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Hep C Discussion Forum -> Living With Hep C -> Had my 1st Hepatologist visit!
Post Info TOPIC: Had my 1st Hepatologist visit!
JimmyK


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RE: Had my 1st Hepatologist visit!
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Iris I am attaching one of mine as it spells out how to interpret pretty good.

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Iris Dragonfly


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JimmyK wrote:

Greetings,

 

To be honest, I believe the FibroSure test tends to be more exaggerated with regard to results. When dealing with Insurance, that is a good thing. wink

 

JimmyK

 He did allude to something like that, also saying that while a fibroscan is expensive and more accurate...insurance does not cover that one. Have to be a score of 2? With the fibro blood test. Does this sound right?

 Yea, Tig, I wonder if I can get an MRI, but it sounds like he is hoping for a high fibro score and that accurate testing is not on the top of the list. confuse

Aparently this Dr. Is the only one in the Valley...how do I find out if he has had good success with his other patients?

Thanks Tig and Jimmysmile

Bb, Iris 



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Tig


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The Fibrosure or Fibrotest is a blood test that uses an algorithm to measure the results of several blood markers. It's used because it's less expensive. You get what you pay for.... It isn't particularly well known for accuracy (jmho). It's less accurate at the low and high end of the scale. There seems to be a lot of use because of the simplicity. Fibroscan (specialized ultrasound) is more expensive and is dependant on equipment and technologist. It can also offer varied results. MRI seems to be the easiest, most accurate non invasive means of determining fibrosis. Again, the cost is higher, therefore used less frequently.



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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JimmyK


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Greetings,

 

To be honest, I believe the FibroSure test tends to be more exaggerated with regard to results. When dealing with Insurance, that is a good thing. wink

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Iris Dragonfly


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Yes, I meant to add that. Seems this fibrorsis score is a real determining factor. I have to research about this, its in a blood test? I though it was a scan, he said no...don't really need to do that. So...*shrugs shoulders* I'm outta the loop on info. ... haven't been frequenting site, (sorry)blankstare

Bb, Iris 



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Tig


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Hi Iris,

Woohoo is right! Goodness, you've been getting ready to do this for awhile. I am excited to hear the news that everything is in the works. What's the next step? I'm sure they'll want a fibrosis stage, demand it if not. You need to know that. Please share any labs, that's always helpful. The doctors are getting pretty good at all of this, so I'm sure you'll get everything squared away by the end of June. smile



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Iris Dragonfly


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Wooo Hooo!, I saw the Actual dr. that may be able to dispense the winning drug! I really don't want to get too excited just yet as there is a few preliminary tests to be done. I still have to be "sick enough" to recieve treatment as per my insurance. That just seems wrong to me. Anyway, the ball is rolling, I should know more by the end of June. 

Bb, Iris 



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
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