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Hep C Discussion Forum -> General Discussion -> Mount Sinai
Post Info TOPIC: Mount Sinai
Shadowfax


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RE: Mount Sinai
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Great news! It just made my day!

Best of luck and happiness for you both living without that looming over you.

Cheers



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
mallani


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Fantastic news Laura. All the best for you and Tom. Enjoy life.

Thanks for sharing your story. It shows members what real trauma is. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
wendyo


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What amazing news Laura and Tom. So happy for your family!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
wmlj1960


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That is awesome, awesome news Laura. This really makes me happy to know that Tom has beat HCV and HCC both, and that you are recovering well also. You guys have really been through the ringer with this and came out victorious. You are certainly real warriors.
 I'm sorry to hear about your dad but I'm sure he left us with peace of mind in knowing how well You and Tom are doing.
 Yes a big celebration is in order. The vacation can wait but it is time now for a celebration party. So lets dance, dance, dance and a big congratulations!!!

Keep us posted on the continued progress with you both.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Tig


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Hi Laura (and Tom),

That's fabulous news!!! You have made my day a special one indeed! Congratulations to Tom for beating the Dragon and it's evil twin HCC. Such a fighter he has been and having you by his side, and him yours, has proven to be a match that no adversary could beat. Well done to you both!!

I will look forward to your progress reports and we will all appreciate your continued help and advice here on the forum. Your knowledge and the will to succeed has been an inspiration. If you would like to contribute to the forum, the link is at the bottom of the Homepage, in the Community Funding section. But I want you to know that having you both here and sharing this great news is the best contribution you could have ever shared!

Good luck to you both! smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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tomyboy


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Tom and I are both happy to report he is CLEAN.  We are psyched up and happy but also sad to hear that his liver surgeon also has patients who are having a difficult time getting approved for harvoni...why is that?  It just doesn't seem fair.  I plan to lurk to the site still from time to time though.  Hopefully we can give others the support and kindness that were given to us.  Me, my pain management doctor gave me an monster nerve block, he felt I needed one for all the stress I've been going through but hopefully that will be my last.  THANK YOU TO THIS FORUM.  Tom and I have been on hear for quite some time and you have all been here through our whole journey.  It's amazing for me to be able to say he is HEP C free and CANCER free in the same sentence.  Believe me, celebrations will be in order.   But no big vacation until next year.  I want to be sure we are both healthy and able to enjoy our next journey.  Wishing you all the best, and cannot thank you all enough.  By the way, how do you donate money to this forum again?  We would like to donate to help fund the forum.  This is a terrific group of people and the monitors are awesome, knowledgeable, encouraging and understanding.  You really are wonderful and I am so happy I found you over two years ago. Keep up the work.  Hopefully someday, everyone will be cured and we will all just be on here to tell our stories.  That's my wish for you. 

Fondly, Laura and Tom  



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Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

mallani


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Hi Laura,

You've made a great recovery from your surgery. Sorry to hear about your Dad.

Fingers crossed for Tom's results. You guys deserve a break. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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Hi Laura and Tom,

First, I'm so sorry to hear about your Dad. That kind of thing never comes at a good time, but especially now. You have all had more than your share of troubles. You have my deepest condolences for your loss...

I'm so happy to hear that you're back to work, just take it slow. I know that must feel pretty good to get back into action after all you've went through with surgery. I went through several surgeries that affected C1 through T1, they're all fused now anteriorly and posteriorly. Wore a Halo device for 6 months, couldn't swallow well at all. Pay strict attention to your diet. I still have trouble 14 years later, doesn't seem like it could be that long ago... I'd like you to look at our Nutrition thread here on the forum, we have some new warriors that have started a "Green Smoothie Ranch" section that is full of great nutritional ideas. It might be just the thing you're looking for.

Good, no GREAT news that Tom has maintained his SVR status, WOOHOO!! We will all say a prayer for him, you can count on that! It's time for you both to be free of these health issues and take that nice vacation you've been wanting to experience. It'll happen, I know it will. Let us know just as soon as you hear the good news. We're all keeping our fingers crossed and sending prayers for you and both of your Tom's... God bless!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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tomyboy


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Thursday is our big day.  Tom finds out if the ablation and radiation worked.  I pray it did.  He has been four months hep c free so I know the "dragon" is officially removed from him.  We did hear from his doctor that many people are still having insurance problems getting the harvoni approved.  I can't understand that. I'm glad my hubby did and hope the tumors are gone as well.  I'm back to work full time, just back today.  I started out in the beginning of the month part time, and was to start full time last week after the holiday; but then my dad passed away Monday.  It's been a tough week, he was 83, diabetic had MRSA in the hospital but there was NO WAY any of us expected him to pass.  I'm still doing my PT and  speech therapy and my balance has improved tremendously.  Still on soft diet but am getting very creative at making things I can eat, lol.  I go to pain management doctor after tom gets his MRI and meets with the oncologist and surgeon.  Please pray for us.  Sometimes I feel that a black cloud is over our heads.  we are such good, generous, caring people who don't deserve all of this.  I'm hoping to get good news Thursday as if not, it will push me over the edge, well not totally, as they can do another ablation and radiation again, but that's not what we want.  Anyway, I will update all on Thursday.  Just wanted to stop in and say hello and let you know how I've improved as well.  Hope you all are fighting the battle of hep C.  I love this forum as it gives me a chance to vent and cry all at once.  Wishing you all the best, I know my dad is looking down on us now and praying my Tom gets great results.  My dads name was Tom as well. 

Fondly,

Laura and Tom



__________________

Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

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