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Post Info TOPIC: After treatment issues?
Tig


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RE: After treatment issues?
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Hi Samuel,

Welcome to the forum. Sorry to hear about your problems. If you're drinking, you're pouring fuel on a fire. Nothing liver related improves until booze is removed from the equation. 

Since this thread was started by Freesoul, we don't want to hijack her thread. Please start a new one of your own. I suggest an introduction in the New Members thread, or in this section. We can continue the discussion then. Thank you, I look forward to that!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Hi Samuel,

I am so sorry to hear of your troubles.

I'm glad you found this place and came here to share, and to discuss your situation.

Your post is "on topic" (post-treatment concerns, started by freesoul), but could you possibly post a bit more about yourself/your treatment/when you started finished/etc., maybe include some of your prior testing/labs and medical history?? I would recommend doing your next post over in the "new members" section, rather than here.

More info from you would help us to better understand your particular problems/conditions and offer help, if we can. You have roughed out your situ/concerns quite well in this one post, but "Signature lines, biographies and further history" are invaluable background tools around here, the more info you can provide about your situ the better, for a fuller picture.

Many "newbies" start a thread all of their own, about themselves, introduce and outline themselves a bit - I know you are not a "newbie" persay, rather, you have already experienced and finished treatment, and it sounds now like you have a lot of things going on, going through the wringer with problems, but being a "new member" to the site I would encourage you to post some more, in your very own "new members thread" where others may more easily see you, and respond. 

We have some pretty helpful people here who will try to help as best as they are able, but you may initially get more views and traffic to your issues in a "new members" thread. 

Until then, I will just address 2 issues here, PLEASE, PLEASE DO NOT drink any alcohol. We can discuss this more, as well as how important imaging such as CAT scans/MRI's and ultrasounds can be, and how rare any kind of immune issue is, that would ever preclude having important imaging done.

I am so sorry for the troubles that you are experincing and hope to chat with you again over in new members! smile C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
SamuelFields


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disbeliefnoyawn

Gained 12 pounds of upper body fat and burst open old operation scars and am now faced with $70,000 hernia operations. WTF can't win for losing. I need to make my liver burn fat again so I'm drinking whisky and eating fish and veggies. My fat lining between my intestines and stomach abs is thickening putting pressure on my old operation scars and I popped a hernia. Now I got fatty tissue and guts popping out and my entire core sace is pulling out of place. I don't want no dam mesh installed and I'm afraid of MRI's dur to the fact the anti viral drugs may have weaken my immune system. I have to continually push my guts back in every time I bend over or stand up. If I lay down they stay in place. I'm dam near walking dead some days puking and heaving and other days I'm better. I'm glad I'm cured of 38 year suffering with 1b HVC but now my body is changing for the worst. My feet burn with signs of blood sugar issues and my blood pressure which was like a 19 year old is now high as hell. I'm loosing my health daily.



-- Edited by SamuelFields on Saturday 11th of February 2017 06:54:45 AM



-- Edited by SamuelFields on Saturday 11th of February 2017 06:56:48 AM



-- Edited by SamuelFields on Saturday 11th of February 2017 06:58:29 AM



-- Edited by SamuelFields on Saturday 11th of February 2017 07:00:28 AM

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JimmyK


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I have no idea of how to express the feeling of fatigue and aches sitting on a teeter totter across from the cure. But I do know it is well worth it and now up to me to get back into shape.

Would not trade the prize of SVR for much I can think of and oddly it has become a thing I don't consider much now.

That said when I consider back to when I had failed treatment, felt like a dog craving for a bone as I sought that which would cure Carolyn and me, my current small problems seem to be so very insignificant.

Let perspective be considered and use a lack of hope time in our lives to off set that which we now have.

Oh! Made ya smile!  :)

 

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
dharmabum


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Hi freesoul,

I went through treatment two winters ago.  I did not feel well  at all post treatment 12 wks of Harvoni.  I had terrible fatigue, brain fog and severe intestinal issues that I acquired when I began Harvoni.  But now each month I feel a little stronger than I did the month before.  

I had the virus for 35 years, so I don't expect miracles from my body in that regard.  That virus rattled around in my body, unchecked for decades.  Slow and steady...give it some time.  Enjoy what you do and do what you enjoy.

I think the hardest part is over.  

Joann

 



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Joann

 

Geno 1a  - failed Tx Inc/Int/Rib - Tx Harvoni 1/14/15 - UND at EOT 4/7/15, 7/7/15, 9/9/15, 12/04/15, 10/26/16
fourlocos


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I just had my two year anniversary of SVR last week.  I still have joint pain.  It might not be quite as bad as a year ago but I do feel it is with me for life now.  The frequent headaches aren't around as much either.  Give it some more time to see what is here to stay and what is going to get better.  I agree being free of the virus is a positive to hang on to.

 



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!
freesoul


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Thanks for the responses! I'm still reading through other postings...and no, I did not take rivabarin.

I am under a dr's care for the anemia and taking supplements. The fatigue might come from there. Don't know about the joint issues but I didn't have them before treatment as much...

Many things have improved and I am definitively glad to be cured! Not denying that thats invaluable :)

Having said that- should we report what we are experiencing so that it can be noted and perhaps monitored?

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38 yr old, Fib stage 1, last VL 5.3 mil - Cured by Abbvie clinical trial

Genotype 1a, Dx 2010 but probably had for 20 yrs+ 
Shadowfax


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I agree with Tig. We have been through a battle and must let some time pass while our body heals. It's true, many of us have had some issues but whether they are absolutely from the treatment will take years to know. What I do know, is I don't have Hep C anymore and the rest will be dealt with on an as needed basis.

Take it easy, You're not the only one but we do hope these are transient and from my experience, some of joint pains for instance were.

Keep us posted

SF



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Tig


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Hello and welcome back! First, congratulations on your SVR24, WOOHOO! That's wonderful news, you're free of the Dragon! I suffered for a full year with side effects from treatment. It doesn't matter what drug you're on, we all react to them, hopefully for their anti-viral action, but they are powerful medications and affect each of us differently at times.

Now that you're virus free, your immune system is in a bit of correction. Remember your body was in battle mode for years. It takes time to recover. You're now in full liver repair mode. It will take time for everything to improve, sometimes we have to be happy knowing the virus is gone and risk for further damage is reduced or eliminated. Anemia can be corrected in most cases, so pursue that. Was Ribavirin part of your trial arm? It's one of the drugs known for added side effects, like anemia.

I hope you are feeling better soon. It's a big metabolic change and your body is adjusting to a whole new world. It took years to get to this point and now you are in charge of your future, not a virus. Take it as easy as necessary and forget being in a rush. Time is on your side now! I think you'll be noticing better days coming more and more often. Continue with your doctors care and advice, that's always important. Good luck with the anemia. Correct that and you should notice some good progress.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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freesoul


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I'm very sorry to start my own thread- I am feeling kind of anxious which if you remember me, tends to be an issue with me. Lol.  I'll read some relevant threads later when I have some time and energy...for now, if someone could help me with a quick answer?

I am now about a little over six months post treatment. Had my follow up test, its still undetected. Yay!!!

But...I have issues with fatigue and brain fog for the last few months. I tried to explain it away at first (overwork, the flu...) after a while though, I couldn't. My doctor did extra blood tests, turns out I have anemia. Been taking some supplements

I also have soreness- its subtle, but I'm achy- muscles, joints...havent been able to be consistent in working out, esp combined with the fatigue

I saw a couple posts in facebook groups that make me think I'm not the only one. Anyone else went through treatment and feels like there might me some long term effects?

I was on an Abbvie drug trial for 8 weeks



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38 yr old, Fib stage 1, last VL 5.3 mil - Cured by Abbvie clinical trial

Genotype 1a, Dx 2010 but probably had for 20 yrs+ 
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