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Hep C Discussion Forum -> On Treatment -> 11th day Harvoni & experienced muscle strength tonight!!
Post Info TOPIC: 11th day Harvoni & experienced muscle strength tonight!!
Loopy Lisa


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RE: 11th day Harvoni & experienced muscle strength tonight!!
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Hey Awaw5,

I am a little different as I had a partial paralysis in 2005. I had to go through rehabilitation for muscle atrophy after recovery which meant building up muscle, stamina, you get the drift. Muscle loss can cause so many ache and pains, that then leads to other issues and soon it mounts up. Nobody knew I had Hep C at the time, so it was well noted my fatigue and pain problems and was misdiagnosed as having Fibromyalgia. I decided the best way to combat it was to continue training at the gym, build up my energy levels, food and water changes and try to improve things. I did improve a lot by training, but I also allowed myself a power nap every afternoon if I wanted one. In general, I don't know what is normal fatigue or Hep C, I am in my 40's and have had it for years, so I can't compare to anything. I can tell you something that does make a difference in energy levels. NO SUGAR. Sugar acts like alcohol on the liver and is really bad for you. I am pretty weak and give in to chocolate often, but I can go months and my energy levels increase a lot. On treatment I have most days good energy levels, and the odd day I feel tired out. Again, it can be a hectic day, hep C or the drugs. After training I always get that natural boost and it gets me going, until its nap time. I wish I could be more specific, but I am still on treatment and I won't know how I'll feel energy level wise after treatment to compare. :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Pablito


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I had a similar boost of energy on sof/vel/vox.  I kind of miss that. Lol.

 



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
awaw5


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Wendyo: Thanks for explaining. I understand better now.



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54yo, geno 1a, DX 1983 HCV

TX #1: 1999 DAILY IFN 3mu & Ribavirin for 9mos. Stopped Tx in 7mos due to HCV RNA of 260,000 increased to 1 Million from tx.  

TX #2: SOT 7/21/16 Harvoni. 

SOT: HCV RNA 3 million. F1-F2, NASH N0. ALT 288, AST 116

Current: HCV undetected, ALT 22, AST 19
wendyo


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I have had insomnia for years. It is also a side effect that some people get on harvoni. Some days I feel better than pre treatment and some days about the same. My only issue reaaly hwas fatigue. But due to poor sleep I can still feel that way. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
awaw5


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WENDYO: From your signature, it seems you were done with Tx by 2016 but by how you replied to me, it sounds as if you don't have that much improvement from Tx?? Or is only because insomnia is an unrelated issue than HCV?

LOOPY LISA: You say you're back to "full training". Do you attribute that to your current Tx or were you at "full training" mode even before Sof/Dak?

TIG56: I did not feel very energetic, I couldn't exercise for any longer than usual. I would describe myself as being "generally tired" while exercising last night.  I felt stronger strictly ONLY in the muscles in my legs. It felt like a new experience to me (tho I think I've felt it before a few times in my life...)

I guess I was asking about the liver function of stored glycogen that is supposed to be ready for use for muscles when needed & possibly the Harvoni is eradicating some of the HCV theoretically enabling my liver to store & release glycogen more efficiently?? 

I was hoping it was a known improvement from treatment... But I guess i'll just have to wait & see. Everyone's probably different. 

Thanks all!



__________________

54yo, geno 1a, DX 1983 HCV

TX #1: 1999 DAILY IFN 3mu & Ribavirin for 9mos. Stopped Tx in 7mos due to HCV RNA of 260,000 increased to 1 Million from tx.  

TX #2: SOT 7/21/16 Harvoni. 

SOT: HCV RNA 3 million. F1-F2, NASH N0. ALT 288, AST 116

Current: HCV undetected, ALT 22, AST 19
wendyo


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NICE! Very glad to hear this and that you are keeping up with the exercise. I work out 4-5 times a week and during treatment tried to stick to that regime but due to the insomnia, sometimes I had to drop to 3 or 4 times a week. Just listen top your body and if you feel weak or tired rest. And of course drink your water. I think the exercise and sweating also helped keep things circulating and sweating it out is good. Now that I am off TX I do get bursts of that feeling (had it last week in cycle class) and other days I tire easily especially if I didn't sleep well or much.

You are doing great!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Loopy Lisa


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It is a fantastic thing that you are exercising. It can cause pain by lack of activity - muscle atrophy. I gave myself a couple of weeks inactivity adjusting to the medications, and now I am back full into training. I do think it helps with every aspect of health combined with a healthy diet - states she that dribbles over chocolate like a rabid animal. 

Good luck with treatment, it is showing great results. :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


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Hello,

You're not alone! This is a commonly mentioned side effect from Harvoni. Some people that take it at night often mention trouble sleeping because of that boost in energy. You may experience your own reactions to it and time will tell. One thing mentioned all the time is vivid dreams and deep sleep. The first few weeks will prove to be an adjustment period for you and things may settle down a bit. I hope the new found energy lasts forever, but it's likely you getting adjusted to the medication.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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awaw5


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I thought I'd post some good news... I'm on my 11th day of Harvoni and when I walked on the treadmill tonight I experienced... drum roll... muscle strength!! I'm so excited & hope it has to do with Harvoni arresting some of my HCV enabling my liver to handle glycogen stores better for my muscles. Do you think?!

I'm a regular exerciser, viewing it as an investment that i force myself to do to enable me to have some energy for a couple hours afterwards, whereas otherwise I would be "shot". I typically only exercise 10 min minimum to up to 30 min.

I don't over-exercise but I feel like i can NEVER IMPROVE in strength! Frequently it's very difficult for me to go up more than one flight of stairs as I my muscles burn real badly. But then maybe the very next day - I'm absolutely fine walking up those same stairs. So it's not my muscle weakness per se, it's something else.

I'm always careful to vary my exercise. I do fast walking with 30 second bursts jogging, an exercise bike, rebounder, free weights, rubber band weight machine, stepper machine or treadmill. 

HOWEVER tonight as I walked 5 min on the treadmill, I said to myself, "I can stop & use the bike now" out of habit, thinking that might be all I can do, but I felt this new strange sensation, clearly strong feelings in my legs & I really liked the feeling & then I COULDN'T STOP because of how different it felt!! Mind you - i was NOT experiencing runner's high. I stopped after 10 min - but I just had to share this new feeling that i hope happens again someday! Is it a glimpse of the new me?! This isn't even asking a lot - to be able to do moderate exercise and gradually feel stronger, is it? (I'm getting teary...) 

Has anyone else experience increased muscle strength from treatment?



__________________

54yo, geno 1a, DX 1983 HCV

TX #1: 1999 DAILY IFN 3mu & Ribavirin for 9mos. Stopped Tx in 7mos due to HCV RNA of 260,000 increased to 1 Million from tx.  

TX #2: SOT 7/21/16 Harvoni. 

SOT: HCV RNA 3 million. F1-F2, NASH N0. ALT 288, AST 116

Current: HCV undetected, ALT 22, AST 19
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