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Hep C Discussion Forum -> Post Treatment -> Two Questions
Post Info TOPIC: Two Questions
Mike


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RE: Two Questions
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Even though I have not experienced treatment yet, I think if I may, it seems that people going through the treatment usually have connective joint muscle pain. You mentioned stretching twice a week, and that it helps you to feel better. I am wondering if you stretch one more day per week, if alright with your specialist, that would help more. Also, I think after stretching, or any form of exercise you are doing, if you can find a hydrotherapy massage center close to where you live, and do the lounge chair massage. I am telling you, this works for me and my wife. For us it is located at our gym we belong to. I would encourage you to try these two suggestion out, you will not be sorry, it is therapy for sure.

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1-18-16 referred to gastroenterologist;  AST 191 ALT 246, Viral Load 1,976,000, Alpha Feto Protein/Negative for Cirrhosis. Genotype 1 a. Tx began 3/9/16 Harvoni, 8-12 weeks

 
Gracie


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Although I'm not officially SVR yet, I do still get UQP. Not as much, and not as often. Seems to be when I overdo it or have a busy physical day.

My muscle aches have subsided. My hands still ache, bjt not as often. Feet seem to be good now, and during treatment, I hobbled around some mornings.

I expect most will see improvement, along with healing should that take place. Give it some time. You've got lots of time now. 



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
dustbear


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In answer to question 2. it has been over 2 years since EOT and I am still struggling with aches and pains, mostly in neck and from the knees to hips.  I do stretches twice a day and it helps a lot. I have tried a series of photo light therapy last year and it reduced a lot of swelling in the lymph nodes. Heat and stretch, and some strengthening exercises from my physiotherapist is all I can manage. It took almost 2 years before I could walk without pain but I can now!  Hang in there.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Tig


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Hi Ari,

You mention two questions that so many people ask about and there really is no set answer for them. There seem to be many complaints of RUQ pain at every stage of HCV. Since there are no pain receptors in the liver itself, the discomfort you're feeling originate in the capsule surrounding it and the tissues supporting it. There is also a section of the large intestine that loops through that area and if you are one of the lucky (?) ones that suffered with bloating and gas during treatment, you may be experiencing some digestive discomfort from the intestinal involvement. It's just difficult to say what is responsible in your case, but my explanation may be responsible in whole or in part. Those patients with a lot of liver inflammation will tend to feel more discomfort than those that don't and that's because all of the tissues capable of feeling pain, are. Any significant bloating, fluid retention and some irritation from the bowel can cause a lot of discomfort. With SVR, these tissues will likely start the healing process, a reduction in inflammation and bloating and this will lead to a reduction in your symptoms, I hope.

Many people here have mentioned relief, but it does take some extended time in many cases. These problems took years to develop and unfortunately it may take a bit longer for them to resolve than we would like. But knowing that the odds of improvements in these areas is good, will hopefully give you hope for some future relief. The same thing goes with the muscle aches and pains. What is causing the increased joint and muscle pain is really an unknown. Whether it's the action the medication has on the inflammatory process is just a guess on my part, but it seems to affect a lot of people on these new DAA's. I think it's all part of our Dragon's way of kicking us one last time on it's way out the door. Fortunately, we get the last laugh as that door hits it on the way out! 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Ari-anna


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I would really appreciate some help/advice with these two questions:  confuse

1) Post treatment has anyone had any relief from the chronic ache in the upper right quadrant that Hep C sometimes causes? Or know of any research into this?

2) Does the post treatment ache in muscles and joints go away with time?

Thanks 

Ari

PS, yes I do drink heaps of water smile



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
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