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Hep C Discussion Forum -> Post Treatment -> Cirrhosis is gone!
Post Info TOPIC: Cirrhosis is gone!
dustbear


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RE: Cirrhosis is gone!
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That is an amazing story.  You are free like a bird and to swim with the dolphins!

Congratulations!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Cinnamon Girl


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Hi again SP... wow, what an absolutely amazing recovery, congratulations to you!! 

I`m so glad you stopped by to share your wonderful news.  It`s so encouraging for us all to hear that such an incredible turn around in health is possible after achieving SVR, and so fast too.

Enjoy every day of your new Hep C life, I`m quite sure you will!  We`d love to hear from you again, if ever you find time to stop by with an update!  smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Observer


Guru

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That is GREAT news! Congratulations and enjoy your HCV free life!

Bless,
Alison

__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
Canuck


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A - MAZ - ING!!!!! smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Jaded


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That is so phenomenal!!! I'm very happy for you and totally encouraged by this great news...thx for sharing it.

__________________

64 year old EOT 10-28-15,SVR24 April 21 2016  ALT-12/AST-23 June '19 - fibroscan 6.9 F-0 July '19
Shadowfax


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Thank you for posting this great news! It give much hope to many.

Enjoy your good health!

 

Cheers

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Silverecho


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Wow!!! Your post touched me so deeply. I gave birth to a child nearly two years ago and at just under a year he tested positive for antibodies. Your story is my biggest fear, as a Mother. He has since cleared it, thank God.

Im so happy for you! I just want to give you a big hug and tell you everything will be ok. My hope for you is that you continue to heal until you are fully recovered. 

Much love to you. 



__________________

38 yr old DX 1999, genotype 1a

VL 300,000, F1

Starting Zepatier Mar 23, 2016

4 weeks into treatment - Undetectable April 19, 2016 - ALT 9
JimmyK


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Your post is mind boggling!

ENJOY YOUR LIFE!



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wmlj1960


Moderator

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That's great news John. Sounds like you are enjoying a very well deserved break in your life.
When I grow up I want to be just like you.
Harvoni was the life saver for me too. I too was decompensated cirrhotic and my liver began to improve even before completing treatment. Today I have no liver related complications other than platelets @ 74, but that continues to improve.
I hope you re-consider and stay in touch with us here. It's always good for those facing starting treatment or in the middle of it too see evidence of success in beating Hep C like you did.
 Enjoy your swim!

 

dolphin_swim_adventure.gif



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Tig


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Hi John,

Congrats! That's quite a story and very uncommon to regress so quickly. I would love to see your most recent lab work if you feel like sharing it. That's amazing... 

If you're still in London, I want pictures of you swimming in the Pacific! LOL! Enjoy your Hep free life, you've never known that before. Consider yourself reborn! Good luck... smile



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Sydhanrahan


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Sick Puppy,

you may never read this as you will be too busy swimming with the Dolphins but you have made me, and I'm sure many others who will read your post, very happy.

To have been so sick as a child must have been horrific for you and  your parents. To think you have been cured in the nick of time by this miracle drug and additionally, have made such a quick and dramatic recovery from cirrhosis, is amazing.

You really are just a puppy and  you have the long and wonderful life you so richly deserve in front of you. 

You will never forget how precious it is.

Big hugs,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
SickPuppy


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Hi guys,

 

I've had Hep C since I was 1 year old - discovered only at 11 years old due to a decompensated cirrhosis event (burst varices and blood vomit) which repeated a couple more times. Other complications came in time - such as encephalopathy, high ammonia - yet no ascites in the belly, but definitely in the feet.

 

In any case - I was on my way out when Harvoni was launched and managed to get on the bandwagon and finished it in October.

 

Six months after finishing Harvoni + Ribavirin for 12 weeks (TX naive) I had a fibroscan and ultrasound. No signs of cirrhosis left. Went from 16.4 to 6.2. This is correlated with all the blood tests and liver tests. I couldn't believe it, but there you go.

 

I'm posting this for all those that might be interested with 'what happens after the cure'? Well, a lot can happen. You can improve by a bit, you can stay where you are and not advance further or you can even go and progress to decompensation - that has happened.

 

However, based on my experience, I would say the chances of improvement might be a lot higher than those of nothing changing.

 

I did not follow any diet during treatment - my diet was: Eat anything, as much as you want, as often as you want.

I did not do any exercise during treatment - my motto was: Relax, take it easy, there's plenty of exercise waiting for you if you're cured - this is because I have had portal hypertension my whole life and was banned from a sustained high pulse.

I did not have any (or too many) side effects - some stomach trouble - if it can be called that - towards the end.

I tried to sleep as much as I could, as often as I could - not due to the drugs - I just feel tired all the time, I always did, and my circadian rhythm was inversed due to the encephalopathy - night owl due to the cirrhosis you might say. This is now resolved and I sleep like a baby 8 to 10 hours a night.

 

I hope this will brighten the day to some poor soul still on treatment. I know the thought of the TX not working is driving you mad, but you have about 95% more chances of being cured than you would have had if you wouldn't have taken anything - so keep that in mind.

 

Have a great day and have a great life. This should be one of my final posts here. I'm done with this chapter of my life. 15+ years of misery and I'm finally free.

 

If anyone wants to find me, I'll be in the Pacific swimming with the dolphins.



__________________

GT1a - TX-naive

Baseline:

16.2 kPa
ALT: 61 iu/L
ALP: 74 iu/L
Albumin: 38g/L
Bilirubin: 27 umol/L 
Platelets: 80
VL: 792,000
History of 4 violent varices bleeding episodes and splenomegaly present. 

21/07/2015 - TX start - Harvoni + Ribavirin 1200mg 12 weeks.
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