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Hep C Discussion Forum -> Post Treatment -> Is Prednisone Safe after SVR?
Post Info TOPIC: Is Prednisone Safe after SVR?
Canuck


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RE: Is Prednisone Safe after SVR?
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Hey, well I'm glad you posted! I do remember your name and reading something from you before. Nice to know you still pop in for regular reads, and, like now. I too value this place.

We are way ahead by knowing how that Bell's Palsy thing went down for you, you just never know when that kinda info might come in handy!

I agree, NO ONE should ever have Bell's Palsy! Even when mild, it is such a very disconcerting thing to experience to say the least! I never had it (touch wood) but have known others who did, in varying degrees of severity. I had something kinda similar once a "tri-geminal" nerve tract inflammation, weird and painful, but mild, so nothing to do about it but give it time, disappeared in a few weeks, I thought THAT was bad enough! Your case sounded awful, like some other folks I've known. I am glad you got the preg, and the other treatment and that you are 80% back - that bodes well for full resolution. Good to know how your fog improved too!

Very interesting and valuable tips about how to attain a therapy (for something like Bells Palsy), get a handle on pain, with acupuncture and without dumping analgesics on your liver. I've never tried acupunture, for anything, maybe a little experimentation with pressure point tricks, but I'll keep accupuncture more in mind now. Good your hep doc directs folks there, especially a good point for those with cirrhosis, or for avoidance of oral analgesia for any good reason.

You should squeak up more often! We are all the better off in knowledge for it! Questions, pondering answers, discussions, feedback from those being cured or long cured are all really good info to share. Thanks. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
bassetgirl


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Thanks for your responses- I really appreciate the help I've found here over the past 3 years. I check in a few times every month but haven't had any questions or anything to contribute so haven't posted.

I will say that the confusion and brain fog that I experienced for the first 2 years after treatment and SVR has finally gotten better- I'm still forgetful at times but I'm 66 now so that might just be age related.

As far as the Bells Palsy- what a truly hellish ailment! I started having severe, unrelenting pain at week two which continued until I went for acupuncture treatment at the hospital which monitors my liver (my hepatologist actually recommended this to me)- I walked in to the first treatment with an eye that was frozen open and awful pain which had kept me from sleeping, and after 30 minutes of the treatment my eye could move and 90% of the pain was gone. I am on week 6 now and go for acupuncture treatments every Friday, will continue for a total of 10 visits. I'm about 80% recovered.

My hepatologist generally doesn't want me to take pain medication because of my cirrhosis, so for me acupuncture is a god send. It's something to consider for pain relief if you're cirrhotic.

__________________

 

 Female. When treated: age 63, gt 1a, compensated cirrhosis, platelets 67,S/O 12 week treatment,EOT July 30 2014

Oct. 23 2014 EOT + 12 SVR !!!!!! Thank you God and Medical Science.

Jan 19 2015  EOT + 24 results: still SVR
Canuck


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Hi,

 Me too, have not read any studies like that. 

Only read studies about some potent anti-cancer chemos, and very specific potent systemic RA anti-flammatory treatments, perhaps being of concern when getting ready to initiate treatment of someone with HCV/HBV/HIV, some juggling was required and recommended. In those cases the docs all seemed to be keeping one another quite well aware of what they needed to do.

3 years SVR is grand!

Bells palsy is the pits.

A nice, short, intense little course of ramped prednisone, I hope it helped!!?? Has it worked? Good they ramped it. Let us know how you fared with the palsy, (or the prednisone) or about anything else at all! Nice to hear from long-cured friends. smile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tig


Admin

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Hi Mary,

I'm not aware of any specific studies that were done on prednisone's effect after SVR. I know several people, myself included, that were prescribed it. I am unaware of anyone experiencing the first bit of trouble like that. I have been on it twice since I achieved SVR. My Hepatologist had no issues or concerns regarding potential for relapse. I would trust your doctor. If you asked the same question and got the go ahead, don't worry. The chance of relapse now is so remote, just consider it gone!

I do hope you'll soon be feeling better. It's good to hear from you and hope you'll let me know how things progress. As always, stay positive and take care of business! I know you can do it!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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bassetgirl


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I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. 

Last month I developed Bells Palsy and was given a  course of Prednisone tapering from 60mg to 5mg over a period of 10 days.  My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse  after SVR-

Does anyone know of any studies that have been done on this?



__________________

 

 Female. When treated: age 63, gt 1a, compensated cirrhosis, platelets 67,S/O 12 week treatment,EOT July 30 2014

Oct. 23 2014 EOT + 12 SVR !!!!!! Thank you God and Medical Science.

Jan 19 2015  EOT + 24 results: still SVR
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