Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Dropped one Daclatasvir down the toilet.
Post Info TOPIC: Dropped one Daclatasvir down the toilet.
wendyo


Guru

Status: Offline
Posts: 1031
Date:
RE: Dropped one Daclatasvir down the toilet.
Permalink  
 

Totally agree the was the best part. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

One procedure down eh Wendy, tick it off the list. Yay!

Wouldn't you have rather been just siting on a chair to get to visit your fav. doc?

Ya, me too, got a colposcopy and a biopsy coming up sometime soon, the only part I will look forward to is the sedation. If colposcopies don't fit in the thread here, I guess we could always resort to "potty talk" about them to stay on topic! hee hee smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks everyone. I know we all have different beliefs and backgrounds but I consider this my other additional family, just like my recovery family. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Welcome home, Wendy! I'm I'm happy to hear the good news. That Fentanyl/Propofol mix really does the trick, doesn't it? Lights out....

I wish you the best on your upcoming procedure. It's good to hear you are getting things completed and I'm liking your progress!



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Wendy,

That all sounds like very good news, must have been such a relief for you to get that over with!

And don`t worry, I`m sure none of us would object to you sharing this here, we`re all in the process of getting ourselves healthy, and we care about you!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks all. I am home and no polyps! Stomach a bit sore from being bloated and head less foggy now as I did eat and lay down (from the fentanyl and propofol). This is the same gastro doc I have had with my failed HCV TX and the lovely man that said he would cure me before he retired. He said stool sample in 5 years and if that is ok next colonoscopy in 10! I have seen this man at least yearly since 1999.  I am thrilled. 

I did tell you guys I had a lot going on medically, so 2 down one more procedure to go. Colposcopy friday. And I apologize for talking about this on this thread, I know this is not HCV related. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Good luck, Wendy! "Bottoms Up...."  smile 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks for the thoughts ladies, the procedure is this morning..with us in different countries I am sure it gets confusing. 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

Hi Wendy,

How are you doing, did it go OK? 

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Oh Wendy,

i missed this thread so didn't even get to sympathise with you over the pre 24 hours. 

By now hopefully you'll be home, relaxing with a nice cup of tea, a piece of toast and a vaguely uncomfortable bottie. 

Hugs,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thank you Canuck. As today is prep day I sit here right now eating  green jello thinking of dave (re: the green) and drinking black coffee. I did buy baby wipes  



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

wendyo wrote:

Sunday I have prep for colonoscopy so

= 6

= 0

 Wendy, 

Darn, I meant to wish you bon voyage earlier (riding the big flush to the scopy appointment). I would have suggested some of those those nice, soft, cool baby wipes for the "job" ... THEY ARE appropriately flushable, and soothing. So are the procedure meds (soothing). Hope you have a nice wee nap. smile C.  



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

I am never going to be able to look at curry or the toilet the same, ever again. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Sunday I have prep for colonoscopy so

= 6

= 0



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Lisa,

You're looking at my beard, that's not a toilet brush!!! wink



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

Tig, why do I have this image in my mind of you with a pinny and a loo brush?

Panlito, we have revenge of the loo! :O



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Pablito wrote:

So we've had one pill dropped down a toilet and another vomited into a toilet. 2-0 to the toilets this week.

 Darn things, I had to clean 3 of them today! Looks like

Toilets = 5

 Humans = 0

 



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Pablito


Senior Member

Status: Offline
Posts: 363
Date:
Permalink  
 

So we've had one pill dropped down a toilet and another vomited into a toilet. 2-0 to the toilets this week.



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

K8 wrote:

Hi Lisa,

I can empathize with dropping one pill.  I became so focused on medication that I had to take it in the same place in the kitchen looking out the window each evening....a real ritual.

I wanted to take Daclatavir instead of RIBA but even with my insurance, I would still have to pay $2000 a month.  My doc said he didn't think it would be worth but now that I have finished the RIBA, I am not so sure.
Are there side effects to the Daclatasvir?   The Riba kicked my butt again but this time with the overall side effects.  Hindsight, I would have sold the cat and bought the medicine (Ha Ha)

Thanks for sharing your experience.

 Hahaha the thought flashed in my mind too Canuck, then I thought awww gross! :P I tell you, Benny hill would have been impressed at my table sprint and Mr. chasing me. Oh happy days! ;)

Yeah, I am getting a new single pill just for the side of safety. I could hear them smiling over the phone at my bumbling toilet talk ;)

K8, it feels the same as taking vitamin pills everyday, after 11 days no side effects at all! No IBS, no skin irritations, no brain fog, no nothing. I would have sold the neighbours cat instead and kept my own fur baby - I'm a wicked woman! ;) 



-- Edited by Loopy Lisa on Friday 19th of August 2016 04:19:08 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Sounds like me, and something that would/should happen to me! (But glad it was you - sorry.) Don't know (fer sure) WHAT I would have done! I, once, in critical caffeine desperation went after a used coffee filter that i had already tossed in the garbage can. Washed it off and carried on!! ya, I know, eeeewww. Had I been in the same situ as you found yourself in, I could just see myself surmizing the toilet - prolly a lot longer than you did, whilst it dissolved beyond salvage! (It might have been an "it all depends", to decide just what I would stoop to!). My luck, I woulda caught hep a or something! Poor dear, no beating on yourself allowed! Look at syd, she said she threw some down the heat register in riba chaos vengance. We leave them in hot cars, forget them, take them twice!! Sh*t happens, and it's scary at the time. hmmm ... don't I vaguely recollect someone chasing someone else I know around the table with a needleful of medication? ... it seems to me, that was a scare then, and you see some of it's humour now. This is a good one for your book.

wink C. 



-- Edited by Canuck on Friday 19th of August 2016 04:00:35 AM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Pablito


Senior Member

Status: Offline
Posts: 363
Date:
Permalink  
 

Hi Lisa

Not stupid at all...just a plain old accident.   I could tell you stories about dropping drugs down the toilet but I won't go all Trainspotting on you.

One tablet absolutely won't make a difference SVR-wise, but tell your doc and she'll give you another.  I hear you that they cost a lot, but that's only the market value...one tablet costs less than a dollar to make.

Pablo

 



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
K8


Member

Status: Offline
Posts: 33
Date:
Permalink  
 

Hi Lisa,

I can empathize with dropping one pill.  I became so focused on medication that I had to take it in the same place in the kitchen looking out the window each evening....a real ritual.

I wanted to take Daclatavir instead of RIBA but even with my insurance, I would still have to pay $2000 a month.  My doc said he didn't think it would be worth but now that I have finished the RIBA, I am not so sure.
Are there side effects to the Daclatasvir?   The Riba kicked my butt again but this time with the overall side effects.  Hindsight, I would have sold the cat and bought the medicine (Ha Ha)

Thanks for sharing your experience.



__________________

K8

65 yr female.Gt 2 B.  Contracted Hep C approx 71, 

tested 2007 - vl 10mil   RIBA/PEGI in 2007 6 months,  undetected EOT,  VL 600,00 in 2008

tested in Feb,2016 VL less than 2 mil, SOT 4/25/16  SOL/RIBA for 3 months , EOT July 17th, 2016

AUG 12th blood work - undetectable 

 
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

Thanks  folk, i feel a bit easier about it now. I think I wont swallow pills in the bathroom again! 

Really was a doh day!

Oh well, I will let them know tomorrow and just forget on it. :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Tig56 wrote:

On a side note, these are the times when it would be nice if our doctors were allowed to have rescue medication on hand. We have had members see possible delays in getting their medications delivered, so it would be appropriate (imo) for them to have inventory on hand. There are patients, for whatever reason that have to stop treatment. It should be okay for them to turn their left over drugs to their doctor for such purposes. It's that silly common sense thing going on in my head...

smile

 Absolutely agree with you there, Tig, it would make so much sense!  To us, at least...  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Lisa,

I don't think you have a thing to worry about. This happens to a lot of us. I wouldn't have gone toilet diving either! By the end of treatment, you'll be undetected and this splashy memory will have been flushed a long time ago. Just let your doctor know, but I think they'll you the same thing.

On a side note, these are the times when it would be nice if our doctors were allowed to have rescue medication on hand. We have had members see possible delays in getting their medications delivered, so it would be appropriate (imo) for them to have inventory on hand. There are patients, for whatever reason that have to stop treatment. It should be okay for them to turn their left over drugs to their doctor for such purposes. It's that silly common sense thing going on in my head...

smile



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Lisa,

i think it's more common to have a mishap with these tabs than it is not to. I'm sure Tig or someone who knows heaps can  tell you more buti thought it was Harvoni that had to be taken at the same time each day. And I'm sure there are a lot of people who had at least one mishap during treatment. 

im heaps sillier than you, at the end on my 24 weeks on Dac and Sof I had three tablets left over of one, and two of the other. There's a few good things about low level dementia though - it was too late to worry. biggrin I was virus free at the end of the 24 weeks too. 

So try to relax and sip your water.

Syd 

xx



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Lisa...  please don`t panic, a lot of people miss a dose of their medication for one reason or another, and I`m sure it won`t have an adverse effect on your chances of SVR.

Also, most medication dosages have a small margin of error built in, so to speak, to account for mishaps.  Even so, I would let your doctor or nurse know that you`ve had to miss a dose and ask for their advice. 

I`m quite sure if it had been me I wouldn`t have fished it out of the toilet either!     smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Loopy Lisa


Guru

Status: Offline
Posts: 895
Date:
Permalink  
 

I am a bit freaked this morning, I was getting ready and hurrying too much and how ever stupid and impossible it sounds, I dropped one pill and it fell in the toilet. Even though the pills are worth a small fortune, I was not going to scoop it out. Now I am one pill short. Do I call my doctor or just hope one pill down wont make a difference? I feel like an idiot as I know the value, and a bit embarrassed as well. On the other hand, that voice in the back of my head is saying it could make a difference in SVR. It is the most idiotic thing a person can do, and a one in 10 million chance that would ever happen. Yep, one has to be that idiot, and it was me. :(

Do you think I should confess and ask for a new one, or it will be ok? I have that horrible feeling in my gut. :(



-- Edited by Loopy Lisa on Tuesday 16th of August 2016 02:47:56 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Dropped one Daclatasvir down the toilet.
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.