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Hep C Discussion Forum -> On Treatment -> sudden side effects at night
Post Info TOPIC: sudden side effects at night
Tig


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RE: sudden side effects at night
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Hi Rick,

Glad we were able to help. Let us know what you find out from the doc on Monday. Keep in mind that everything you're going through is worth it. It should be a one time battle that will open the door to a much healthier future, give it all you've got!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cheddy


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Goof boy.aww



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
gator1959


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Thanks tig and everybody else ya,ll have so helpful to me its unreal thanks I,ll keep ya,ll posted .Also i,m going to talk to my Dr. on Mon.



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Re-Buy


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You might try putting heat to your legs before going to bed. A heating pad for five minutes on the areas affected helps me. (sometimes)



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64 yr old male. Geno 1B. Fibroscan-20.9 Peg/Interferon in 2005 no luck. Started 24 week Harvoni on May 11

After 24 weeks of Harvoni 

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Tig


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Agreed, Magnesium and Calcium often help with muscle cramping. Just check with the doctor about adding anything to your regimen. I hope you get some relief. I've had multiple cervical spine surgeries and understand the difficulties that come with back surgery. Chronic pain isn't terribly enjoyable.

Stay the course! You've got that Dragon on the ropes... Keep fighting!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Juliet17


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Early this year, before I was diagnosed, I started getting a burning pain in my hands, mostly the left hand. One night it got so bad that I was actually screaming in pain. And I am normally a very stoic person. For example, I had a baby with no anesthetic whatsoever and never let out a peep. But the burning in my hands was horrible!
Vasculitis is quite common with Hep C, and I'll bet many Hep C patients have mild cases and don't know it. Valculitis is, basically, inflammation of blood vessels, which can lead to neuropathy and circulation problems.
I have cryo, which is one form of vasculitis. I had no major flare-ups after that horrible one, and I'm thinking the improvement was because the weather got warmer. Now that it's getting cold again, my hands are hurting more, though not nearly as bad as that one time. I'm careful not to let my hands get too cold, and I think that helps.

I am about halfway through treatment (I am also gt3), and I'm not seeing the neuropathy getting worse because of it. It isn't really going away yet, though.

Yes, water is important, but so are electrolytes. If you drink too much water, it can "dilute" your blood and actually lower your electrolyte levels.


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HCV genotype 3b, started my 12 weeks of Sovaldi/Daklinza on 10/15/16.
Probably infected 1 - 2 years ago, viral load 800,000, fibrosis stage 0.
Canuck


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Gator,

The amount of discomfort sounds awful. Really too bad you could not see/speak with your doc for her advise about your leg pains before she was gone for the weekend.

In the interim, over the weekend, Tig is right you MUST be VERY WELL hydrated with water, but, under the circumstances, it makes perfect sense to ensure you are getting enough electrolytes too.

I believe the regular gatorade only has sodium, pottasium for electrolytes, but magnesium and calcium may also be important.

Gatorade makes some "other" kind of drink (with all five important elecrolytes) designed for hi-performing sweating athletes to prevent symptoms associated with depletion/dehdydration.

Also, someone else on this site mentioned an electrolyte drink that did contain magnesium as well as other electrolytes - but I cannot find that post here!

I would make sure to keep consuming the water this weekend, and as well, add the "gadorade-like" drinks, ideally one that also contains magnesium/calcium as well, and if nothing else, go to a walk-in clinic for some advice over the weekend.

I hate to think of you struggling so like this at night. C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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gator1959


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Thank You Tiger I,ve had neo raphy for a while I,ve had 6 back surgeries if you can believe that but this is much more intense  I tried to call my dr earler but they had already left for the day I,ll call her again on Monday I had some blood work done she said my liver function is normal but wont do my viral load on the 28 th

but she thinks its working we,ll see in a couple wks she could tell how bad I felt and offered to take me off but I know the alt so really that's not an option.  I,ll write more later    thanks again   also having trouble with concentration and memory.



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Tig


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Hey Rick,

It's not uncommon to experience some peripheral neuropathy with HCV. There are several people that have made statements about increased neuropathy while on treatment. I don't recall anyone mentioning the degree of pain you are describing though. Have you discussed this with your doctor? I would mention it next time you go in or call. How much water are you drinking each day? I know you mentioned increasing it, but it may not be enough. Try some electrolytes, Gatorade or similar and see if that doesn't quiet things down.

Those that have mentioned this previously have also gone on to say the discomfort improved post treatment. 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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gator1959


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I,ve been on savadi and Daklinza for 2almost 3 wks at first it was really bad got on the forum and some great people recommended I drink more water which Im doing seems like it has helped but I,m starting to wake up in the middle of the night with the most horrible nerve pain in my legs thank god it only last a few moments but I,m screaming from the pain .has anyone else experienced anything like this It,s not muscle cramps much different.



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