Hep C Discussion Forum

Hi Ww, so sorry you`re having such a rough time, although one thing`s for sure... you`re not dying, so please don`t even let that thought even enter your head!

I can fully understand your frustration, but I wonder if you`re expecting too much of yourself at this point?  Don`t forget that you were on some very powerful medications and there`s no set time for recovery, it`s different for everyone.  It`s still early days for you yet, so do what you can when you can, and try to stay positive about each day.

As Tig mentioned, we`re hearing about quite a few post tx issues from other members who have taken Harvoni, you`re not alone in this. 

I`m glad you`re seeing your doctor today, and exploring ways to alleviate symptoms through diet and physical therapies, all those are good approaches. 

I remember when you first joined us, and I think you did so well getting through your treatment despite a difficult start.  You`re obviously very strong minded and I`m sure you`re quite capable of staying away from alcohol, you know the right path to take.

Take good care of yourself, and let us know how you get on with the doctor.  I`m so glad you shared your worries with us, we`re here for you any time!

Thanks guys, it means a lot to me to hear you feedback and encouragement. Truly it does  There are things that actually aggravate my symptoms. I picked up a nasty habit of drinking espresso during my Tx. It helped a lot with the fatigue. Now though it seems that it kicks in the pain and numbness in my feet. I have had minimal adverse sensations in my hands, but mostly my feet. My stomach is crampy with gas a lot. I stopped eating meat to help with that and my belly has improved. My face has acne that I never had before. My muscles are hard to maintain. I am on my way to see the doctor today. I don't know if anyone recalls my reluctance to ingesting any kind of medication. I never feel ok with any medications. I was recently prescribed a muscle relaxer for my back but I took two and stopped. I am going to massage again, chiropractor and physical therapy. I wish I could find more natural ways to relieve what I am experiencing. I am going to try Chinese foot therapy and acupuncture. I'll definitely let you know how that goes.  

Hi Katrina,

I'm sorry to hear you're having a miserable time with your recovery process. What has your doctor told you and have you had any additional tests to rule out other possibilities? You're right though, we have several others that are complaining of lingering joint and muscle pain. Some are mentioning trouble and discomfort in their hands. How about you? If you haven't discussed possible solutions with your healthcare team, you really need to push yourself to do that. I know that it's hard to get motivated when you feel like garbage, but try hard to stay moving. This time of the year isn't the most pleasant of weather, but the fresh air and sunshine, albeit limited, is very helpful.

Keep away from the booze! You're doing well with that and you don't need to deal with additional problems right now. I hope you stick with us here and keep telling us how you're feeling. I hope that some others that have taken Harvoni will check in here and share their experiences with recovery and what they did to minimize these problems. I know you're not alone, so I hope you find some relief knowing others share your pain. We do have plenty of folks that are witnessing good improvements, but it is taking them longer than they thought it would. Hang in there and keep in touch, I want to hear from you.

hi ww i too felt awful after tx and wondered if id made things worse .....had a lot of guilt as well as id cleared virus and people were saying how lucky i was.but i felt terrible.am narly a year post tx now.and i can say i do feel 100% better . but the first months after tx i wouldnt like again.all the time im reminded how this virus and tx affects people in different ways.some bounce back really fast others have post tx probs you have age on your side and im in no doubt things will greatly improve for you in the near future. think its good  your honest about how you feel and i expect your get a lot of feed back.                                                                        william