear that it'll be a matter of weeks or a few months, but it took me well over a year to just start feeling "okay", not great, just okay. After 2 1/2 years, I can still point to areas that hurt and fatigue that I can't explain away, but we went through treatment to stop a potentially deadly liver disease and we (you) did it. That is a great thing! I think many of us are living with changes due to both HCV and treatment, it's part of the whole process, you can't escape all of it. You get it, it affects you physically and mentally and some get sicker than others. Hopefully you get the opportunity to treat the disease before it hurts you badly. Wasn't until recently, you might be one of the lucky ones that obtained a SVR. For years only a small percentage did. Literally 10-20-30% and that was often after a year or more of some very ugly medications, horrid side effects, some more than once I might add. For some of us old timers, our new miracle drugs offered us an exciting 50-70% success rate, sometimes. Many failed, got sicker and ended up with advanced fibrosis, cirrhosis and liver cancer, life changing... But trying was more important to us than not, so we bit the bullet and went ahead with it, again and again, because we refused to take no for an answer. You're right that these are new drugs and many of the post treatment side effects are just now peeking out of the shadows. That happened to all of us, so you're not alone. Understand that it's not unusual to notice long term changes, some better than others. But we have also seen great improvements in our liver health, which amount to a healthier and longer life. We have all fought a lengthy battle and thankfully we're seeing success rates that far exceed anything we recently even imagined. We're here and we're willing to do everything we can to make it easier for the next person starting this journey to better health. Don't give up on your hopes for the future Steven, you've come through the hardest part of it with shining colors. Step outside and let the wind blow those clouds away and look forward to the future you seek. It's just going to take a bit longer to get there. Keep the faith Brother...

We have spoken about it often, each new protocol results in an entirely new group of "Pioneers". We all seem to somehow end up being in the group that is "lucky" enough to use the latest and greatest new treatment. They are developing new drugs faster than they can develop treatment data on the last one. In the next year there will be a few new ones hit the market that may be better than what's available now and with them comes a whole new set of circumstances. Sometimes it's a crap shoot and you hope for the best. We all hope for the best, try to find it, it's there. Best of luck...

 



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
S1jiujitsu


Member

Status: Offline
Posts: 33
Date:
Permalink  
 

I finished harvoni 12 weeks ago . I was undetectable at 10 weeks post treatment. Tomorrow is my 12 wk SVR labs. Treatment was hard for me and I've struggled physically and emotionally since treatment. Low energy and continued mental fatigue make it hard to be happy or optimistic. My testosterone plummeted from 540 pre treatment to 276 post treatment. That is low, maybe normal for an 80 year old with diabetes. Tomorrow in addition to checking hcv SVR there are running complete hormone tests. It is my belief that in wiping out this horrible virus it wiped out my normal hormonal balance which is affecting me physically and emotionally. It's actually quite frustrating. All the pain in my hands and shoulders went away. I believe this is a miracle drug but all the side effects aren't known yet because it's still new. My hope is still in God and I'm praying for complete recovery and restoration! Let me know if anyone thinks the two are related, if you think I'll still be undetectable, and if hormone replacement therapy could possibly have a negative affect and risk relapse. Than you

__________________
Steven Wagner
Bills


Guru

Status: Offline
Posts: 648
Date:
Permalink  
 

Hi Judith

Welcome to forum and the Harvoni train, You will easily identify with this group. almost anything you may want to know can be found here easily. just ask questions and someone will help and point you to an answer. Most people write a short history of past treatments or status on where they are in the fight against Hep C. Harvoni is got an excellent track record. and you are blessed. Hope your ride goes fast and easy. 

BillS

 

 



__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

judeahomestead


Member

Status: Offline
Posts: 20
Date:
Permalink  
 

Looking for link....



__________________

Judy

72 yo. Diagnosed 2002 genotype 1.  IV Heroin user 1960's-70's. V/L 5945743. 2005 interferon/ribavirin 48 wks, relapsed. Started Harvoni 9/11/2015.
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Judith,

So happy to hear your good news! I invite you to start a new thread in our "On Treatment" section. There are a lot of people that will reply to it. You can also share your news in our "Harvoni Train" thread.  You'll get more response and well wishes using those two options. I'm glad you're going to share your journey with us!

http://hepcfriends.activeboard.com/t58762824/all-aboard-for-the-harvoni-treatment-train-enjoy-the-ride-fo/



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
judeahomestead


Member

Status: Offline
Posts: 20
Date:
Permalink  
 

I am celebrating 24 years in "the program" and every day of it has been blessed. Now I am about to start treatment with Harvoni and again I am blessed.



__________________

Judy

72 yo. Diagnosed 2002 genotype 1.  IV Heroin user 1960's-70's. V/L 5945743. 2005 interferon/ribavirin 48 wks, relapsed. Started Harvoni 9/11/2015.
WarriorWolf


Veteran Member

Status: Offline
Posts: 66
Date:
Permalink  
 

Thank you friends, for the hugs, love and support. It's been quite the journey. So grateful......

Peace

   



__________________

Ww

Dx 2002, GT 1B, VL 86.5k IU/ml, ALT 47 AST 36, Tx Harvoni 8 weeks (4/20/15-6/15/15) SVR-12!!!
WarriorWolf


Veteran Member

Status: Offline
Posts: 66
Date:
Permalink  
 


Thank you. I am returning to the program of AA. I do deserve what it has to offer. I'm so grateful for healing!!
wmlj1960 wrote:

Congratulations Katrina!!! I'm very happy for your SVR news and your relief from worry. 

WarriorWolf wrote:

 A total, un-perfect journey to recovery is where I am going.

 That statement reminds me of the last sentence in the Alcoholics Anonymous book main text: "We shall be with you in the Fellowship of the Spirit, and you will surely meet some of us as we trudge this road to happy destiny".

We run into some big obstacles on this "un-perfect" road, but we 'trudge' on through just as you have done beating that Hep C dragon. Job well done!!! smile

 



__________________

Ww

Dx 2002, GT 1B, VL 86.5k IU/ml, ALT 47 AST 36, Tx Harvoni 8 weeks (4/20/15-6/15/15) SVR-12!!!
bubble


Senior Member

Status: Offline
Posts: 236
Date:
Permalink  
 

Positive attitude Alex. Your here, read it, believe it.  It's a new page- new chapter.    "All to-gether-now".



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Oh Katrina, I`m so thrilled for you... congratulations!!  biggrin

What a huge relief for you! I`m sure lot of us here understand how fear can make us act in ways we wouldn`t normally do, and now at last you can put aside your worries and anxieties and move forward towards a new Hep C free life. 

You`ve done so well and I wish you all the happiness you deserve!  Sending a big hug your way! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Congratulations Katrina!!! I'm very happy for your SVR news and your relief from worry. 

WarriorWolf wrote:

 A total, un-perfect journey to recovery is where I am going.

 That statement reminds me of the last sentence in the Alcoholics Anonymous book main text: "We shall be with you in the Fellowship of the Spirit, and you will surely meet some of us as we trudge this road to happy destiny".

We run into some big obstacles on this "un-perfect" road, but we 'trudge' on through just as you have done beating that Hep C dragon. Job well done!!! smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Matt Chris


Guru

Status: Offline
Posts: 1781
Date:
Permalink  
 

Hey Katrina

Yaaahhhooo ! SVR-12  is sweet.

Congrats on your results and your new attitude, it will do wonders for your health.

BTW your worries are over.

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Penelope PePod


Senior Member

Status: Offline
Posts: 199
Date:
Permalink  
 

Katrina,

I'm crying tears of joy for you!  You are kicking this dragon's butt and have a whole new healthy life ahead of you!  Live it well!

Penny 



__________________

65;  Dx 1997 1a; VL 1.1m; TX naïve; SOT 7/20/15; 12 wks viek/riba 1200mg

09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Katrina,

WOOHOO!!!!!! I feel your joy and the initial disbelief when you get that GREAT news! You did it and I'm happy to pin your SVR medal on you. Congratulations on your victory, you so deserve it. It's a moment you will never forget! Now you can concentrate on recovery and getting your life where you want it to be. Enjoy your success.....

                                                WOOT.  

 



Attachments
__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
WarriorWolf


Veteran Member

Status: Offline
Posts: 66
Date:
Permalink  
 

I just read the results of my lab! Holy crap it was super hard to just open the report. I am STILL undetected! SVR-12! I can't believe this. The days have arrived. I some how do feel this incredible sense of relief, joy, health, etc., etc., I feel like I can really live healthy in my life. This 12 weeks, like I said were not easy. I was hard on my family and hard on myself. I resorted to unhealthy ways of eating and abusing my body (binge drink) instead of continuing to help myself heal. I was terrified instead of relieved, post Tx. I have a horrible way of self-destructing when I feel so out of control with fear. I am glad to say I am going to decide different now. I am going to choose the healthy vibrant life. A total, un-perfect journey to recovery is where I am going. Thanks, people! I am blessed with your support...



__________________

Ww

Dx 2002, GT 1B, VL 86.5k IU/ml, ALT 47 AST 36, Tx Harvoni 8 weeks (4/20/15-6/15/15) SVR-12!!!
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

WarriorWolf wrote:

I have felt much better after treatment. Initially, I was not feeling 100% and I don't think I am yet. That was a horrendous treatment. Much less agonizing than previous treatment options, so I have been told. I have some side effects to clear, but I am healing. I have to be honest, it took it's toll. I thought I would be happy and ready for a new healthy life. I actually felt emotionally and mentally fatigued after treatment. I struggled quite a bit with feeling happy and energetic. I am definitely moving through it. I get better every day. I don't get too worried when I hear responses like Alex's. He too, has his story. I am feeling optimistic but of course I worry, because I had no doubt in my mind I could reach SVR. I never had  a doubt from the day I was diagnosed that someday I would heal. Thanks every one. I will be happy to share the good news as soon as I know confuse  

 Hi Katrina.

 Feeling emotionally and mentally fatigued after treatment is understandable considering our bodies have just completed hosting a war between a nasty - hard to kill virus via some very powerful chemicals. And the mental and emotional recovery keeps getting snagged by that fear of possible relapse making peace of mind a fleeting feeling at times. But try not to worry. Good news about SVR-12 next week will do wonders for your worry. This too shall pass. I'll be watching for your post next week with your cue to start the party. smile

 



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Future off topic replys to this thread see this link:

 A new thread entitled "Alex- New topic" has been created for anyone wishing make further off topic replies to this thread.

Please click HERE for that thread.

Thanks

Mike - moderator






__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Jaded


Senior Member

Status: Offline
Posts: 157
Date:
Permalink  
 

AlexJ wrote:

My doctor is seeing half his patients on the new drugs relapse at a one year checkup. Virus came back!!!

that is why I stopped harvoni. 

Its Gillead who has internal memo's that validate this. Don't ask me how I got them because i would have to kill you if I told you. 

They are making billions on this drug claiming people are "cured" in 3 months. 

Just not true. Half are worse off with permanent side effects of this drug. And half have had the virus return as much as 11 months post treatment. 

so beware folks. And know that most of the cheerleader/moderators are working for the pharmaceutical companies.  

good luck to everyone. 

Peace out. 

 So if my math skills are still intact...1/2 the people are worse off & the other 1/2 fail within 11 months...so that means it's a 100% failure? Maybe...but you're the only person I've ever heard with those statistics. Whey not share your info.? Oh I forgot..you'd have to kill us...never-mind then.

 You know that Harvoni has not been out a year yet so I doubt you're Dr is seeing any 1 year failures or that he would would be prescribing it if so.



__________________

64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
Rubye


Senior Member

Status: Offline
Posts: 205
Date:
Permalink  
 

WW, hang in there. I had a terrible time on treatment myself and never was sure I'd reach SVR. On top of this, I was really sick after end of treatment - for six months I had a ton of nausea every day and joint and muscle pain and then it seemed like all of a sudden I was just better. That was at six months after eot. So, the point I'm making for anyone who had or is having a difficult time it has gotten better for everyone I've known who reached SVR. It was no doubt about it the best thing I've ever hung in there through.



__________________

UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
WarriorWolf


Veteran Member

Status: Offline
Posts: 66
Date:
Permalink  
 

I have felt much better after treatment. Initially, I was not feeling 100% and I don't think I am yet. That was a horrendous treatment. Much less agonizing than previous treatment options, so I have been told. I have some side effects to clear, but I am healing. I have to be honest, it took it's toll. I thought I would be happy and ready for a new healthy life. I actually felt emotionally and mentally fatigued after treatment. I struggled quite a bit with feeling happy and energetic. I am definitely moving through it. I get better every day. I don't get too worried when I hear responses like Alex's. He too, has his story. I am feeling optimistic but of course I worry, because I had no doubt in my mind I could reach SVR. I never had  a doubt from the day I was diagnosed that someday I would heal. Thanks every one. I will be happy to share the good news as soon as I know confuse  



__________________

Ww

Dx 2002, GT 1B, VL 86.5k IU/ml, ALT 47 AST 36, Tx Harvoni 8 weeks (4/20/15-6/15/15) SVR-12!!!
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Everyone,

This thread was started by Katrina (Warrior Wolf) to discuss her concerns over her LFT's. It was taken off topic following the comments left by Alex and we requested then that any further discussion on the subject be continued on a new thread if desired. I ask those interested in discussing the claims made by Alex, to start a new thread to do so. Thank you for your understanding on this.



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
G Man


Member

Status: Offline
Posts: 29
Date:
Permalink  
 

Alex...I'm new here.  I don't know who anyone is.  I'm two weeks in with Harvoni.   If you have the information, of which you speak, I would honestly like to see it.  For what it is worth the success rate for previous treatments were greatly over stated in the beginning.  I suffered through a total of 18 months over a three year period on that poison.  So I'm completely willing to believe what you have posted here as long as you can back it up.  Please provide the back-up.

Sincerely,

G



__________________
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

ALTs and ASTs never stay exactly the same. They always vary somewhat. Your levels are still well within normal. It's hard to not "think the worst" and I do the same with any twinge, cramp or bump. Try and relax though, as your test shows no indication of relapse. 

:)



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
JIme


Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Relax Kat, staying calm will help your tx.

I'm sure you'll be fine.

Praying with you.




__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Alex... for your information all of us who are moderators on this site have come through treatment ourselves, here on this forum, and most of us used other drugs than Sovaldi based treatments to get there.  We don`t just pluck people from the internet. 

I`m quite sure that if we had Big Pharma trolls hanging around here masquerading as regular members we would have realised that by now,  you can be sure we monitor this forum very carefully in order to safeguard our members. 

You`ve hijacked WarriorWolf`s thread here so can you please not post any more comments so that we can get back to the topic, thanks. 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
AlexJ


Member

Status: Offline
Posts: 21
Date:
Permalink  
 

All I can say is for those of you that are truly cured, congrats!!

as for my info it is real. Watch 60 minutes in the next 6 months. 

Are you so naive that you don't believe with the billions of dollars at stake for these big drug companies. ( my investigation only can speak for Gillead), that they don't have employees trolling these sites?? Urging us desperate people to continue taking these drugs. Offering ways to get it paid for??

again, for those you are virus free after a year and feel better then you did prior to treatment, God bless. 



__________________

Alex,

60 yr. old female, geno 1a. diagnosed in 96, tried interferon for 6 weeks. stop!!  5 years later tried interferon with riboviron, 9 months. stopped!! no luck. cirrhotic started  july 24th 2015 a 24 month regimen of Harvoni. fingers crossed......

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

JIme wrote:

I always wondered why Jill hung around here. biggrin

Seriously, what Tig said. If I say anymore I'll get in trouble.

p.s. can somebody get me on the payroll too?

 Haha...Jim!!  My secret`s out at last!! 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Alex... to state that `most of the cheerleaders and moderators are working for the pharmaceutical company` is a very astonishing and outrageous statement!  All of us on this forum`s Admin team work hard for the good of our members and of course we want to see as many people as possible reach SVR and be cured from this dreadful disease. To say otherwise is an insult to us as moderators and actually smacks of paranoia, quite honestly.

I`d also like to see you provide evidence for your assertions.  Unless you can back up your claims please refrain from posting your absurd opinions and trying to scare our members, may of whom have already had successful outcomes from Harvoni and will continue to do so. 

 

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Rubye


Senior Member

Status: Offline
Posts: 205
Date:
Permalink  
 

All I can say is I've been SVR - Hep C free - for one year now. I treated with Sovaldi and Olysio but Harvoni is darn near the same thing. Also, I had Hep C for over 40 years and have cirrhosis and am still Hep C free. I was just checking the boards this last week looking for anyone who may have relapsed with the DAA's but found very very little. To me, it looks like the vast majority of people remain Hep C free after one year.

Also, that's insane about the moderators working for Big Pharm. I don't know why you'd say something like that Alex.



__________________

UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
JIme


Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

I always wondered why Jill hung around here. biggrin

Seriously, what Tig said. If I say anymore I'll get in trouble.

p.s. can somebody get me on the payroll too?



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Jaded


Senior Member

Status: Offline
Posts: 157
Date:
Permalink  
 

ALT 20 AST 20 is very good...no need to worry.

__________________

64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Alex,

I would like you to provide supporting documentation to uphold your opinions, because that's exactly what they are. We always provide links to every fact we share on this forum and if you did some reading here, you would see that we only quote and provide truthful information. You are apparently accepting everything your doctor is telling you as gospel without checking his/her facts. 

Your other comment on the cheerleaders and the administrative staff being in the pocket of Big Pharm is incorrect, totally off base and is another thing you can't prove. Your assumptions are simply far fetched and unsupported by fact. If you have any, I'm ready to read it. In the meantime, I suggest you get out there and try to find a better treatment protocol than what is available. Currently the chance to achieve SVR has never been better. Good luck ...



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
AlexJ


Member

Status: Offline
Posts: 21
Date:
Permalink  
 

My doctor is seeing half his patients on the new drugs relapse at a one year checkup. Virus came back!!!

that is why I stopped harvoni. 

Its Gillead who has internal memo's that validate this. Don't ask me how I got them because i would have to kill you if I told you. 

They are making billions on this drug claiming people are "cured" in 3 months. 

Just not true. Half are worse off with permanent side effects of this drug. And half have had the virus return as much as 11 months post treatment. 

so beware folks. And know that most of the cheerleader/moderators are working for the pharmaceutical companies.  

good luck to everyone. 

Peace out. 



__________________

Alex,

60 yr. old female, geno 1a. diagnosed in 96, tried interferon for 6 weeks. stop!!  5 years later tried interferon with riboviron, 9 months. stopped!! no luck. cirrhotic started  july 24th 2015 a 24 month regimen of Harvoni. fingers crossed......

 
AlexJ


Member

Status: Offline
Posts: 21
Date:
Permalink  
 

I wish you all would stop with the cheerleading to get to 12 weeks virus free. 

Interferon did that for a lot of people only for the virus to sneak back 4,8,10 months later. 

Dont break out the champagne until you are a year virus free post treatment. 



__________________

Alex,

60 yr. old female, geno 1a. diagnosed in 96, tried interferon for 6 weeks. stop!!  5 years later tried interferon with riboviron, 9 months. stopped!! no luck. cirrhotic started  july 24th 2015 a 24 month regimen of Harvoni. fingers crossed......

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Ww, we all understand what an anxious time it is while waiting for such an important result, but you have nothing to worry about there with those numbers!

Your liver is obviously very happy and so should you be, the treatment has done its job...onwards to SVR12!!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Katrina,

Based on those scores, I wouldn't be worried either. This is the most tense of times and we all can relate to your stress. Now is the time to let positivity and the current rates of success be your guide. Your chance for SVR has never been better! We'll be waiting for your good news!!!!! Good luck..... smile



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Matt Chris


Guru

Status: Offline
Posts: 1781
Date:
Permalink  
 

Hey Katrina

If your current / last test results were ALT 20 & AST 20, I would not worry what so ever. 

Sometimes comparing your pre-treatment ALT & AST is a better indicator or other lab results. From my own experience we all get anxious and start doubting before these important milestone test dates. 

So you likely will reach SVR-12

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
WarriorWolf


Veteran Member

Status: Offline
Posts: 66
Date:
Permalink  
 

I have my 12 week check-up next week. I'm worried. My liver enzymes have increases slightly, but not out of normal range. ALT 20 AST 20. I am praying for SVR! 



__________________

Ww

Dx 2002, GT 1B, VL 86.5k IU/ml, ALT 47 AST 36, Tx Harvoni 8 weeks (4/20/15-6/15/15) SVR-12!!!
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> Should I be worried?
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.