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Post Info TOPIC: Bad side effects from epclusa


Newbie

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Bad side effects from epclusa
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Hey Christina,

Yes, I have the same experience last year , when i was suffering from Hepatitis C. I also have a ringing sound in my head all day everyday, and no hearing loss. I hope that goes away with time. Undetected since week 4. After that, I consult with my doctor and he help me in this and i get overcome from this problem. I think you have to consult your doctor.



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Tig


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Hi Robin,

Welcome to the forum! I'm glad you're here. The medication administration time has been a subjective one. People across all the different treatments have found different times to be better, based on the side effects profile. The important thing is to take it at the same time everyday, whenever that is decided. 

The side effects you mentioned are common. Especially the sleep benefits! Are you finished with treatment? If you would provide us with details, it will give us a better understanding of your case. It helps us when replying. If you would like, start a new thread in the New Members section and introduce yourself. That way we don't take this one off topic.

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Good morning,
Are you taking Epclusa in the morning or night? I see some people suggest taking it at night, but did the opposite. I slept well almost every night. I did have side effects such as a flu like feeling that lasted a few hours now and then and fatigue on and off.
I guess it depends on your circumstances. I am retired so I was able to crawl into bed when needed. This is not an easy drug, but it is worth it.
Stick with it! 12 weeks pass quickly and can you imagine NO Hep C????
Good luck,
Fagala

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robin johnson


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Welcome Christina,

I was on a different protocol of meds but I empathize with your side effect suffering.  

I could barely put those pills in my mouth towards the end, every fibre of my being wanted to quit. I am so so glad I didn't. It's been just over a year since I finished and not having HCV changes absolutely everything.

You got good and sage advice from the community.

Water, healthy foods, meds for moods/sleep and determination. You are halfway through. 

It IS worth it and the side affects will become a memory.

Stay Strong dear.

A



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Hi Christina

Hang in there it's worth it. Be good to yourself and like every one said drink lots of water. You have a place to come "here" and talk or complain it helps. We have all been where you are.

Keep your head up and as we used to say  "keep your eyes on the prize"



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!



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Christina,

I'm glad you checked in here.  There are many of us here who have been through treatments and many of us have suffered side effects.  I agree with Phoenix. You will be glad you stayed on, once you get through.  

I was suffering depression and insomnia on my treatment.  There were days that I hung on by my fingernails.  Sometimes, minutes seemed like months and I feared I would never feel well again.  I just shut my eyes, and shut my mind's mouth until the end.  

I really did need help, which I got on this forum, but I also got help by starting an antidepressant.  The results were profound and quick, in my case.  If you need to take something, don't worry about it.  You are fighting a disease and a medication.  Whenever possible, don't let your mind take over.  See your doctor.  Get mood help.  Get sleep help.  This is a very good time to take advantage of the world of medicine.  You will come through, and can change your mind later.  For now, remember what my specialist kept telling me: "It's not you. It's the medication."  You are in a temporary condition and you need keep your eye on the outcome.  HCV will not go away on it's own.  

I am deeply sorry and sympathetic that this is weighing you down so.  You will be surprised and strengthened by what you can get through.  Trust me. This is a cool battle to win.  I have had so many unexpected improvements after reaching SVR and am surprised at how much happier and energetic I feel over time. 

Courage!!!!  We will be here to help you, Christina.

 

Cheddy



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UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Welcome Christina!

 You are just about half way there. DON'T STOP NOW!! I was on a anti depressant Before and thru treatment with Epclusa, Maybe that will help you as well. Check with your doctor. Yo will be glad you finished.

 

 



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Hi Christina,

Welcome to the forum and I am going to post a link for you where you also posted and there are some answers there. Please know you can do this and will feel better.

http://hepcfriends.activeboard.com/t63038714/new-revised-alt-levels/

 

SF



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *



Newbie

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Hello my name is christina. I have been on epclusa for 6 weeks and I am having very bad anxiety and depression and insomnia. I want to make it through this but I am at my breaking point did anyone else experience any bad side effects like mine.

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Christina Tsatsis
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