Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> My doctor's visit today
Post Info TOPIC: My doctor's visit today
Canuck


Guru

Status: Offline
Posts: 3249
Date:
RE: My doctor's visit today
Permalink  
 

Gabbie, 

What wonderful news! Man, do I EVER like your doc, imagine him phoning you on a Sunday to let you know - nice guy, obviously someone who well understands how important it can be for us to know, ASAP, those three letters we need to hear - UND!

You got 'er made girl. Your 4 week news is stellar, the rest is all a case of mop-up now!

Please, please, please do push yourself a bit more - it is imperative (in order for you to feel better than you are right now) to force more water and better food into you, even if you don't feel like it.

You may be getting past the initial hump now, 4 to 5 weeks in, things should lighten for you, but help it along, by ensuring your hydration and nutritian - they ARE so important. Don't sweat the altered sleeping, it is not forever - just make sure you are getting enough rest - at this point it does not really mattter when/what times - like you say - just go with it for now.

And, like you say, we can expect many things for you to improve after cure.

I am so happy for you and your first UND! That good news must have made you feel a little bit better about everything! biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
gabbiegal


Member

Status: Offline
Posts: 37
Date:
Permalink  
 

hey Canuck, thanks so much for taking the time to respond. Thanks to ALL who have responded.

I had a blood draw today and my next visit to the Liver Institute on Aug. 18.

My sleep pattern is goofy and I've learned to just go with it. I might be up all night and sleep all day. I might go to bed early and sleep pretty good for a few hours. Still eating only scrambled eggs and occasionally some Toasties crackers. I just can't fathom eating anything else. I do drink a lot of water,Gator-Ade and such but probably still not enough. No migraines--Thank You God!!! Because if I had to contend with those too I would be Over the edge.  I have recently discovered that when I was feeling the very worst my BP was quite high. I was taking my BP meds and feeling so fatigued that I wasn't even checking my BP level but when I did I discovered it was sky high. Top and bottom numbers. So I had to add back into the mix a 2nd BP med that my doctor had put me on before then pulled me off it due to it bringing my BP too low. Now that my levels are more normal I feel quite a bit better. So yea this hypertension is playing havoc with my system. I only began having BP trouble a few months back after a lifetime of really low BP. I don't know where but I read that Hep C can sometimes cause hypertension. IF the Harvoni wipes my system clear of Hep C then maybe the BP issue will dissolve too. 



__________________

Gender-Female 62 years young

Diagnosed 10 years ago with Hep C and was found to have had Hep B at some point. Probably have had Hep C for over 30 years

Beginning stages of cirrhosis detected

SOT July 3/17 (Harvoni)

Virus Undetected Aug. 6/17

Genotype 1
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hey Gabbie, 

Saw your post over in BB's thread, though I'd chat over here too.

You said ...  This Riba--I don't know what that is. As you know I'm taking Harvoni and I went down the list and I have ALL those side effects. So much so that as I began my 2nd bottle a few days ago I was certain I cannot/could not finish this ordeal. I'm still on the fence about it!!!! That's why I rarely post any longer. I'm either too fatigued to type or I can't see through my teary eyes. I know I should feel blessed for this opportunity to get healed and I do count my blessings, it's just that I'm so angry to be in this position. Why me??? AND I did not expect to feel like walking death during the cure when I felt FINE beforehand,

Tig and Jimmy and BB were all correct in the things they brought up with you over there, and so were you, some of us DO have more trouble (than others) on treatment. I was quite envious of some of my counterparts who went through similar drugs trials and felt little, or NOTHING!

In retrospect, (I always learn the very hardest ways! sigh) had I drank MORE water i think i would have felt not quite so bad as i did. It IS a very hard thing to do (for me anyway), to want to drink, to drink when I really do not "feel" thristy, to drink when i am sick of drinking, to force myself to measure my water quota (otherwise I would easily cheat) and to learn/believe, that dilution WAS the solution (to some of my "pollution" problems while on the treatment drugs.

You can do it!, I know you can and will! Hang in there! With AMPLE water, and time (now that you are into your second bottle) maybe some of these things will lessen a bit. Many say it is the first part, more than the last part of treatment, when they notice things. Comfort yourself as best you can, do everything you can think of that might be of any help to you to get through this. Come here, go see the doc, share with your hubby. Ask for some help and solace. We hear you, you ARE having a tough go of it - I think it will get better, sooner I hope than later. You ARE doing the right thing, treatment IS the right thing, and you already know it. Doesn't make today any easier tho does it, so put on your thinking cap on, and try everything to glean yourself some bits of relief. 

Ya, riba is a whole dif ball of wax to what you or I did for drugs. But some of the "listed" feelings can be just the same, on riba or not, or for that matter, on any treatment or not. Sigh.

When is your next doc appoint and blood draw? Are you sleeping at night OK, no migraines, did you succeed in forcing yourself to eat a bit better than just eggs?

Please do keep us posted, other wise we fret about ya. smile C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Hey Gabbie,

Stellar labs. Made the long drive a little easier eh, when you get good news like that? Yer doing it! Kill it girl. Can't wait 'til Weds for more good news! Harvoni is like magic. Ain't no stopping you now. biggrin C.

 https://www.youtube.com/watch?v=VgYczUH-QWQ

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

SWEEEEEET



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Observer


Guru

Status: Offline
Posts: 714
Date:
Permalink  
 

YAY.    

those are fantabulous numbers!!!

congrats

A.    



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

001.JPG



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
gabbiegal


Member

Status: Offline
Posts: 37
Date:
Permalink  
 

thank you soooo much for all you and others here have done for my emotional and physical state !!!!

HUGE HUGS ALL AROUND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!



__________________

Gender-Female 62 years young

Diagnosed 10 years ago with Hep C and was found to have had Hep B at some point. Probably have had Hep C for over 30 years

Beginning stages of cirrhosis detected

SOT July 3/17 (Harvoni)

Virus Undetected Aug. 6/17

Genotype 1
Tig


Admin

Status: Offline
Posts: 9270
Date:
Permalink  
 

Hi Gabbie,

WOOHOO X2!! I knew you'd be thrilled and so are we! I can assure you that by today, the viral load is undetected. Those liver enzymes are so good. They don't get any better than that! Congratulations Warrior, you have delivered a death blow to your Dragon. That's simply outstanding! smile

PS: I moved this to the On Treatment section



Attachments
__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
gabbiegal


Member

Status: Offline
Posts: 37
Date:
Permalink  
 

ok, I'm going to do my best to post in a way that makes sense. I indeed did ask for a got my Baseline report and the results of blood test done at 3 weeks (Monday of this week) here we go:

 

Quantative VL 3 weeks ago  6811894       ALT 36   AST 45

Quantative VL  today     41  biggrin                     ALT 7    AST 13.  

 

I am Soooooooooooooo excited!!!! They drew blood today and the doctor said he expects the VL to be 0 and that I can call Wed. to find out.

 

I have both reports right here in front of me, so if anyone has questions about any of the other levels, just ask.

 

We are celebrating in this household tonight!!!!!



__________________

Gender-Female 62 years young

Diagnosed 10 years ago with Hep C and was found to have had Hep B at some point. Probably have had Hep C for over 30 years

Beginning stages of cirrhosis detected

SOT July 3/17 (Harvoni)

Virus Undetected Aug. 6/17

Genotype 1
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> My doctor's visit today
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.