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Post Info TOPIC: The Sovaldi-Riba Train is now boarding


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RE: The Sovaldi-Riba Train is now boarding
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Probably Drones ... OMG! ... the horror of it ... (Major Drama)

I've become a "Person of Interest" ... Egads!!

(Do I need to go back to my alias?) ... Linuxter



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Buddy, I have a Magic 8 Ball, that works..... I know what you're doing, and not doing! The Ball doesn't lie. biggrin

eightball.jpg



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Another thing for the rash (I've been lucky so far, knock on wood) is "Eucerin - Eczema Relief" Body Cream ... works well for me to sooth and repair skin. Fragerence free, non greasy and has Oatmeal for relieving the itch ... it works. Says you can use it on 3 month old babies so I don't think there's anything too harsh in it. Freddie's sells it, probably most pharmacies too.

Just wanted to pass that on, I use it for dry skin and to keep atopic dermatitis from cropping up.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Tig,

How could you have possibly know I am slackin' on the water today, in fact I don't have my usual glass bottle of water on my desk right now ... I'm off to hydrate NOW!

 

Thanks,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Dave,

My man, the smoothie machine!! You're doing great dude!! Keep it up, I'm watching you....  HYDRATE!!



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Tig


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Scott,

You're definitely experiencing the SFX of Riba. That stuff didn't treat me well at all. But as you've heard, the best course of action is to remove yourself from the flame immediately or you will go off. Man, there were a few times I had trouble returning to my imagined non Hulk form. Boy I'd get pissed off at the stupidest things. I'm thinking they should give us a button to wear on our lapel that warns people to stay clear. Maybe one of those mood rings would work! Hang in there bud. Laying back is a good idea!

The rash can really be irritating and I found Zyrtec antihistamine and Caladryl lotion helped a lot. The doctor should approve them both, but you should call anytime you add an OTC medication to your protocol. I didn't have to use it everyday, but often enough to know it can help relieve some of it. Stay out of the sun too. Riba and the sun do not mix well together. If you're in the bright sun, you should be wearing good sunglasses too. 



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Hi Scott,

Week two here, things actually seem to be leveling off, I've had tastes of all the major Riba side effects so far but they seem to crop up then go away as my body adjusts to the changes. Had one day I thought would never end, foggy brain, felt very drained then the next day I felt great, even a bit supercharged. Now when I get anything out of the norm I hit it with lots of water and a smoothie with lots of vitamins and minerals ... so far it does seem to stave the sides off nicely.

I've been switching up the smoothies, changing the greens, next time fruits, just what ever seems right at the time ... but I don't make the same thing every day. Been trying to switch up the protein too, meat one day, fish another, just nuts and seeds the next etc.

For some reason I haven't been craving carbs much which is totally unusual for me. Normally I love toast for breakfast, sandwich for lunch, pasta for dinner ... now not so much. I do still like them, just don't crave them so much. This is all since SOT, perhaps it's the smoothies, whatever it is it's probably a good thing. I don't need the glucose, mine was pretty high before Tx (I think part of that was the carbs but some due to the HCV, I think). Hopefully I come out of this with a better balanced diet and things like elevated blood pressure and glucose subside.

Side effects of Riba are like the weather around here, blink and it will change.

 

Dave

 



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Thanks.  Yeah I got it on my arms and back too.  I have some prescription cream for my face and use an oatmeal gold bond for my arms and back.  I already suffer from dry skin and I live in Colorado so it is very dry here.  Normally it is just a few patches but now my whole biceps are covered and back feels like a lizard's scales. 

 

I catch myself just going in a circular pattern of anger, like "what if" scenarios.  For example, guy leaned his chair back on plane so I tapped my foot and knee to hit the chair because he was in my space.  I was Just trying to pick a fight.  I am usually really laid back.  I caught it and put on some pink Floyd and went to my happy place.  If I hadn't of, I am sure it could have escalated and been on the nightly news. 

 

I guess I just need to detach for the next few months.  Only 7 days I my behavior is changing a little.  But then again, I hate traveling.  Fortunately I don't have to travel all the time for my work.  Just every once and a while. 



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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RIBA rash can show up anywhere on body. Usually forarms,chest,back and legs,and face-cheeks. At some point you could get very dry skin, I did.  The rash showed up on my arms.

The mood-anger thing is riba-rage, I remember it well. One time I got very angry at my wife for rinsing fresh vegetables in warm water? I thought she should be rinsing in cold water- and it went downhill from there!!  Be aware that you can pop your top over the stupid little things. It helps to just avoid the things that set you off, just walk away -cool off and it will be ok.   Keep up the hard work.  RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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Today has been one week for me on treatment.  I have experienced some changes in my mood.  I have been getting aggravated pretty easily.  A little depression but like someone said below, I seem to snap out of it rather quickly, where the interferon would make me sulk in my depression. 

I still have the gout in left foot.  Sometimes it is so painful, I have to take 800 mg ibuprofen.  If it stays through until next week, I might go get it looked at.  Also, my shoulders hurt real bad.  I've been a battery technician for 10 years so several times a month, I lift hundred pound batteries over my head.  I don't do this every day but it is not uncommon for me to move 15,000 lbs of batteries a few times a month.  Funny thing is, I have never had any pain in my shoulders.  Since I have started taking treatment, both my shoulders hurt like I strained the muscles but I haven't done any lifting since I started treatment last Tues.  I sure hope this pain goes away before my next install.  I can't even lift my right arm above my shoulder height without massive pain.  Left one hurts too, but not as bad. 

Also I get a rash bad at night across my cheeks and nose.  It burns.  Not sure if anyone else gets this?

 

I read some of the smoothie recipes.  I am definitely going to head to store this weekend and find me some quick mixer.  I eat a couple of bananas a day, I have strawberries, apples, blueberries.  But I just don't get many vegies.  So, Dave, looking forward to reading more of your recipes.   



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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I know how you feel. That was my worst symptom of menopause. Soooo tired, fall right asleep and then wake up an hour later and toss and turn all night. It happens occasionally now, mostly when I have something on my mind that I can't stop thinking about. But for the most part, I'm more tired at night. And once it hits, I have to go to sleep right then. No more late night parties for me lol. 

Still got a couple months to wait to see about SVR. Darn annoying this wait! Wish with all the money these drug companies are making that they would come up with a simple test that has same day results and is cheap to do.

I did have a hard time sleeping on the triple, so maybe the RIBA is the culprit.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.



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I am envious of anyone that can sleep well. I have suffered from insomnia for years. I can fall asleep just not stay asleep. I use Sleep1 http://www.nutrition53.com/pages/sleep1

or you can google it and the ingredients. It says take 2 but since I am petite, I take one and no nasty side effects. Worth some checking into.  



-- Edited by wendyo on Monday 1st of February 2016 11:13:22 AM

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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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Gracie,

Fingers and toes crossed that you'll sleep like a baby from here on.

I have trouble getting to sleep but once I'm there I sleep like a log.

Hey, you're getting closer to that SVR ... smile

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Harvoni made me sleep like a baby, and 4 weeks post, still sleeping well. Sure hope that stays!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.

Tig


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26 months SVR and before treatment  I never had a day when I couldn't lay down and be asleep, all night, every night. After treatment, tinnitus and insomnia rule my night. My old doc gave me Trazadone 100 and it works sporadically, but I don't like relying on it daily for sleep. I keep hoping it will cut me some slack one of these days. The good news is insomnia and tinnitus can drive you nuts, but HCV can kill you, slowly. I'll gladly lay awake at night and count "whiney SVR sheep" til I finally get a few hours per night. The trade is worth it... yawn



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Hi RC,

I take a 100mg Trazadone and a 25mg Benedryl at night or I'd never get to sleep, been that way for a couple of years.

I try not taking the Benedryl sometimes and if I'm lucky I can get to sleep but usually not.

Had a couple of nights lately where I couldn't sleep even with both so I'm kind of all over the map with sleeping.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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By day 12 I couldent sleep a wink. Consider yourself lucky you can!!    RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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Thanks Mike,

I appreciate the kind words.

I think what I'm experiencing right now is better described as brain fog and lethargy, I just don't feel motivated to do things. Everything seems like a chore. It ebbs and flows, afternoon and evenings are better than morning.

Difficult to distinguish what's physical and what's mental for some reason.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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  The riba took a good while before it started affecting my energy so I'm hoping, based on that, your lack of energy is not riba related but rather a result of too much sleep, but that's not a bad thing - you need plenty of sleep. The walks helped me with my depression so it will hopefully be the same for you. Keep up the good work Dave, you,re doing great! smile



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Day 12

Over 1/8th of the way there. Soon I'll hit the 2 week mark.

Doing fine but sleeping a lot, don't have any extra energy until I'm up for a while then not a lot.

No problem eating, been pretty hungry throughout Tx so far.

I hope to take a short walk this afternoon, It's not raining right now, I should take advantage of it.

My mood is pretty good, very tiny bits of depression but they don't last and are easily overcome.

 

Catch Ya Later,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hey Scott,

Try not to over do it, gotta keep some reserves to fight the battle.

Just made myself a tall green smoothie, fuel for the troops.

Sorry to hear about the gout, not really a distraction you need right now.

 

Wishing you the best,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Dave, I am feeling it today too.  I felt so good yesterday that I might have over done it.  Today, I could hardly get out of bed.  But I forced myself to head out for a short walk and now I am going to be on the couch the rest of the day.  My mood is still very good, but I am getting joint pain, I also got s gout attack in my left foot.  Not sure if that is related to the meds.  I am not eating any trigger foods. 

 

 



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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Hi SF,

All is going well, no reserve energy (I feel extra lazy) and it's all sort of a mind game but I don't feel bad.

Yup, Day 11 (actually 10.5 which works out to being 1/8th of the way there). Time seems to be going by quickly (good for now but I need it to slow back down once SVR ... LOL)

Keep us posted on your situation, thanks for stopping by.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hi Dave,

I am guessing this is day 11? The forum posts a day ahead depending on the time we post. I have my time set correct but it still wins smile

It sounds like you are still doing great and tolerating all this very well. Please give us an update when you get a chance.

Have a great weekend.

 

 



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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Hi Scott, glad you found your way back.  I hear what your saying about the PEG.  Some people are interferon intolerant, and that's just the way it is.  You will do well on the Sof-RIBA-  the RIBA can get a little difficult at times, but knowing what S/X to look out for really helps.   The RIBA ramped me up with Sof on my first round, but the Peg kicked the riba"s butt on the second round.( kicked my butt as well).  I feel there are minimal S/X from Sof.

RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   

Tig


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Hi again Scott! It's good to see you and glad that you're getting things squared away. (Navy joke) Former HM3 here 73-79. 

I'm looking forward to following your progress and wish you the easiest of rides....



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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That's great news Scott. Welcome aboard and may you have a smooth, succsessful ride straight through to the SVR train station.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Scott,

So far I seem to be tolerating the Riba quite well (but then again it's still early in the regimen).

I am drinking lots of water as well as fresh lemon juice and other fruits and vegies (smoothie style).

Don't know if it really helps but seems to ... maybe helps keep the toxins moving through my system (that's the plan anyway).

Yes, nice to have you aboard this train ... we got this ... it's Dragon Slayin' Time!!

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Thanks.   And Dave, I think this is cool that we have such a close start time.   It will be interesting.  I don't think anything will compare to interferon but, what do I know, I have not had this combo and the Riba is still pretty toxic

 

 



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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welcome back and third time's the charm! 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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Hi Scott,

Welcome back to the forum, glad you're here!

As you probably already know, you'll get LOTS of great support and top notch information here.

Congrats on getting started on Sovaldi Riba, I'm on day 10 now so barely ahead of ya.

A special welcome to the Sovaldi Riba Train ...

... keep us posted on how it goes.

Best of luck in your Tx, your chances are Very, Very good seeing how you are Genotype 2 and now on Sov/Riba.

 

Later,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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I finally got started on the Sovaldi and Riba.  After what seems like years of trying to get treatment through the VA, I decided to go through my insurance and it literally happened within a month.  Today is Friday and I started on Tuesday.  I have been symptomatic for a couple of years now with morning nausea, sometimes I get sick at night.  Real  bad anxiety and insomnia.  I don't know what was mental and what was really the Hep C but I am amazed.  After the second day of taking the medication, I am not getting nauseous in the morning anymore.  My appetite is huge now.  I am not getting the painful bloat.  I can't imagine how this could start working after just taking 4 days worth of meds.  But I am not making it up.  I have so much energy now. 

 

I wish the whole 12 weeks were like this but I know it might level out.  I have genotype 2b and my odds are real good.  Last night, I started getting muscle pains and today I have joint pain and a possible gout attack.  But I'll take that over the bloat and nausea. 

 

Anyway, I love this site and I will be checking in.  It feels good to be able to share good and bad with people who are going or have gone through this. 

 

I introduced myself a long time ago.  I will do another quick one here.  I had a blood transfusion in the early 90's.  It is possible I got it from that or from a tattoo.  However, I got it, I discovered it In the Navy in 1999/2000.  The Navy immediately put me on Peg/Rib and I made it a few weeks but couldn't handle the depression.  Didn't have any family around or support and the Navy is no place to take those meds. 

I attempted it again in 2008.  This time, I was placed on antidepressants.  Still couldn't do it, after the second injection, I was not right in the head.  They pulled me off it right away.   Finally, I went to the University of Colorado hospital, got a Fibroscan and stage 3 fibrosis was enough for my insurance to give me 12 weeks.  Well, they approved me for 8 weeks and if I am under 25 Viral load then they will give me the last 4 weeks. 

Just want to thank all of the regulars for being here for everyone. 



__________________

40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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Day 10 and All is Fine (but a little under the weather today)...

I think I may be fighting off a flu bug, upper respiratory is making me cough a little and I feel totally drained. Jo has had this bug for a couple of weeks now, I was hoping not to catch it.

The good news is that I'm eating very well, just had a bowl of rolled oats to keep my strength up and will have a green smoothie shortly. Getting plenty of sleep. I think I may win this small skirmish, I did get a flu shot last October but ya never really know if those will be effective since they don't protect against all variants. I feel positive so I'm doing what I can to fight on multiple fronts ... I think it's a good thing I started consuming large quantities of vegetables and fruits when I did.

Could all be the meds, I suppose, I've been taking them for a while now ... hopefully that's what's up.

At any rate, I got this ... I will persevere!

It's pouring rain and I don't have the energy or I'd go for a short walk ... think I'll make it a short day and go to bed early tonight. On second thought ... forget the walk.

 

Dave



-- Edited by Linuxter on Friday 29th of January 2016 11:19:53 PM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Gifthealth wrote:

Hi Dave.

I completed your train ride 1.5 months ago for my genotype 2b. I completely understand where you are in this process. Keep up your healthy living and positive attitude. Get lots of sleep and remember to stay hydrated. You are taking medications that are amazingly effective (especially for genotype 2b). 

 

All the best....

 

Gifthealth


 

Thanks Gift!

So you're just waiting on 12 wks SVR then ...

It's nice to get word from someone who's been right where I am now ... I can travel, vicariously to EOT ... lol.

Prior to starting Tx I was worried about having to wait a lot (among other things), while this may be true, time seems to be flying by right now. I'm conscious of staying hydrated (have a water bottle with me 24/7)  but I can use all the reminders I can get to make sure I don't get complacent. Nice to know that the meds will do the job ... I feel positive about that, thanks for making it more of a reality though. I don't feel bad at all (perhaps yet) but I am finding it hard to muster any extra energy to get more exercise. Getting to sleep is fairly difficult but once I'm there I'm sleeping very well.

 

Thanks for the vote of confidence, it's appreciated!

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Shadowfax wrote:

Where is the thumbs up emote? smile  I guess I need to find a jpeg and paste in the image.

Great news Dave!


 Tig had to light the fuse on it ... it was an uncooperative Jpeg ... It was only alive for a few minutes (I happened to have the rare opportunity to see it during it's short life). I'm not sure but I think our friend was adding the pic via code instead of via the attachments ... one of those "ya had to be there" kind of things.

 

Thanks,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hi Dave.

I completed your train ride 1.5 months ago for my genotype 2b. I completely understand where you are in this process. Keep up your healthy living and positive attitude. Get lots of sleep and remember to stay hydrated. You are taking medications that are amazingly effective (especially for genotype 2b). 

 

All the best....

 

Gifthealth



__________________

58, GT2, Peg/Riba 2010 failed, SOT Sept 2015 to Dec 2015 on Sovaldi/Riba, SVR-EOT, SVR4, SVR12!!!!!!!!! CURED!!!!!!



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Where is the thumbs up emote? smile  I guess I need to find a jpeg and paste in the image.

Great news Dave!



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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Ready for Day 9

Nothing but Green smoothies and water today ... trying to stay detoxed.

Not to worry, I'll eat some protein and minimal carbs this evening.

Seems to be working, felt pretty good all day today.

As Tig mentioned, got my next shipment of "Dragon Destroyers" today ... (thanks Tig)

... hopefully my viral load is down some from the 9.8 million at SOT.

Too early to worry about that though. It's a relief to have more ammo on hand.

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Duly noted! Glad to hear that you got your next 3 weeks supply of Dragon Ammo delivered. Lock and load....

I'll be cautious and just insert the attachment, lol!

 



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Tig,

Just in case you try any more of those Thermal Thumbs-Up Bombs ...

 



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hope you're Ok after that bomb went off ... Too bad the fuse was so short, I liked it.


Here's the latest advertising release ...



-- Edited by Linuxter on Wednesday 27th of January 2016 02:27:38 AM



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Right on Man!!!  I continued to have format trouble with that jpg., so I'm removing it. 



-- Edited by Tig56 on Wednesday 27th of January 2016 06:08:16 AM



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Let's see ... as I scrounge through my ACME Attitude Adjustment Kit ... (AAAK! for short)

AAAK! Contents:

1. Camomille & Valarian Smoothie (lots of fresh fruits and vegies added, of course)

2. Link to Harriet & Family

3. Calming Nature Sounds (CD or Link)

4. Binoculars and Camera to watch squirrels and birds in front yard eat from feeders and play in trees

4. Phone set to "No Ring"

5. Key to lock Gates

6. Slice fresh baked bread

7. Chia seed jam

8. Link to Hepfriends.com

... haven't had to break out the entire kit yet but I will be ready if/ when I need to.

 

Special - AAAK! Now on Sale* for only $29.95 at an ACME dealer near you (Instructions Included)

* Binoculars, Camera and Phone are not included

 

Dave

This notice is brought to you by Shameless Capitalist Inc



-- Edited by Linuxter on Wednesday 27th of January 2016 01:28:27 AM



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Linuxter wrote:
It's early in Tx but those of you nearing Tx, especially those who may have Ribivirin as a part of your regimen, I think you will be surprised that it's not so bad as you may be anticipating.

 

Dave


Keep up that positive attitude, especially when Ribavirin is added to the mix. It's a wiley character, be ready with your ACME attitude adjuster just in case! biggrinbiggrinbiggrin





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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 7+ years!

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Hi SF,

I'm looking forward to hearing from you regarding your treatment soon, keep us posted ...

... I've got all my fingers and toes crossed in hopes that comes very soon!

So far I've only had to take Ibuprofen once during Tx and that was a defensive move to stave on what I felt was a headache coming on ... either the Ibu helped or the headache never fully developed. I have to keep working at drinking enough water but that's likely the key to tolerating the Riba more than anything. My instructions were to also eat a little something when I take it.

Don't think the Sovaldi has much if any side effect here.

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hey Dave,

Glad to hear that. Yes regarding the Tylenol vs Ibuprofin, I had read that and it makes perfect sense. I take very few pain killers, in fact all my bottles are thrown out due to expiry and they are almost full. Seriously, if I take 12 Aspirin a year, it's a lot and the regular strength so I have been lucky.

I have to believe as long as I don't start popping the pills, the effect on my liver will not be a huge problem and no thinning of the blood that could be. We shall see what I need once I start my TX.  

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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After today, Week 1 will be complete.

Virtually no side effects to report other than not having much energy during a walk yesterday. This may also be due to a bug, flu bug going around the community right now so I may be fighting that off, I did get a flu shot and have been eating pretty well so I think if I did catch it, it may be minimal.

It's early in Tx but those of you nearing Tx, especially those who may have Ribivirin as a part of your regimen, I think you will be surprised that it's not so bad as you may be anticipating. I will add that I do drink a LOT of water every day as well as Cranberry, Orange and Lemon juice and have been eating small but regular meals throughout the day. I'm also trying to get a little exercise, at least 3 times per week.

Pharmacy called this AM and I'll be getting my second 14 day shipment of meds tomorrow (Yay!).

Tomorrow, onward to Week 2.

 

Dave

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hi SF,

Thanks for the kind words and yes, none of this is anywhere near as bad as I had anticipated. Sides may increase some and I kind of expect that but I look at it like this ... if I'm feeling something from the meds, I know they are working. They are, in fact, kickin' some *** and I'm fine with that.

Re: the Ibuprofen, it probably depends on amount of liver damage so do what your specialist(s) recommends.

I have stage 3 fibrosis and the Infectious Disease Dr said that low dosages of Tylenol or Ibuprofin (per what's noted on each bottle) were OK to take but that Ibuprofen is processed by the Kidneys where Tylenol is processed by the Liver. I choose not to subject my liver to anything that makes it work harder right now, therefore the Ibuprofen.

Actually, I take only two pills or possibly 4 pills per day if needed so it probably doesn't make a lot of difference.

Knowing that Ibu=Kidneys Tyn=Liver does help me choose one over the other.

 

Thanks SF,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Day 6 already! Good going! This is going fast.

I have a question and will research it here as well. Regarding medication for headache, you mentioned you would take Ibuprofen. What is the preferred one to take. I was told by my NP on Friday to take nothing but Tylenol. No aspirin or anything else for the prevention of thinning the blood and that Tylenol would not do it. This was after our conversation about why an endoscopy was mentioned.

The exercise you are getting sounds great. I will use a treadmill. All in all it sounds that you are tolerating this very well. This is great and gives us yet to start optimism.  You are 1 day away from 11 weeks to go. Great achievement.

 

 

 

 

 

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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Day 6

Head seems a little foggy today, took me ~ 2 minutes just to pick out a sweatshirt to wear. Lower gut didn't feel so good this AM, I hope I'm not getting stomach flu that Jo has. Gut feeling better now, brain still foggy though.

I suppose gut issues could be from changes in diet too so I'm not jumping to conclusions re: this.

Mood is pretty good, feels good to be on day 6 already ... Tx seems to be going by fast.

 

Dave

Edit: Went for 1-1/2 mile walk, felt like 10 ... walked about half speed but it's a nice day and needed to get out in some fresh air and sun.



-- Edited by Linuxter on Monday 25th of January 2016 11:22:16 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

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