Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> 26 months post EOT update
Post Info TOPIC: 26 months post EOT update
dustbear


Senior Member

Status: Offline
Posts: 230
Date:
RE: 26 months post EOT update
Permalink  
 

Thanks Scruffy!  Nice to know you are peeking in!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Scruffy


Guru

Status: Offline
Posts: 500
Date:
Permalink  
 

Hiya dustbear

Good to see your getting on with life post tx. I think I was right behind you in tx. My 2 year eot will be in May. Keep up with the walking if you can. 

Be good to your self.



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Greg D


Senior Member

Status: Offline
Posts: 159
Date:
Permalink  
 

Hi Julie,

Thank you so much for your post. Hallelujah on your SVR and improved liver health. Very proud of you and how far you have come.



__________________

60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Julie,

Thanks for stopping by. It sounds as though you still have some residual problems, but don't we all. Enjoy life, free from the dreaded virus. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
dustbear


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

It's so nice to have a family that I can rely on! 

You are all in my hearts and thoughts, forever.

 

 



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Dustbear,

So glad to hear that you're doing so much better! Congrats on the SVR and then some, sounds like you're finally getting back to some normal living, as I'm sure you know, we all wish you the very best.

Thanks for the update, it's great for those of us on or nearing Tx to hear these SVR stories.

 

Best of luck in all you do,

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

 Hi Julie.
 Thanks for stopping by. It's great to see how you have recovered so well, so far, from HCV and from a rough ride trying to eliminate it. You certainly had a bunch of obstacles along the way but you stuck with it and I certainly commend you for your determination and stamina. Seeing your success sure gives those still fighting the dragon hope on the days when it's hard to have much. Keep doing what you're doing, enjoy being Hep C free and stop by again when you can. smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Julie,

It's nice to see you doing so well after the two years EOT and even better knowing your SVR remains strong! You battled incredibly hard and while the recovery continues, after witnessing your strength, I have little doubt that you will achieve the goal you seek. Your message is very powerful and is a valuable guide to those reading your journey.

I wish you continued success and really enjoy it when our Veteran members come by to share their positive experiences following treatment. 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Julie, good to hear from you! 

You went through so many difficulties to reach SVR, and I`m so pleased to hear how well you`re doing now.  You never gave up the fight, even with so many setbacks during your tx, and your SVR was very well deserved.  Your courage and determination during the worst times was really inspirational! 

I totally agree that being proactive with our health before, during, and after tx is so important, and can make a huge difference.  It`s always difficult to say whether any post tx health issues would have happened anyway or whether they are a direct result of the tx drugs, and in most cases we`ll never know, but the main thing is that you`re keeping a positive outlook and doing all you can to get back into good health.  The fact that you are still undetected and that your liver is recovering so well from the onslaught of the virus is wonderful, and must have been such a boost to your morale! 

By the way, I`m with you on the bad memory, I just put it down to my age though! Lol

Thanks for stopping by with your update, we`re always pleased to hear from you, and from any of our members who have made it through to the other side! 

Take good care of yourself, and all the best of luck... smile xx

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

I love reading these updates. Thank you and bless you. Just when I wonder, is it me, my age, etc? Then I learn it is a symptom someone else experienced and I breathe a sigh of relief. Thank you Dustbear. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Rufus1


Member

Status: Offline
Posts: 39
Date:
Permalink  
 

Hi Dustbear So happy your feeling better. Keep it up and good luck A

__________________

start treatment harvoni 12/8/2014 undetectable 01/07/2015  EOT undetectable  14 weeks svr  9 month eot Undetectable
dustbear


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

 

Its long overdue for an update. Its been just over 2 yrs since my EOT. The 48wk interferon/riba treatment was cut short 3 weeks early due to 2 overlapping problems: myositis (inflammation of the muscles but real words: I lost every muscle in my body) and interstitial lung disease. FYI, I was put on Boceprevir for about 30days but my body rejected it.

Please Note: For anyone reading this and are new to treatment or supporting someone, please take heed. Each person will have different reactions, none or little at all, and from my observation no two are alike.

All blood work levels are now back to normal, the virus is UND (yay) and liver biopsy & fibroscan show my liver has healed from 2.5 to between 1 & 2.

Hair grew back right away, taste buds and appetite returned, light and noise sensitivities took about a year to settle, sleeping is just back to normal after 2 yrs. Moods are okay but still on half a citalopram; I tried to go off but the mood swings came back. I developed blood clots in 2 of my fingertips resulting in permanent damage. This means there is no blood circulation to the fingertips which means they get cold and painful. I have to wear mittens to go into the freezer!

Due to my immune system taking a hit, my herpes #2 surfaced after a 30 year absence and I'm on meds for a year to kick it in the butt. Viruses from the 80s seem to have taken a liking to me.

The only thing I am struggling with is the muscles in my upper legs, hips and groin. Its weird and hard to explain as all my other muscles are normal. Upon reflection, this area was the hardest hit and until about 4 months ago walking was still painful. I got depressed as my weight increased and overdid the exercise thinking Ill either survive or die. Well I had a major setback but recovery is getting better due to the physio Ive been doing. I was in top physical shape going into tx and I dont know if this is related but now I have bone spurs in my neck and bulging discs in my lower back. The doctors say this is normal for someone my age but its hard to believe because Ive been stagnant for almost 3 years! How this is possible is beyond reasoning. The most I do is climb stairs and walk now. My memory was really bad on tx but now I think its just menopause! Hehe At least thats what Im going with now.

My motto still remains ask questions and question everything. Be proactive in your healthcare and take notes. A key ingredient to making this treatment a success was keeping my other organs functioning. I kept my hep C doctor, a naturopath and my GP all very busy! A thorough cleansing was needed in the end with my naturopathic doctors help utilizing herbs, elimination of certain foods for 6 months, and lymphatic drainage therapy. If anyone has any questions, please feel free to contact me.

I am so grateful to everyone on this forum. I could not have done it without you and I think about you all very much. Its nice to see the newer treatments and many success stories. My hope is that one day there will be a vaccination and a cure to kick this dragon goodbye forever!



-- Edited by dustbear on Sunday 31st of January 2016 05:41:23 AM

__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> 26 months post EOT update
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.