Hep C Discussion Forum

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Poosnizzle?, hagatha? I had to double-check what country you were from again ... hey Canada isn't that far from USA, is it? hee hee! Then agan, (really) you are not on home territory, it is that horrible (never again) riba-land vacation from hell you have gone to. Explains the language I guess. OMG BB, you do make me laugh (all at your expense tho) - how can you do it, keep any humour when this is NOT funny, at all!  You poor dear. Gee, so many parallels we share dear. Jimmy once spoke of an altercation he faced in the mirror one day, post-riba, I too (riba-less) had and have "encounters of the too-close kind" in my bathroom mirror. Make-up, I really should just plain give up on ANY make-up, no one notices anything anyway, well not in the right way a person might hope for! Insult to injury isn't it, these hair, face, eye things! BUT, there is light at the end of the tunnel. Hang on, just a couple more weeks, YOUR ALMOST THERE!!!! I remember one trip out of town and down to the big city for a doc appointment, all packed for our overnighter, I was so upset that night at the motel that  I had forgotten my face powder (I was trying to put it on religously right over my sick, sallow, abcessed face, not making one iota of dif. in my appearance, perhaps if I had used to gently tenderly blot and smooth my brain it would have been more effective. Point is, you WILL look and feel better, later, wait for it, it will come - job one at the moment is only to finish this up as painlessly as possible.

You count like Syd (now .. she WAS from a far-away lands) also in never-never riba-land - the Austrailian new math was to toss some down the floor register, loose count and then not care what you ended up taking after 24 weeks - she figured it was close enough. (I'm exaggerating - slightly!).

Gee I hope your stomache has already settled, we just cannot have you being this sick. It's just all too much. Do as much TLC or get someone to do some TLC for you. Sleep if you can, slowly feed and drink yourself better, rest (even if your eyes refuse to close for real sleep). 

Sorry about your eye thing. Make a slurry of quite runny cooked porridge, pour it into the bottom of a clean wet rinsed cotton pillowcase, fold it up to be in a little oblong bag shape and chill it, lay down and use it as a light compress over your eyes. DONT' get any of the gruel IN your eyes of course! The oatmeal poutice and it's moist cool should help soothe your eyelids a bit. Pat your eyes area off gently a tiny bit with a damp cloth of clean water when you are through. I have found cold porridge poultices quite soothing for all kinds of skin upsets, and you cannot go far wrong with them.

No extremes, gentle as you go, pick things that go "middle of the road" ... 

omgosh!  as i am looking at my pills i just realized i only have 2 weeks left! not 3 lol ....oh wow....i must have entered back into the twilight zone...

yay!! 

Well, I over did it this last weekend....My Bad! As You all warned me! O M G! I was just moving some boxes up and down the stairs from the upstairs bedroom into the garage. I suppose I didn't drink enough water (as I feel like that's all I do anyway all the time 24/7) But I guess I needed to drink more than I usually would from working up a lil sweat that day......Holy poosnizzle Bat man!! I didn't even think I was working that hard really, but the next morning I had a splitting headache from hades and started throwing up.   The more I threw up, the more my head split. It was horrible...My muscles in my body were sooooo sore too, what was I thinking!!??!! I thought if I wasn't in the direct sun then I should be alright......WRONG!  I had to stay in bed the whole entire day after that. Having insomnia the last couple of nights didn't help either but I can usually deal with that. I had already had some eye issues going on too(swollen up, painful eye lids), (so no makeup until its resolved) and I'm not sure why but if its not one thing its another. Geez...You can be going right along and then BOOOM Chakalawka!!!........I'll look in the mirror and think WHO IS THAT hair thinning, ashy pale face, old feeling, weak a$$ hagatha doing in my bathroom! Crap Il be so happy when this is all over. I need my strength back and my hair! Just 3 more weeks!!! 

Getting old is hard enough already dangit!  You KNOW?? 

-- Edited by bbomb on Tuesday 29th of August 2017 07:14:10 PM

-- Edited by bbomb on Tuesday 29th of August 2017 07:16:35 PM

I cant work in the dirt any more because of my transplant. Too many bad things in the dirt. Im really going to miss weeding. Sorry i cant help you on this one Jimmy.  RC

Ahhhhhhh...Wendyo 

oh thankgoodness!!!!!

BB,

ooooh/aaaah - just look at dat lovely squished ALT! Frame all dos numbers. Beauties all round! Got to be happy to be in a crash like that, even when you toyed with the idea, from time to time, that you wouldn't survive it! Now, as far as hitting the dirt tho, just keep dusting yourself off, wash your sticky hands, much liberal water. You are UND,UND now, par for the course, and there is no looking back! I'm going to start a rumour, BB's gettin' a BB. heehee  C.  

@ Canuck....You said...(I have a theory too, you probably just sucked out all the iron out of that patch of ground by osmosis (given your Hgb).)

I have to say (call me crazy) at the time I was planting those flowers we did notice how funny the soil was sticking all over my hands in such a way my friend and I actually laughed about it ...looked like a lil kid playin in the dirt as it didn't brush off like it usually does and just wanted to cling to my skin..I'm not even joking!!  I swear I'm not a wackadoo!! lol Well.....maybe a lil 

Now there's a picture! Riba-tized, sweaty woman rolling around in the dirt.

My trial people were relentless in their ominous warnings about using 2 methods of birth control (same instruction as you received, also on the drug inserts) and I wasn't even on riba (sof/vel/vox) Vosevi. Many of these anti-virals have these cover-their-arse warnings, and prolly for good reason no doubt! Kint be to careful, but really!! they also knew (ad nauseum, from their repeated interrogations, oh, I mean interviews) my age, the exact year I became post-menopausal, the decade I started taking HRT (and still take) for same, and, I thought it would finally reassure them when explained ... I used the worlds very best contra-conception method ever known to man anyway - you know, abstinence? Nope, every single dang visit (I had a lot of appointments), Ms. thorough assistant would smile sweetly and say  ... "now you do recall our little talk about using two forms of birth-control? ...  I learned to give up explaining that immaculate conception was not possible with me, just decided to smile back at her and nod.

I think an UND makes the rest of everything through treatment just a little more bearable. 

How does 0 feel?? That part feels good doesn't it?

Have you no before and after ALT's/AST's?

How lovely, a brand new grand-babe coming to you soon - a nice birthday (and "anniversary date" of a dif sort too, if the timing is spot on)!  C.

haha i would die if i got prego at 55! lol

yes Tig....i actually showed her the meds and said DO NOT TOUCH THESE they are not for headaches .....

i do have to say they did address the fact that u should not get pregnant while your on this drug and 6 mo afterwards...... no chance of that happening lol

BB, they don't want a person taking Ribavirin to allow a pregnant woman close to it because it's toxic. Whether that can apply to gardening, I have no clue, but...  The stuff is bad news for reproduction and if you were sweating and it was leaking outa you, well I'm just one of those conspiracy theorists at heart! My daughter works in a pharmacy and they can't touch the bottles or dispense it if they are pregnant or planning to. 

CONGRATULATIONS WARRIOR!! You will never see another test that says anything but undetected from now on. That's how confident I am in these new treatments. Good for you! Keep swinging Sister, the Dragon is going down.....

-- Edited by Tig on Tuesday 22nd of August 2017 08:38:49 PM

Oh BB, Yaaaaaaaaaaaaaaaay!!!!!!!!!!! Congrats on your great big UND! So glad you share.

Get out of the dirt (and the heat BTW). Yup, riba kills everything.

Hm, just 3 weeks, just 3 weeks, alllllmost there! 

OK, where are the before and after ALT's/AST's?

Keep trying to spoil yourslef in anyway you possibly can, you are almost there at the finish line now. Good food, lots of water, tender loving self-care, tend to your own garden - YOU. I have a theory too, you probably just sucked out all the iron out of that patch of ground by osmosis (given your Hgb).

Just so you don't go paranoid crazy, get some more flowers, and plant them on your friends side, to prove to yourself it has nothing to do with you, you will probably find out she forgot all about the round-up she had over there, nearer your side, a few years back. 

If they still die, you should go around and touch all her weeds. 

Sorry, I tease you, hoping you still have a good humour today - you should with lovely UND news like that. What a wonderful job you have done under sh*tty conditions.  C.

 labs came in today, Nurse says Viral load is NOT detected and Hemoglobin is at 11.7... 3 weeks to go. 

Just thought I'd share! 

OK, I have story and I'd like your  thoughts on the matter. SO....I planted some flowers in my friends garden area for her and a week later they all died. Which is weird for me as I have a green thumb and usually do rather well with plants. So we planted some more in the same exact same spot....she planted the one side and I the other (we split it up this time but in the same area as I did before) a week later hers were fine and the ones I planted died again. I had no gloves on and I touched the roots of these baby flower seedlings...... OK I have to say my very first thought that came to mind was oh my gosh could it be the medication I'm on coming out of my pores as I sweated out in the heat as we all know this stuff can kill a virus why not these delicate roots of these flowers???? lol.....Am I crazy for thinking that?????? AS everyone I have mentioned it too acts like its completely ridicules! So weird huh?? Well heck its made me lose some hair .... Call me crazy just don't call me late for dinner! haha

-- Edited by bbomb on Tuesday 22nd of August 2017 05:16:33 PM

as far as the water, I would infuse water as opposed to the Bai. Sure 1 or 2 a day won't hurt. Cheaper and healthier just to stick some fruit, a cuke, whatever in a nice pitcher and pour it in an insulated cup or bottle.........

Greetings.

It is my understanding once we are cured, we can donate organs but not blood. I wish the blood thing would change as I am AB- and would love to be able to donate. 

They are beginning to explore the use of HCV+ organs for transplant. I haven't read much about the use of donors that were cured of HCV prior to their organ becoming available. With the success rates of these new drugs, there should be some changing attitudes on what's permissible and what isn't.

From this article I found, you'll see the differing attitudes on the subject. I can't imagine being turned down for donating or receiving a HCV+ or HCV cured organ. Hopefully we'll start seeing more common sense application of these guidelines established years ago when HCV was nearly incurable. Sadly, the incidence of HCV infection is again on the rise and it seems to be found in the younger generation, primarily IV drug users. As this article states, there are more livers becoming available that aren't being used, because the donors are HCV+. That needs to change.

Rolling the Dice on a HCV Tainted Liver

Good question - recently, I've read the answer is a tentative YES. The thinking is changing on that situ about what livers are desirable (i.e. none versus one with a hx of HCV or having HCV). It used to be a NO. There are articles out on this subject now - I'll have to google some up. C.

Thanks Alison......As long as... and hopefully... knowing all this fogginess, anger issues and tiredness goes away afterwards and begin to allow my body & mind heal itself and be toxic free haha....will get me through this last month & (just one more bottle of blue pills)......Had labs done this morning.....pushing through and trying not to bite everyone's head off in the process! Especially when they want to insult my intelligence ...makes my blood boil Rrrrrr  I want to lash out so bad but I reach for the water and start to rinse the madness away haha 

Hi Brenda,

Don't let those blue pills get you down, ask any guy about those little blue pills, they're made to pick you up!! Woohoo!! I know, I know....   Just trying to make you laugh, they make my wife laugh! I'm not helping myself here, lol!

Look upon the Riba as little blue Dragon slayers. They make that virus feel exponentially worse than they make you feel. They are giving years to your life, not life to your years, remember that as you're laying those pills out each day. I realized, even as much as I hated them, they were a significant ally in my battle against this even nastier disease.

I just lost my Mom to Alzheimers, so I know the concern and the comparison you mentioned. Brain fog is a real problem for us, but you'll witness big improvements in your cognitive ability once this is over. Don't allow the drugs to convince you of anything other than they work and work well!

If you're not using a daily pill container, get one. Then when you sit down with your BIG glass of water, have that container in front of you and you'll never be unsure if you took them. Don't get out of that chair til they are down the hatch!

Give the Botox a pass while you're on treatment. I can tell that you're plenty beautiful already and those fine lines can wait!

well i use botox for frown lines between my eyes on my forehead and thought it might make me feel better about myself right now as i just feel and look crappy about myself just got a case of the blahs.....i have thinning hair issues, legs hurt, out of breath too easily ,potty issues and an all around feeling of uncomfortableness ugh! i feel edgy and i have head fog like my late grandmother who had alzimers ....i set out all 5 of my pills this morning to take like i always do and all of a sudden i cant find those dreaded 2 blue ones (u know our favorite ones) so i scanned aross my desk went into the kitchen to check if i set them there went back to my desk again and then thot crap if i already took em i definately dont want to take them again id rather skip those ones if u know what i mean lol so i counted what was left n the bottle and i certainly took them out went back to my desk and they suddenly appeared ...im like omg! im losing my freakin mind! i actually thot maybe someone was playing a trick on me and then realize that was an even more crazy thought....good Lord...just one more month to go after tomrow. i cant sleep ......Man! can u imagine me if i had some real hard problems? whats worse than losing your mind is realizing that your losing it! i think lol ...

i have more labs to do on the 16th i think id better check my calender.....

Hey hiya BB,

How goes the war, and the riba skirmishing?

Hope you are not botoxing any frown lines from between your 2 eyebrows, my sis did that, and I could never tell when she was mad (or surprized)! heehee

Besides they are not "frown" lines, rather heavy duty thinking, effort and "I am concentrating" lines (I prefer to think)! My sister looked like this (temporarily)  .

My Granny lost her eyebrows early in life and had a lifetime of expertise in drawing them on every morning, she said she had to, otherwise how would anyone know what she was feeling!

Just curious, what part of your anatomy you think needs botox? Could be an interesting diversion from the arduous tasks at hand.

So, last I heard ... some days were diamonds, and some days were glass! How are the "poo" days going? You must be near 8 weeks? Have you/will you be having more bloods done? When is your next VL, week 12, end of treatment? Have you had another hgb done since your 4 week one? 

Have you had any skin issues? You don't really mention any, rather more, the rocky bucking bronco ride riba has taken you on.

I hope you are doing/feeling not too bad, considering all.

Go girl, be strong, you're doing it!  C.

Does anyone know if there is any drug interactions with the Riba / V-Pak and  Botox???