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Post Info TOPIC: SVR Today
Matt Chris


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RE: SVR Today
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Hey Ari Anna

Super Congrats on your 12 weeks EOT SVR,  and WTTROYL or "Welcome to the rest of your life"

Keep on truckin,

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Tig


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Hi Ari,

Thanks for the update, you have an excellent way of delivering the news! I think you have a doctor that is a real keeper. She has a wonderful way of keeping you informed and sounds very concerned with your care. That's one great big plus!

I like your attitude Ari! Your statement "There's nothing to worry about until there's something to worry about" is perfect. I'm going to remember that bit of advice and use it.

Keep us in the loop, please. I enjoy hearing from you and will be anxious to know how your procedure goes, we all will. Now get out there and rustle up those unruly little chicks! That's a funny pictire in my mind right now! I can see you going one way and a dozen little chicks going in all directions, lol! Good luck!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Sydhanrahan


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Hi Ari,

so good to hear that your blood tests looked so positive.

a big thanks for all the information you shared.

And the end of the post, when you stop writing to get the chooks out of the veggie patch, brought us all back to the "life rolls on" so just enjoy the big and small incidents of every day, rather than peering out the window looking for steam rollers which aren't in sight yet. It was inspiring.

Hugs,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wendyo


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hi Ari,

As I sit with my coffee and read your post I want to thank you for sharing all the items your doctor and you discussed. Very informative. Glad your next procedure is on the books and we will be here cheering you on. Keeping the faith!

wendy



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Ari-anna


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My son and I saw my Gastroenterologist today. Doctor is very happy about the SVR. She also said:

That my diabetes test results are excellent - better than the average woman in my age group.

My iron levels, stores etc are all good, no supplements needed.

Albumin in normal range, just. Had been below or dangerously below for last 5 years so definitely improvement.

Liver enzymes all in normal range except one that is usually out with cirrhosis. Platelets also low as can be expected. On the accumulative results on the computer screen my son and I could see way less red figures than a year ago.

That coffee is good for livers is not just a rumour, it's pretty much proven.

There are rumours that statins may be good for cirrhosis - that new evidence was coming out that it is ok to prescribe. She is writing to my Dr to do cholesterol tests and that if I need them it's ok to prescribe statins.

That ibuprofen for pain relief is not a good plan if you have varicose veins in oesophagus (which I have).

That having large numbers of people cured of Hep C is recent and there is not yet much data on what to expect, however with regards to cirrhosis the two main factors to whether it can be reversed, apart from level of damage, are alcohol and obesity.

That she could not say whether my liver would be one that regenerates or not as it has decompensated in the past. It may recover, it may not, we will know in a couple of years. (As I don't drink nor am I obese I think my chances are good.)

For the first time in the more than a year since it was first detected she called my lesion cancer - she has never said that before, and she is cautious about what she says so it probably is, although we won't know for sure until it is biopsied. She said my chances of getting liver cancer are only slightly less than they were before SVR and that if the current lesion is cancer then my chances of getting it again are higher than if it isn't.

Doctor said I need to keep taking the Fortisip (high protein/energy supplement) for at least the next 6 months to make certain I am well nourished before and post surgery. And she reminded me to always have supper so my liver has a steady amount of food coming in - no long breaks between meals/snacks!

When I have the lesion ablated I will be in under the Gastro Dept and they will be watching out for decompensation and be right onto it. She has already booked the procedure  and is expected to happen in the next month or so.

My son and I came out quite positive and confident that the situation is as good as it can be. And there is nothing to worry about until there is something to worry about!

Right now I'm going to get my free ranging chooks back into their coop before they destroy the veggie patch.



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
Cinnamon Girl


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Fantastic news, Ari, I`m so pleased for you!!   Big congratulations, you did it!!  biggrin

Wishing you all the best of luck with the ablation procedure, do keep in touch and keep us updated. 

Your future`s looking very bright!! 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Shadowfax


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Tig56 wrote:

Hey SF,

See what happens when you ask someone on Riba for help? It warps their sense of humor! Be very careful with Dave, he's a character.... biggrin

 Yes well I have always had a warped sense of humor (Humour for the Canadians, the Kiwi's and British people in here) . I hope you still aren't upset Canada left you smile

Dave, 

Of course I pressed it because I trust you and have more protection on this computer than the American Government ones that got hacked ... Not funny but seemed appropriate for some reason.  Now you just need to rewrite the code for the Board here an incorporate it. Ok? Thx smile



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Gracie


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Congrats Ari,

You sure deserve this victory. Battle well fought. WOOT!

It's was difficult for me changing my mindset to socializing without a glass of wine, but now, it's pretty normal. If I'm home and hosting, I have my own bottle of no alcohol wine I drink, which is quite good. If I go to somebody else's party, I bring my own cans of spritzer or ginger ale. Nobody even questions it, in fact there is usually one or two others who aren't drinking either. My friends are liking the fact that they have a designated dd along all,the time. I think society in general is changing regarding the need for alcohol. It's nice to see even the younger generation opting more and more for no alcohol. Our local high schools have what's called "safe grad" where they bus the kids all around the place all night long - swimming, bowling, pizza, sports - all with no alcohol.

Now you need to concentrate on living your best healthy life. Get that liver slowly back in shape and enjoy your hep c life and all the great things it will bring. Here's to much more improvements as the months go by. Great job Ari!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Mikaere


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Congratulations Ari-anna all the best for the future



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Male 60+ from Newzealand gnome type 1 used  tx sovaldi,peginterferon,Riba  EOT 12 weeks SVR 24 weeks SVR 
Ari-anna


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Hey Everyone - thanks for all the good wishes and the laughs. I'm still trying to get used to the idea I am starting to get well - the possibilities are mind boggling.

My first thought when I heard Virus Undetected was to seriously party with music and friends and laughter and to have a few drinks - like, that's what people do to celebrate? It didn't take long to realise that having a few drinks isn't really in the plan for me, however I loved that I could think about partying and I am enjoying the sense of exhilaration that comes with knowing the dragon no longer has that hold on me.

I will put on a party when my house is rebuilt later this year and I have a beautiful new home all set up for entertaining. In the meantime I'm going out to have Pizza with my sons and daughters-in-law. They are all elated too and wanted to celebrate. And my friends all have ear to ear smiles when I tell them, it's wonderful - a miracle even.

What would be even more wonderful is for every single person in the world who has Hep C to get treatment without any hassles. That would be my wish if I met  the Wizard of Oz . . . . . 



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
Tig


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Hey SF,

See what happens when you ask someone on Riba for help? It warps their sense of humor! Be very careful with Dave, he's a character.... biggrin



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Jaded


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Great News! I'm happy for you.

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64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
Linuxter


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1861118?AWSAccessKeyId=1XXJBWHKN0QBQS6TGPG2&Expires=1458172800&Signature=OD%2FO9cGFJ5CM1jq7%2BFGAvU70da8%3D

Here ya go SF ... go ahead and click it ... I dare ya ... LOL



-- Edited by Linuxter on Saturday 5th of March 2016 08:25:50 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Shadowfax


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They need a like button!



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Linuxter


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Ding Dong the Dragon's Dead, the Dragon's Dead, the Wicked Dragon's Dead! sing.gifsing.gifsing.gif

article-2306655-0924CCF8000005DC-208_306x423.jpg



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
dustbear


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A very big congratulations to you!  The dragon is dead and you made it through!

I'm doing a happy dance for you right now!

biggrin



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Shadowfax


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Hi Ari-Anna,

 

Great news! Thank you for sharing it!



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
JIme


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Fantastic news!!!!! UNDETECTABLE!!!!!!

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
JimmyK


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You Go GIRL!!!!!



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
RAGDOLL


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AWESOME NEWS.    Thanks for sharing.   It is pretty amazing to see how our futures change with these new treatments.   Best Wishes in this new chapter of your life.  

Blessings!

Chris



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F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
Sydhanrahan


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Hi Ari-Anna,

so happy for you. This is the day we all dream of. Do something special for yourself - you've earnt it.

well done.

Syd



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Tig


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Hi Ari,

WOOT!!! Congratulations and thanks for making the first thing I saw this morning so great! SVR 12 is the golden award every HCV sufferer strives to achieve and now it sits on your mantle. In no time at all, you'll be knocking down all the doors to successful post treatment recovery. You have already opened the most important one, SVR! Enjoy your new Hep C free life smile

image.png



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mallani


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Great news, Ari.

Good luck with the ablation. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
wendyo


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save that text girl! What a great way to wake up (for me) to see your stellar news and read some other inspiring posts. Very happy for you!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Linuxter


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Ari, Ari, Ari ...

What WONDERFUL news!!

I am so very happy for you!!!

Couldn't happen to a better person ... this is just fantastic ... WOW!

Please keep in touch and let us know how things go.

With your drive and stamina you'll be doing those 10K walks every year and jumping for joy along the way.

 

Very Glad, smile

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
wmlj1960


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I'll bet you are happy and we are happy for you Ari. SVR-12 it is and you well deserve it. And that is great news that your lesion will be ablated without any difficulty. Wow, it's time to throw a great big party and dance, dance, dance!!! SVR PARTY TIME! Congratulations to you!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Ari-anna


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Today my Doctor sent me a text: 12 weeks post treatment blood test results - Virus Undetected SVR

Also, I had a liver scan yesterday, the Surgeon said he could easily see the lesion that has attracted attention and he believes it will be a simple matter to ablate it.

In around a month's time I will not only no longer have Hep C but also the wee growth in my liver will be history!!

I am very happy smile smile smile



__________________

Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
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