Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: LIVER TRANSPLANT


Guru

Status: Offline
Posts: 552
Date:
RE: LIVER TRANSPLANT
Permalink  
 


Congratulations William. What a ride you are on. Hopefully you will be that little bit more energised daily and they have some alternatives that the anti rejection drugs you are on. 

Robert, I am still hoping that they clear your spots and that your meld score behaves itself. What is it without the spots factored in? 

Big hugs to you both,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.



Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Hi William, sounds like things are moving along ok?  Can you elaborate on the anti-rejection med S/X.  Of all my fears that is the biggest one!   How many pills do you take a day, and how many times a day do you take them?  I'm sure all of this will be gone over with me at my transplant appointment, but it's always good to hear if from someone that has been there and done that. How did you feel the first week after the transplant?  And the second week?

I hope you don't mind all the questions, I'm getting uptight just thinking about the prosess.  RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

hi . just an update on how things are.22 days post transplant.am getting side effects from anti rejection meds.but compared to the side effects of interferon/riba.they are mild.i see there is a new med i havan;t heard of EPCLUSA.the last new med i read about was POLARIS.am out of touch with things. new meds are popping up so quick.all the best of health to you all                                                                                                                                                                                                                                                                  william



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16



Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi William,

Hearlfelt congratulations to you!!  I`ve spoken with you already but just want to say again how thrilled I am for you that your transplant is over and done with and that you didn`t have to wait long, this is such excellent news and we`re all so pleased for you!

Take it very easy while you`re recovering, the hard part is over now and you have a new life ahead of you with a new healthy liver... all the difficult times you`ve been through up to this point will soon finally be over! 

We`ll be looking forward to hearing more from you when you`re feeling up to writing more...  smile  Jill

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

William,  hope you are having a good day today.  So happy for you.  I hope you are keeping a journal of your process and progress so you can look back how it all went.   Many Blessing sent your way.  Chris



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!



Guru

Status: Offline
Posts: 714
Date:
Permalink  
 

That's great news William.

 I've a good friend who got a liver transplant about 7 years ago and she is having a fantastic, active,  heathy life. 

I hope your recovery goes smoothly.

bless

Alison



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

thankyou all so very much for your support.it was a very short wait for transplant.i feel blessed.am still hurting but this will pass.will post in a couple of days hopefully will have more energy.best of health to you all                                                                                                                                                                                                                                                       william



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16



Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

Wow Basser.  What is that like?  How do you feel?  Wishing you the continued speed in recovery. Awesome.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Oh Basser,

I can't tell you how glad I was to see your post today!! Yay - double yay!!

How wonderful! Was so worried for you, and fretted while we did not hear from you.

So happy to hear from you and to find out you have your brand new lease on life!!

Sorry for all you have had to go thru, but I am just SO stoked you have had this wonderful opportunity.

No better news! Wish you good/speedy healing and a steady recovery now. biggrin C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 680
Date:
Permalink  
 

Congratulations on getting your liver transplant William!

That is great news to be sure. Please keep us posted as to how your are getting along and I am sure you will be fine.

My Step Daughter had a double lung transplant 11 years ago and a kidney transplant just over one year ago. The medications to keep you well are amazing. I hope this gives you some inspiration and confidence that you are starting a new life.

Just great news.

Cheers

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *

Tig


Admin

Status: Offline
Posts: 9267
Date:
Permalink  
 

Congratulations William! Wow, that was the fastest transplant I've ever heard of. It was meant to be! Good luck on your recovery. Please keep us updated on your progress.



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

i will keep you posted on how things are going.at the moment my energy levels are low but better than a week am sure each week will i will gt stronger.i wish you all the very best of health to you all                                                                                                                                                                                                                                                       william                                                                                                                      



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16



Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

A little clarificatiion.....Congrats to William (BASSER) who got the new liver.                         RC ( RobertsAMX)  just starting process which RC and I will be following you William very closely.  Please keep us posted on your progress..   Cannot believe how fast everthing went for you .  Best wishes and a smooth speedy recovery.   Chris



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!



Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Robert, (Sorry, I mean William ... thanks Ragdoll)

Congrats on the transplant, how wonderful that you are home recovering and able to write us and tell us how you're doing. Godspeed with your recovery, wishing you the very best.

 

Linux



-- Edited by Linuxter on Friday 5th of August 2016 07:51:36 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 



Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

I have just started the process of getting on the transplant list, I'm building a meld score now. I have HCC,and that will give me 28 points after I wait 6 months.  I have 3 HCC"s that we are aware of, there could be more small ones,it's hard to find them because my liver is so cirrhotic. I'm amazed your home after just two weeks, they told me I would need to stay close to the transplant hospital for 6 to 8 weeks. I live 220 miles from the hospital. Do you live really close to the transplant hospital that did your transplant?  How long did the operation take?   Are there a lot of rejection med"s you must take??  I'm hoping to buy a little time by microwave ablation get my HCC"s. I'm hoping to get 5 or more years out of my liver before I transplant!! It all teeters on how many and how often I make HCC"s. The whole transplant idea scares the heck out of me.  Let's stay in touch, I want to follow you and see how it's going.My Doctors tell me I'm compensating well, my LFT"s all look good, no ascites. I want to keep my liver as long as I can.   RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

That is wonderful that you got a new liver Robert. Please take care of yourself during your recupe period and keep us posted. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 



Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

hi robert.am hurting a bit mate.but still amazed how im back home so soon.will take a time to heal but it will be worth it.are you on transplant list yet?



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16



Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

Hi William, Congratulations on getting your liver transplant.  How are you feeling just two weeks post transplant?  And your home already??  Are you on lots of meds?  I hope you post often on how your doing.  I will be facing a transplant down the road as well.   RC



-- Edited by robertsamx on Friday 5th of August 2016 12:32:35 PM

__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



Senior Member

Status: Offline
Posts: 129
Date:
Permalink  
 

hi all .havant been on line for awhile.i got rid or the virus 18months ago.my liver was to badly damaged and i went on transplant list 2 months ago.amazingly i got the phone call two and a half wks ago that they had a liver for me.im now bk home recovering from op.at last after 9yrs of tx i am finally free to hopefully live life to the full.i thank everyone over the last couple of yrs who have encouraged me.best of health to you all                                                                                                                 william



__________________

 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.