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Post Info TOPIC: The Sovaldi-Riba Train is now boarding


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RE: The Sovaldi-Riba Train is now boarding
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Hi Michelle,

As Cheddy mentioned some folks need a little help and go on anti depressants. You may want to talk to the doc about that. It is not forever. Like Pablo, I did riba + interferon years ago and was on anti depressant, meds for insomnia and anti nausea to help me get through the day. Thank God my mom was still alive as I had young twins to take care of. And yeah, the treatment didn't work so I was angry and heart broken just as Pablo described. 

If need be, your different doctors may need to talk, coordinate meds, etc. It is difficult when dealing with other issues so please talk to them and hydrate, smoothies, green tea (decaf). 

Hang in there!

 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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The guys are spot on.  I did 4 months of ribavirin back in the day with the equally God-awful interferon.  I had anaemia, depression, insomnia and a bunch of other things.  Co-incidently I too at the time was looking after elderly people with dementia (I no longer do this) and had to force my ass into work each day after 2 hours sleep.  It was horrible and I was irritable, but I hung on in there.

The biggest problem was that the treatment didn't work.  I was devastated.  Had the new DAAs been around then I would have tolerated anything to get them even if that meant I needed to take 18 months of ribavirin (which, in fact, was the original plan because of my genotype, but the treatment was stopped due to, as mentioned, lack of effectiveness).

You CAN do this.



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.



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Hi Michele,

I too am sorry to hear that you are having a rough time right now. What you are feeling is a combination of things.

The meds are certainly a part of it but also in the mix is a large amount of fear, anxiety, uncertainty of what's ahead and, no doubt, some other emotions. As you know, I just recently finished taking the same meds and found all of these feelings to be, at times, amplified by the Ribavirin. I say amplified because it seems to enhance feelings and emotions that we already have. I noticed that this tended to ebb and flow, come and go throughout my Tx but as I learned to use the tools at my disposal (Drinking LOTS of water, eating no processed foods, changing my diet to include more fruits, vegtables - especially greens, working on relaxing through these feelings and getting a little exercise to kick in the endorphins to make me feel better both mentally and physically).

Hepatitis C is not something to take lightly, we often don't feel any symptoms from the virus until it's too late. If you look around here at the website you will find many here who's livers are in much worse shape than yours, many have cirrhosis and wish they had been on treatment earlier. Most of these courageous friends didn't have at their disposal these new DAA drug combinations and instead were faced with taking drug combinations that were much harder to endure and much less effective in eradicating the virus. These folks will tell you first hand that getting treated is EXTREMELY important and not to wait until the damage is done. Waiting is a BIG gamble and I respectfully disagree with the statement " that old age would get you before this disease would". I've seen too many here who had no choice but to wait and are not in good shape because of it, many now fighting not only the Dragon but fighting Cirrhosis, HCC (Liver Cancer), fighting to recover enough to get in line for liver transplants ... HCV is nothing to play around with.

You have before you the treatment to prevent all of the above, yes it may be inconvenient at times but we can help you through that and show you ways to cope during this relatively short period of time of going through treatment.

Doctor's are not very supportive in general, they have a job to do in diagnosing, assessing, treating etc. most are not known for hand holding or being your friends. They are, in fact, trained to distance themselves to a degree from patients so that they can make decisions objectively. We are the ones you can count on for being here emotionally for we have been in your shoes, we've had the same fears and dealt with the same meds, many of us, we are the ones who will share what we know to help you through this (in the scheme of things) short treatment and see you on through to SVR.

What's important right now is for you to continue to take your meds, continue to reach out to us here, continue to use the tools at your disposal (Drinking LOTS of water, eating no processed foods, changing my diet to include more fruits, vegtables - especially greens, working on relaxing through these feelings and getting a little exercise to kick in the endorphins to make me feel better both mentally and physically).

We'll help ya get to SVR, you need to keep your eye on that prize (and what a huge dividend that prize does pay). We'll get ya there but you also need to grab the reins and take control. So stay the course, you'll do fine, concentrate not on the what-if's but what is real, now, take things one at a time, baby steps (if you will), you've got this.

You CAN do this, somewhere inside of you, you know this ... hold on to that person within, grab the reins and move with the motion, moving forward and on, soon you will find your pace, use these tools and be done with Tx before ya know it. You'll look back and be glad you got back on that horse and are riding the ranges, enjoying life ... Keep Your Eye On The Prize!

 

Your friend,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hang in there Mitch. Sof really has no S/X, so it's the RIBA. That should level out soon, so stay with it. Give it more tim. Please don't quit!!!  What you are going through pales in comparison to end stage liver disease.  You can and must do this.   The RIBA S/X has its good days and not so good days, so many of us have made it through treatment, feeling like you do on your  good and bad days, your not alone and many have been where you are now and gone on to SVR. Remember it's one day at a time, you can do it!!    RC



__________________

 M-61(3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18 https://aasldpubs.onlinelibrary.wiley.com/doi/pdf/10.1002/hep4.1280   



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Hi Mitch

So sorry to hear you are having these problems.  But please please don't stop the meds.  The hepatologist who said old age would get you before HCV will is wrong, or was speaking at a time long ago when the longterm effects of HCV were less well-delineated, or you mis-interpreted him/her.

My hunch is that most of the sides are from ribavirin.   If they are from sofusbuvir though then they will almost certainly subside over the coming weeks.  

The other question is whether the new cardiac drug is playing a role.  And what role your anxiety?

Regardless of the cause you need to find a way to cope.  Can you take some time off work if needs be with sick pay?  Lots of fluid and relaxation exercises.  And get your hepatologist to check you out properly.

11 weeks to go to save your life.  It's a chunk of time but not super-long.  Hang on in there.

Pablo



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.



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No Mitch, this is not necessarily going to get worse.  I am so sorry that this is hitting you so hard. It sounds really overwhelming. I went through this same treatment and it's mighty.  Some people have to go on antidepressants for a while, especially during riba treatment.  

I know there are people who think you should and can just change your negative thinking.  Sometimes that's true and is good advice but I generally disagree.  We would change if we could. It's like really wanting to run a marathon, but your leg is broken.  Doesn't matter if you change your thinking.  Perhaps you can talk to your GP or PCP since your hematologist isn't your favorite.  But talk to somebody, and now.  You don't want to interrupt the treatment if possible.

I don't know anything about your medical profile, but maybe you can wait.  There are new meds in the pipeline, so it's not hopeless. There are other members here who can are better informed in this area.  Again, talk to a doctor, someone with experience what can make adjustments.

I hear your suffering, Mitch.  I want you to get help and I want you to get cured.

 

Best.

 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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no I cant do this you guys, I am feeling soo much, I think something is wrong, most everyone said I wouldn't really have any side effects for a couple weeks, I'm only 6 days in and I am all over the place, I'm dizzy, brain fogged, confused, tired, I want to cry and I'm irritable.

The ONLY time I feel "normal" is when I first wake up in the morning before I take my meds.

I cant work like this, I work with elderly people with alzhiemers, I'm usually quite patient.

I had a hepatologist tell me once that old age would get me before this disease would, maybe I could wait????

The doctor who prescribed me the meds is my gi, he called them in and said come see me in 2 weeks.....he is NOT  a supportive guy at all.

I don't want to feel this, is this only going to get worse for me???



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45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



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True that, Dave.  I grew, too, and more self control has been a blessing.

Michele, 

Keeping your eye on the prize is excellent advice.  It's not about how you feel, it's about getting cured.  You may have to take yourself with a grain of salt when you can. 

 

My best wishes for you.  You may be surprised.  You can do it!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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All sounding very good Michele, you seem to be adjusting well, you're a natural, LOL

Yup, just keep your eye on the prize as things ebb and flo ... find ways to stay in control (i.e. drinking more water, change of environment, eating healthy, change mood via music, calling a friend or watching a movie).

You'll do just great and I know what you mean about just getting on with it and getting through this chapter and back to living life.

I found treatment made me grow, learning more control of things was a big part of that.

So glad to hear that the anxiety is less pronounced now, it's natural to experience that, I think we all do.

 

Be Well,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Thanks Dave,

I am drinking lots and lots of water and I am spending a lot more time in the bathroom lol

I must be the odd duck I am experiencing mild side effects, I think my side effects are from the sovaldi, because I DO NOT experience anything when I take my evening ribavirin, mild side effects start about an hour after I take morning sovaldi and rib and last off and on throughout the day by the evening I'm ok.

I just feel a bit medicated, yesterday I got the "really tireds" twice but they were manageable, I get the dizzies through out the day but not bad at all, my tummy burns and my throat is sour, I think I can take Prilosec.

My GI wants to see me Tuesday because I have a history of anemia.

My cardiologist put me on cholesterol meds yesterday to try and reverse some plaque build up in my carotid.

I'm pushing through, most of my anxiety has subsided, I'm ready to get this chapter over and start a new one

xoxoxox

Michele



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45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



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You're doing great Michele,

Staying hydrated will help keep any side effects at bay, I know I sound like a broken record but I just went through treatment on Sof/ Riba and I needed to be constantly reminded until it was routine to drink a gallon of water a day. Lots of trips to the bathroom but I got used to that too, it's the one thing that REALLY, really helps make the ride so much smoother.

Congrats on doing so well, we're right here with ya, carry a container of water with you everywhere ya go, I did and many before us have done just that to constantly remind ourselves to drink more water.

I doubt you'll experience much of any side effects for weeks, it was 4-5 weeks into Tx before I started to get some very subtle tiredness, by that time I was drinking enough water daily to help keep it all at bay.

Doing great, glad to see it ... we're proud of ya!

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hello Everyone,

I made it through the night smile let me share my experience thus far but first I would like to thank EVERYONE for your support and encouragement.

I told ya,ll that I have panic and anxiety, I suffer from PTSD, along with my anxiety I have developed different fears and ocd (typical )

one of the fears I developed was taking medications, this past year since my divorce I have worked on that one, I had a chance in 2014 to take this treatment but I didn't have the support to back me.

Liz Thank you soo much for your words especially, you were so right when you said "I know that hearing that the side effects are manageable from people who do not suffer from anxiety is not very convincing"

I use to have anxiety/panic attacks and my ex would say "JUST STOP THINKING ABOUT IT" You know as well as I do that IT DOES NOT WORK THAT WAY!

I will probably be leaning on you Liz <3

I am hypervigilant  and hypersensitive to EVERYTHING including meds, My cardiologist  is still fascinated by the fact that I know when I go into afib and when I go out of afib, I feel EVERYTHING that goes on in my body, and it really sucks sometimes, I live most of my life in fear but Ive done so much better since I got rid of my baggage (my ex)

I took my first dose of meds yesterday, I felt like my mouth was watering a lot and my tongue was alittle tingly my taste buds seemed to have enhanced a bit, this has happened to me on antibiotics before.

I took my ribavirin in the pm and NOTHING !!!NO SIDE EFFECTS WHAT SO EVER

I didn't sleep well last night but I never do.

I took my morning meds and NOTHING!! I'm a little sleep deprived and feeling a bit dizzy from the Xanax but no mouth watering or tingling this morning.

I understand that once the med builds up there may or may not be other side effects but I'm prepared for them, ya,ll have been great! Especially you Ms Liz, I know me, I would have NEVER taken that first dose without ya,lls support and encouragement. Thank you!!

xoxoxoxo

Michele

 



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45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



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Hi Michele- Sounds like you got the first ones down the hatch.The very first time I took sol/RIBA they had me do it at the trial Hospital, they watched me for about 45 min then sent me on my way. They said that if you were to have a S/X it would happen in the first 1/2 hour or so. I couldent even tell I had taken anything!!About 10 days into treatment I found I couldent sleep and took a sleep aid each nite. At about 20 days the RIBA kicked in full tilt and I noticed a inward vibration when I sat still, so I kept busy! The RIBA rage is not as bad as its said to be, you will be fine at work. Just avoid the situations that set you off. After a couple times You will know when the rage is building up and you will be ready to take action to calm the situation.  You could get tired from day to day so pace your self, that's very important. Pace your self- did I mention to pace yourself .  RC



__________________

 M-61(3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18 https://aasldpubs.onlinelibrary.wiley.com/doi/pdf/10.1002/hep4.1280   



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Try to get out of your head as you are over thinking this. Stay busy and drink your water and stop watching the clock. I know it is easier said than done. But you can do this!!!



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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Almost an hour and a half since I started meds, Ok ya,ll I have a bit of a metallic taste in my mouth and feel like I'm producing a lot of saliva??

My sinuses are a little stuffy but this is a typical thing for me, I live in Texas and have hay fever so I suffer chronically with allergy symptoms.

Does anyone know when an allergic reaction risk will pass?

 

xoxoxox

Michele

 



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45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377



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Great Job Michele!

Good for you, you've got this!!

We'll be right here and help keep you on track (i.e. Drinking that Water).

Tig's got battery powered drones he sends out if you are not drinking enough WATER, LOL

You're going to do just fine. Just keep checking in and congrats on getting started ... Welcome on board the train!

 

Dave (aka Linux)

 

 

 



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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I made it!!!! About 30 minutes behind schedule but the conductor pulled me up . I'm going to try to stay busy today.

I ate 2 bagels, took meds, and I'm working on my first bottle of water. YIKES You guys!!!! I am so pumped right now.

Ya,ll are such WONDERFUL people!! Lets do this!!!!

 

xoxoxox

Michele



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45 yo, genotype 2b, SOT 7/11/2016 ALT 16 AST15 VL 4080377

Tig


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This is the place Michelle! Time to get this train rolling again. All aboard.........

image.gif



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Yes that is cool and what's also cool is the prodigal daughter returning home. biggrin Good to hear from you Taz! We've got a bunch of new members since you were last here but it's still the same friendly, caring and helpful oasis for those still fighting the dragon. It's good to know you are doing well and I hope you visit more often in the future. smile



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57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

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Tig


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Hey Taz! It's good to hear from you. So glad to know that you're doing well and 2 years free of the Beast. That is very cool indeed! smile



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi! Taz here. I haven't been in here for a while... but I did the solvadi & riba & interferon in 2014 (one of the many treatments I did) so congrats on ur labs..  I can't believe I have been home free for two yrs!!! these ppl were the greatest on my journey in here..

Peace out

Taz



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 



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Now, where is that Scott?

How ya doing bud?

You got a VL to be drawn soon, no?

Let us know how everything's going. smile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Labs are beaut Scott! Just that ALT alone, should start making you feel better now.

Just curious - how high was your prior alk phos?

You should be doubly congratulating yourself on a very hard job, very well done. 

You can look forward to the riba ebb now. Very happy for you. smile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Excellent looking labs there, Scott, and great to hear you`ve reached the finishing line... congratulations!!  biggrin

Good luck, keep us updated!! 

 



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Jill 

(70 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Wow, your doing something right no doubt. I thought mine were great but your AST is even lower. Keep it up Scott!



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57 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52,+115wks = SVR-115

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Wow Scott,

check out those numbers!!! Congratulations. Now just try to cruise through the next 12 weeks.

Syd.



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



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holy moly, I have never seen ALT and AST that low. Good for you Scott! 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 

Tig


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Awesome indeed, Scott! Like a newborn biggrin



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Very impressive numbers!

Yea!



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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Looking good Scott

The ALT and AST are amazing! Keep up the great work!



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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ALT 11

AST 16

Alk Phos 47

hemoglobin is 12.6

 

 

So since they cut my Riba to 800 mg, my Hemoglobin has gone up 1.6 points. 

My AST/ALT has never been this low since I discovered I had Hep C in 1999.  I have quit drinking many times and they never dropped into the proper range.  the highest they have gotten was over 900.  So, I am most excited about those enzymes.  I can feel my liver healing. 

 

Thanks for all your support. 



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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Hiya Syd,

Doing great, feeling better already, still a little shortness of breath and energy level is still down just a little but I feel like I'm bouncing right back.

Been doing the green smoothie thing and doing chores that I needed to catch up on ... yard and auto maintenance stuff mostly.

I've been posting over at Post Treatement forum, sorry I should have said something.

http://hepcfriends.activeboard.com/t61991990/sov-riba-eot-just-sayin-hi/

Thanks for asking about me smile

Hope things are going smoothly for you now ... you're getting there ... what's your EOT date?

 

Be Well,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Great to hear Scott ... Ya made it buddy!

Congrats!!

Good Job.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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Congratulations Scott! You have finally arrived at EOTville station, take your carry on and leave the train, stage right.... Good luck on your tests, I'm sure you will do just fine, but the wait for those results is always a challenge. Stay on track with your diet and hydration. If staying busy with projects helps you pass the time, so be it. I did the same thing and it pays off in many ways. Took me awhile to accomplish things but staying active is a big plus.

We'll be waiting on some good news. Check in when you can! smile



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Congrats Scott way to go!

As far as counting goes, just be glad you are not as anal as I am when it comes to stuff like that. LOL is you have excel....

 

 

 



Attachments
Anal.xlsx (13.2 kb)
__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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Well, sorry to get this song stuck in your heads.  Sorry, I haven't been checking in too often.  I honestly  was doing what was best for me and that was staying 100% busy with projects.  This kept my mind occupied. 

 

Anyway, I just took my last morning dose.  I know I said my last day was the 19th but it is the 18th.  I started on the 26th of Jan.  So Tuesday to Monday is 7 days so 12 weeks would end on a Monday not on a Tuesday.  Why is simple math so difficult sometimes.  I can do phase angles, trig, waveforms, but can't figure out when 12 weeks ends.  LOL. 

Going to go get my final blood work done today.  Well, my CBC and CMP today then 4 weeks for the VL, and then another 8 after that for my final VL.smile

 



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40 y/o M, GT 2A, Dx 2000.  Attempted 2 Tx with interferon and rib. Fibroscan F3; Tx 3 - SOT 1/26/16 Rib/Sov.  EOT 4/18/16.  AST/ALT 16/11.  VL = UND.  EOT + 4 tests will be 4/16/16



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Hi Dave,

i know you're still feeling tired and foggy brained, but do you notice you feel a bit more like your 'normal' self emotionally yet? If not, it's around the corner. 

Syd



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



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Dandelion-Mandala-Spring1.jpg

Health is the greatest gift, contentment is the greatest wealth ~ Buddha



Edit: Bold Text - Dave
-- Edited by Tig56 on Friday 15th of April 2016 01:10:14 PM



-- Edited by Linuxter on Friday 15th of April 2016 05:32:09 PM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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I may be goin' out on a limb here but I think it only counts if ya forget what the heck you're doin' and have to back in the other room to remember.



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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The coffee shuffle ten times a day better equal some points on the exercise scale! That's about all I can do, that and run to the bathroom! I can still touch my knees. That counts right? If not, tough....



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Lots of rain outside, less fog inside today ... although I just went to the kitchen to get another cup of coffee and realized I was standing in front of the coffee machine with a mouse in my hand instead of my coffee cup ... blankstare

Oh well, at least I keep myself entertained ... biggrin

 

Dave

p.s. Does having to walk back to my desk to get my coffee cup count as exercise?



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Thanks SF,

I so greatly appreciate your being by my side on this ride!

Won't be long and you'll be arriving at the station ... and HepC-Free too!!

I hope you are doing well, I'll read your latest posts to see how it's going.

Hang in there, moving right along ...

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Linuxter wrote:

Let the clensing begin ...


        Did someone say Fleet?

        Great job you did Dave and it was a pleasure being on this whole ride with you.

 

        

 



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *

Tig


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Seriously, it may take a few weeks to start feeling better and as long as 6 months to get clear of it completely. The rage and moodiness got better after the first month or two, but we are all different and the lengths of treatment, including dosages, were different too. Your mileage may vary and I hope you're fortunate and lose the post tx sfx quickly, but be prepared for anything. Just know that since you're done, it won't get worse. That's something to focus on. Realize the success you just achieved and do your best to fight back the feeling to blow up. I know you have it in you... It'll happen, I guarantee it!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Post was not constructive, so never mind ... Ommmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm

mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm

mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm

mmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmmm ...

 

D



-- Edited by Linuxter on Thursday 14th of April 2016 02:28:18 AM

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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

Tig


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I think treatment has an effect on our hearing, regardless of protocol. Two rounds of Interferon, along with the Victrelis, have trashed mine for good. My tinnitus continues to worsen, but I was given high doses of Gentamycin antibiotic at one time and I believe that was the beginning of the end. Treatment just capped it off. If you don't get some relief in the next few months, it's worth seeing an audiologist or ENT doctor to get an opinion.



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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I am glad you said that about sensitive to sharp sounds Dave. I feel like the TX made me have bionic hearing. One day at work a few months ago, someone walked by me in shoes that make the flip flop clacking noise and I said out loud but not too loud, "I'm gonna rip her f'in head off". I have been off TX since Dec and still am sensitive to sound. Maybe its menopause lol. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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Let the clensing begin ...

Keeping up on water consumption and made a batch of green smoothies to drink.

Tomorrow I'll work on a little exercise even though it looks like rain, if my balance is better then i'll get on the exercise bike for a half hour.

I still plan on taking my time to get back into the swing of things, it may go quickly and easily or it may take a bit ... I'm playin' it by ear.

Being post Tx is a HUGE shot in the arm ... if nothing else it's a great psychological boost.

All I can say is "Hang In There", those on Tx and those who will be ... it's all worth the effort!

 

Dave

I still feel some agitation, rage and sensitivity to sharp sounds ... that's why I'm hitting the tunes w/headphones right now ... it helps.

To all, best wishes!



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Canuck - Your chakras already seem to be in perfect alignment, must be that High Cascade living ... OMmmmmm ...

(And the Easter Tree, of course). Happy Moonbeams - OMmmmmm ... (Now where did I leave my tabla and sitar confuse )

 

Syd - They say time is relative and your being a "Senior Member" is but a moment in time ...

A "Senior Moment", if you will ... smile

 

Jill - I must say you look delightful in your party frock and dancing shoes ... we're Very glad you're here smile

(I do intend on taking it easy for a bit and treating my mind and body well ... baby steps for now ... LOL)

 

Wendy - Just for the record, that's not me doing the back flips or the Mean, Moonwalk ...

loved "Can a white man do this", LOL - Glad you like the avatar ... smile

 

Jimmy - I may be having a "Senior Moment" but I distinctly remember you debating not wearing underwear in another thread ... so loosing your pants now is not the image I had hoped to have burned into my memory of this joyous party ... I'm glad you at least have a fig leaf ... whew! smile

 

Party On Dudettes & Dudes,

Dave



-- Edited by Linuxter on Wednesday 13th of April 2016 07:32:10 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 

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