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Hep C Discussion Forum -> Clinical Trial Participants -> Non Detected for HCV 2nd lab result reading
Post Info TOPIC: Non Detected for HCV 2nd lab result reading
Shadowfax


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RE: Non Detected for HCV 2nd lab result reading
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Excellent news! Good job! Enjoy it all

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Tig


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Hey Mike,

WOOHOO Brother!! I know how much you wanted this to happen and here it is, outstanding. Sounds to me like you've got quite a morning routine developed already and I commend you for that.

Keep up the good work and don't worry about the support group being slow right now. The participation rates will vary and there will be times when you make up for the days and weeks you were slow. Take advantage of the slow times and do your research, have an extra cup of coffee and get to know the people that are there with you. Just putting forth the effort to try and help others tells me a lot about the good character you possess. Always work on the quality of support you can provide, quantity is nice, but good quality advice and support is why they're coming to you. If we can provide any assistance, just let us know.

SVR Station is next, tray tables up!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Sydhanrahan


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you deserve your your results Mike. You have really turned your life around. Weight loss, fitness regime extraordinaire, good hydration and great encouragement for your wife.

Congrats,

Syd

 

 



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wendyo


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So glad to hear this Mike CONGRATS to you for the undetected as well as making some major changes in your life. Feels good, I know!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Linuxter


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Hi Mike,

Great to hear of your continued UNDETECTED!

SVR next stop, see ya there. smile

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Canuck


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Huge congrats Mike! 2 UND's !!- that is just so just wonderful. Every one of my und reports, that I received, had a profound effect on me also, so I know what you mean when you say thrills and tears. 

I am trying to recall all your details/dates - you did do the 12 weeks of treatment? (or did it end up being 8 weeks)? And, your first week VL was Und, and now, this UND is your 8 or 12 week EOT VL? So, does this mean you get another VL at EOT+4weeks and/or EOT+12 weeks for the next?

Too bad about the group attendance - you are going to have to get creative, really think about how to solicit people in, maybe quite differently, these things are sometimes quite hard to get rolling, and it takes a long time of sticking at it, utilizing many dif. ongoing creative approaches, before they start trickling in and then building. I noticed one successful one I saw, routinely utilized out-right bribes - a draw every meeting (for neat substantial things too), and free food, stuff like that - it seems to work for them, but they have "paid" trained staff and a budget to run this, and they do it in a very heavily populated area where there are many HCV folk constantly traversing within plain sight, and many of them who could really use something to eat, a chance at a draw prize, and the support and education. Much harder to do when it is strictly volunteer - but really good on you, for you and your wife trying/doing this - stick with it, and try some off the wall thinking to see if you can revamp the concepts in how to draw people in.

Your life really has changed in many ways, eh? - and ALL for the better, you are good example for us, important the way you are looking after your health/diet/exercise now.

Your doing really good!

It was you who was just on holiday in some beautiful place, right? So, tell me, am I right?, that this "forever" vacation (from C) is waaaay more beautiful!!, right? biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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robertsamx


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Hi Mike. Nice to hear from you. We all like to hear about dead dragons!  Way to go. Are the results you post your EOT results? I'm looking forward to your 4-week post results, they say a lot about SVR. Don't give up on your support group, stay fit,and please stay in touch with us. Our forum needs you!    RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
Mike


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Well folks, it is time once again to celebrate the slow, painful, death of another incredibly despicable dragon, who used to reside in my body.  I am absolutely thrilled, and come to tears about it. I was kind of getting fond of that miserable dragon, but believe me, I won't be attending the dragon's funeral services. Just received today, an email, from my Doctor's (Hepatitis C) registered Nurse, that the second lab results since treatment are (non-detectable) for the HCV. The first reading was the same, about two weeks prior to the end of treatment. The end of treatment date for me was June 1st, 2016. Then this email came in today.biggrin 

I am trying wholeheartedly to encourage attendance in our local Hepatitis C monthly meetings, however, I am falling short of people who want to come.  It is well announced, but I believe people are possibly fearful of publically joining a group such as this. I was inspired by all of you, and still am. I happen to live in an area that has a large concentration of infected HCV peoples. I know that we can be of support for a lot of individuals, if they would only come. I won't give up.  I will go to it alone if I have to.  Luckily my wife joins me.smile

I am free now to use the essential oils in gradual amounts that I am a distributor for. My liver has returned to normal processing. I am still drinking a lot of water, and watching what I eat.  Since January, I lost 16 pounds, am 5'10.5" and currently weigh 202 pounds. I lost the weight mainly due to stopping alcohol consumption, and completing a daily exercise program, Monday thru Saturday, without fail, rain or shine. However, here in central California, Bakersfield, rain, right now ain't gonna happen, (it is 5:34 pm and 103(f) outside), if ya know what I mean. I do my swimming, 30 minutes at least in the early morning, about 5am, and even got my wife to join me.confuse

 

I continue praying for you all my brothers and sisters. I will always be on this site. Love you all:)



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1-18-16 referred to gastroenterologist;  AST 191 ALT 246, Viral Load 1,976,000, Alpha Feto Protein/Negative for Cirrhosis. Genotype 1 a. Tx began 3/9/16 Harvoni, 8-12 weeks

 
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