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Post Info TOPIC: I gave in my prescription today :D


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I gave in my prescription today :D
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Hey Matt,

Wow, yeah, I must be, or near on. I was surprised to see even Zlikster beat me to the finish line - happy for everyone though! I don't mind getting the bronze medal as long as I get one! I think after my run in with old TX there is nothing that can phase me. I look forward to the day that I never have to walk into my Doctors office again as a patient. Now that is something to look forward to - she is lovely though. :D I hope life is treating you grand!

Thanks Shadow fax,

On my first TX I reacted fast and badly to the therapy, and the addition of needles made it a very hard experience for me. I have since got over my fear of needles - Well not panicking at least, as I wanted to do I.V.F which was also a lot of needles. In general, since I seemed in one way or another to have been up that hospital far more than I'd care to be. I'm feeling liberated to get this done and free myself. I may even try I.V.F again once I've cleared. For me this is a beautiful moment in time that signifies almost being reborn. It sounds romantic and silly, but I had to wait another 2 years to get these medications and short of having my mouth sewn up and my limbs ripped off, those pills are going in! :P

I'm sorry to hear you are sensitive to these meds, but the body does adjust. THese are beautiful pharmaceuticals created especially for us, now that is a perfect gift. :D x



-- Edited by Loopy Lisa on Wednesday 22nd of June 2016 01:49:09 PM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Loopy Lisa wrote:

Good morning everyone,

 

The first pills are in with a giant muffin and a gallon of water. I am officially on the train. I feel so excited now, I can't believe in 12 weeks this is the end of what seems an eternal journey. :D

Thank you for the lovely messages, without the addition of Riba, this is going to be so simple compared to the old therapy.

Awww how fab, I can change my sig-line, thanks Dave, its official now! :P x

 

 

I just saw this! Excellent and glad you are on your way to good health. You probably won't have any problems at all that you won't just shrug off. I didn't and I am super sensitive to medications. After the first few days, it will be Meh, this is nothing.

I am so glad you finally started. Be well

 

SF

 

 

 

 

 


 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



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Hey Lisa

Super congrats on starting treatment, you have been one of the longest member that been seeking treatment and a true survivor waiting patiently or maybe not, but now is your time and you will soon say my favorite saying.

"When I used to have Hep-C"  

From here out its all about staying compliant getting good rest and clean food.

matt 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Tig56 wrote:
Canuck wrote:

Lisa,

I am incorrigibly verbose (so's ya may have hardly noticed, eh?), and I need lotsa room to write biggrin C.


 Oh Canuck,

Say it ain't so! Don't change a thing, I'm just getting used to this new speed reading app, lol! If I made the signature line bigger, it could take a lot of page space that would then require a lot more scrolling between posts. I was able to increase the size to 300 characters, just for you. I hope that helps some!

Lisa,

Hope today has been a good day, with no surprises. Don't forget to keep the water bottle by your side, all day long!


 Thanks Ragdoll, its a breeze :P

Hi Tig, nothing really to write home about. Heart rate is slightly higher, and a little dry mouth, apart from that, nothing at all. I don't feel anything tbh. All is good on this front, beginning to visit the loo a lot, water logged!  :D

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

Tig


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Canuck wrote:

Lisa,

I am incorrigibly verbose (so's ya may have hardly noticed, eh?), and I need lotsa room to write biggrin C.


 Oh Canuck,

Say it ain't so! Don't change a thing, I'm just getting used to this new speed reading app, lol! If I made the signature line bigger, it could take a lot of page space that would then require a lot more scrolling between posts. I was able to increase the size to 300 characters, just for you. I hope that helps some!

Lisa,

Hope today has been a good day, with no surprises. Don't forget to keep the water bottle by your side, all day long!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Lisa, so glad you got your RX and have started treatment.   This will be so much easier than the PEG/RIBA days.   You will do great!   CC



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!



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Canuck wrote:

Lisa,

You are right, I WAS no good, AT ALL, in waiting, waiting waiting!!!! for my trial  ... but my signature line is "all used up", and so, subsequently, it is NOT clear - I HAVE finished treatment - (that's why I had to add those words "SEE UPDATES IN BIO" to my sig. line - I am incorrigibly verbose (so's ya may have hardly noticed, eh?), and I need lotsa room to write, therefore the rest of my treatment info ends up being described in my bio and/or mostly on the "I'M IN! - started the 8 week SOF/VEL/GS-9857 trial" thread, under "Clinical Trial Participants". Wish sig. lines were bigger!

Yes, it's true! ... Pablo and I are not only sister and brother, but TWINS!! And I am sure both he and i agree with you, that it is a whole new positive drug world that will be changing many HCV lives for the better now.

I am almost ready to write my EOT+4 weeks update for you, over there! biggrin C.


 Hey Canuck,

My HCV riddled brain skipped that important piece of info! I am going to read your bio now - does that make me an internet stalker lol? ;) Oh, how exciting, I can't wait to hear your update, I think you're very brave for doing a trail, or though they have had fab. results beyond all our expectations! It is paving a path for all future folk wanting to cure as much as us. :D

I will head over to that thread now and take a good look!

I hope the sun is giving you as much pleasure as it is me. :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Lisa,

You are right, I WAS no good, AT ALL, in waiting, waiting waiting!!!! for my trial  ... but my signature line is "all used up", and so, subsequently, it is NOT clear - I HAVE finished treatment - (that's why I had to add those words "SEE UPDATES IN BIO" to my sig. line - I am incorrigibly verbose (so's ya may have hardly noticed, eh?), and I need lotsa room to write, therefore the rest of my treatment info ends up being described in my bio and/or mostly on the "I'M IN! - started the 8 week SOF/VEL/GS-9857 trial" thread, under "Clinical Trial Participants". Wish sig. lines were bigger!

Yes, it's true! ... Pablo and I are not only sister and brother, but TWINS!! And I am sure both he and i agree with you, that it is a whole new positive drug world that will be changing many HCV lives for the better now.

I am almost ready to write my EOT+4 weeks update for you, over there! biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thank you Canuck,

I think it is a good time for people to treat, and before we know it, Hep C will become another historical disease like so many in the past.

I can imagine you have some reservations as you are waiting on a trial, but these drugs are proving again and again to be so effective, with little side affects compared to the olden days, you'll be next! :D. I think perspective certainly is the key. I am not worried even if I do get minor side effects tbh, I know in 12 weeks I am rid of this monster in my veins and what could be better than that - Ok, death by chocolate cake (fudge/chocolate) sounds almost as good! :P

I just read the  thread "Need your advice" about the poor guy who is going through transplant liver rejection. There is nothing scary about treating compared to what could happen. I hope by sharing our positive stories, it will help people take the next step as there are so many afraid of pharmaceuticals. I genuinely feel great, nothing has happened apart from taking some pills and I got some new boots :P

The sun is shining and its officially summer - Feeling blessed. :D x

 

 

 



-- Edited by Loopy Lisa on Wednesday 22nd of June 2016 02:45:15 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Lovely Lisa,

IT IS a lovely day! - the sun HAS finally come! - what a wonderful day it is!!! DAY ONE! First pill past the lips. ahh. You so deserve all the nice things that ARE going to follow, and we too are lucky (we all get to enjoy it, right along with you). It IS a very happy day.

I saw you approach this day with as much excitement, hope and relief as I did when I approached Day One - maybe more!! Except ... unlike me, you armed yourself, very well, with much good positivity than I was able to muster!!

I really appreciate your attitude, it counts for much! This will be so rewarding for you (and us). Happy day!

Now, I'll say, this really IS the best way to celebrate the start of your summer solstice!

smile C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thanks guys and gals,

Nothing to report apart from the sound of dying virus particles, well unless my lunch menu is interesting! ;)

I love it Robertmx, they will be no more, the army is advancing with the strongest war cry, and the sword is already winning! :P

I was treated though to some lovely leather boots I had my eye on from the hubby. Remind me to take advantage of this before it ends! ;) :P

 

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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  Q--What was all that noise coming out of the Neatherland's Yesterday?   

   A--Loopy Lisa pulling her dragon slaying sword out of her scabbard, and going into battle.

   Q--Is she fighting alone?

   A--No, She has amassed an army of warriors, hepcfriends,all batteling along side her.

   Q--The Dragon doesn't stand a chance dose it?

   A--No, fortunately her sword is the best weapon available today to kill the beast!

 

                                      No Further Questions

 

 

 



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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go get em girl



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.



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Yeah! What those guys said!

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."

Tig


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Congratulations Lisa!!! It's officially official!!! Welcome aboard smile

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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I heard the train whistle.....she is on her way! 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



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That is lovely to hear Gracie, it certainly makes it all worth while. This time no sun sensitivity, that is rreally the best bonus of all. :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Awesome news Lisa. There is no feeling like clearing this bugger dragon once and for all. You've got a life changing summer ahead of you, and you'll sail right through it like a summer breeze. I've had nothing but positive things happen to me since clearing. Feeling better, stronger and just so darn happy! Keep that train a Rollin' ... Xo



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.



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Good morning everyone,

 

The first pills are in with a giant muffin and a gallon of water. I am officially on the train. I feel so excited now, I can't believe in 12 weeks this is the end of what seems an eternal journey. :D

Thank you for the lovely messages, without the addition of Riba, this is going to be so simple compared to the old therapy.

Awww how fab, I can change my sig-line, thanks Dave, its official now! :P x

 

 

 

 

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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  Time to update the signature, lol  

Here ya go, you can just cut and paste to Sig-line ----->  biggrin    SOT: 06/21/16

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Hi Lisa, it's Tuesday the 21'st in the Netherlands, how's it going?? Today is the big day!

Just been thinking about you.   RC



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 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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wmlj1960 wrote:
Loopy Lisa wrote:

 This dragon doesn't stand a chance!


 

Loopy Lisa wrote:
I can start Friday, but I've chosen the 21st as I have some visitors coming to stay before hand. It seems more logical to start on a nice gentle pace so I don't miss dosage times. :D


With an attitude like that and with you putting your medicine schedule as top priority, that dragon doesn't stand a chance. Remember to stay adequately hydrated and this should be a smooth, successful ride for you. Very happy for you Lisa! smile


 Thanks Wim, it is sooo easy 12 weeks, I really can't complain about anything. I've stocked up on flavoured mineral water, just a dash of taste. TBH its so warm anyway, it wont take much to drink so much, finally the sun has arrived. :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Loopy Lisa wrote:

 This dragon doesn't stand a chance!


 

Loopy Lisa wrote:
I can start Friday, but I've chosen the 21st as I have some visitors coming to stay before hand. It seems more logical to start on a nice gentle pace so I don't miss dosage times. :D


With an attitude like that and with you putting your medicine schedule as top priority, that dragon doesn't stand a chance. Remember to stay adequately hydrated and this should be a smooth, successful ride for you. Very happy for you Lisa! smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Thanks guys, I am so shiny I am blinding everyone. My doctor had to laugh at my excitement. As far as I see it, nothing can be bad compared to the olden days of treatment, this will be a walk in the park for me. I feel pretty blessed and feel like a huge burden has lifted. I know I am very fortunate to come out this far unscathed. This dragon doesn't stand a chance! I hope to pass on the sword very soon to the next person that needs it! :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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That's Great News Lisa!! w00t.gif

Get your armor on (I know you already have it shined up), you're getting your brand new, Excalibur sword!

It's Dragon Slayin' Time ... smile 

One more beast is GOIN' DOWN!!

 

Dave



__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



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Lisa, Rebound is not in your play book!!  You will hit SVR this time, so hit it out of the park!!

RC



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 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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robertsamx wrote:

Good news Lisa, glad to see your starting treatment. Is your load still 15m? What is your fibroscan# ?   Treatment w/o RIBA should be a cake walk for you. Good luck!!  RC


 Thanks Robert, I am still a 0 after 20 years, goodness knows how! I don't know up to date viral count, we have decided the only important count is the end one. All contradictions point to a cure for me, but being a 3, it is possible to rebound, but its all looking good. Thank you. :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



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Good news Lisa, glad to see your starting treatment. Is your load still 15m? What is your fibroscan# ?   Treatment w/o RIBA should be a cake walk for you. Good luck!!  RC



__________________

 M-68, 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



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Tig56 wrote:

Hi Lisa,

That's great news! The title of your thread concerned me at first. I thought you had decided not to do treatment and turned your prescription in to the doctor! My heart jumped a beat when I read that, lol! I'm breathing again... smile

So when is your first day? We have to have the train ready at the station! Good luck!


 Hahaha I am loopy not crazy :P I can start Friday, but I've chosen the 21st as I have some visitors coming to stay before hand. It seems more logical to start on a nice gentle pace so I don't miss dosage times. :D

Thanks guys, I am bouncing of the walls with delight. :D x



-- Edited by Loopy Lisa on Tuesday 7th of June 2016 12:08:50 PM



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

Tig


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Hi Lisa,

That's great news! The title of your thread concerned me at first. I thought you had decided not to do treatment and turned your prescription in to the doctor! My heart jumped a beat when I read that, lol! I'm breathing again... smile

So when is your first day? We have to have the train ready at the station! Good luck!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Great news!

Ready...Set....GO!



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."



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Hi everyone,

I don't have any other Hep, I got all the all clear, it was pesky stones after all, my stats are already lowering :D

I gave in my prescription and pick it up Friday. I am so excited I can't wait. I thought I'd share my good news.

Hurrah :D x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

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