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Hep C Discussion Forum -> General Discussion -> Gilead / VA on the CBS Evening News tonight
Post Info TOPIC: Gilead / VA on the CBS Evening News tonight
JimmyK


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RE: Gilead / VA on the CBS Evening News tonight
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Understood and I agree. Maybe he will find us on his own and at any rate I thank him for his service to us all.

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wmlj1960


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JimmyK wrote:

Greetings,

Mr. Israel would make a great and welcomed addition to our Family here. If there is a way to get in touch and maybe invite him, that would be a good thing for him and us.

Regards

 

JimmyK

 We would love to have Mr Yisrael as a member but to ask him through the previously mentioned support group would be in violation of that groups rules about solicitation of their members - just as this group has similar rules. smile

FYI: He is currently being treated with 12 wks Harvoni + Riba (SOT 12-17-15). His 4 wk viral load result was UND.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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JimmyK


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Greetings,

Mr. Israel would make a great and welcomed addition to our Family here. If there is a way to get in touch and maybe invite him, that would be a good thing for him and us.

Regards

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wmlj1960


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Back on the CBS Evening News tonight:

 http://www.cbsnews.com/videos/va-officials-grilled-about-hepatitis-cure/



-- Edited by wmlj1960 on Thursday 4th of February 2016 02:39:00 AM

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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Gifthealth


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Thanks Tig for the information. I will call the number and make sure that Mr. Israel received his medication.

 

 



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58, GT2, Peg/Riba 2010 failed, SOT Sept 2015 to Dec 2015 on Sovaldi/Riba, SVR-EOT, SVR4, SVR12!!!!!!!!! CURED!!!!!!
tkflex36


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Mr Zion lives in Detroit Mi, As per a post he made today he has a 75% chance of the VA treatin him! There is enough funding for 8 people and there are 12-16 needing it. There is an awesome FB group called "hepatitis c treatment w/o borders" he is in. Plus it is an awesome group that has helped many people get treatment! FB users check it out!

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36 yo M, first dia in 2002, geno 3A, TX naive, starting trial of sof/vel 12 weeks on 1/6/2016

VL on 12/21/15- 507,000

12 week EOT 3/30/16, VL-UNDETECTED ALT-23, AST-24

24 wk post tx  10/16 VL-UNDETECTED! ALT-16, AST-18

SVR24+all LFTs normal=1 DEAD Dragon!

 

Don't stop fighting til the dragon is DEAD!
Tig


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Hello GH,

I'm not aware of the contact information for Mr. Israel either. I did find this contact number for CBS Audience Services, you may be able to obtain more information there. However, I have a feeling that after this nationwide broadcast, the VA will hopefully have a change in attitude toward his care. Thanks for your care and compassion...

 

Q.  How can I speak to Audience Services about a CBS program?

A. You may telephone us at 212-975-3247 between the hours of 10AM and 11:30AM ET
....or 2PM and 3:30PM ET Monday through Friday.


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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gifthealth


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I would very much like to contact Mr. Zion Israel and see if I can help him afford his needed medications. Does anyone have any ideas how I can get in contact with him? The CBS report did not say in what city or state he lives. 



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58, GT2, Peg/Riba 2010 failed, SOT Sept 2015 to Dec 2015 on Sovaldi/Riba, SVR-EOT, SVR4, SVR12!!!!!!!!! CURED!!!!!!
Tig


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Thanks for providing this information. It reminded me of a discussion we had here on the forum a while back. Malcolm provided some interesting history on Dr. Schinazi, Pharmasset and the Gilead buyout. It's worth reviewing.

http://hepcfriends.activeboard.com/t59668358/the-history-of-sovaldi/



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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Here's the video.

cbsnews.com/videos high-cost-of-hep-c-drug-a-barrier-to-treatment

 



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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pl1952


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I saw it too and glad to see something like this on TV!  I was trying to find a link to the report to post it here...I couldn't find it.  But it was on CBS Evening News with Scott Pelley and the report was done by Chip Reid.

 They said only 35,000 Vets have been treated so far, that equals only 15%....

 



-- Edited by pl1952 on Wednesday 2nd of December 2015 12:07:00 AM

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Me: 62 yr. old female, GT 1b, fibroscan 4.5; VL 650,975 as of 2/4/14;started Harvoni 3/6/15; SVR


Hubby: 59 yrs.; GT1b; fibroscan 25-cirrhotic; S/O for 12 weeks started tx 3/20/14; SVR56; fibroscan done 7-7-15 = 8.5
wmlj1960


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 According to CBS News, Price of Sovaldi / Harvoni is too high for VA Hospital to afford to treat patients. Dr Raymond F. Schinazi, a 7/8 employee of the department of veterans affairs made $400 + million when he sold his pharmaceutical company (Pharmasset) in 2012 to Gilead for $11.4 billion. In a 2013 trade journal, Schinazi said that it only cost $1400 to manufacture the medication for 12 weeks of treatment.

"Gilead more interested in profits than patients".
"Cost of treatment $84k - VA gets 50% discount but still can't afford to treat everyone who needs it".

 I'm glad to see this on the national television news.



-- Edited by wmlj1960 on Wednesday 2nd of December 2015 01:01:21 AM



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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