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Hep C Discussion Forum -> On Treatment -> Started Epclusa April 18 2018
Post Info TOPIC: Started Epclusa April 18 2018
Canuck


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Started Epclusa April 18 2018
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Hi again Mike,

I did greet you, (met you) over in STL's thread when you first posted there (bout 10 days ago), but since you have moved over here, you maybe did not see my reply to you.

So, another "good for you"!, and hello, and yer doing good, from me (over here). I was making some sig. line suggestions to you over there, but i see you got it sorted beautifully over here now. smile

Your 8 weeks labs look good, good kidney function labs (creatinine and GFR), and nice you did not have to fret about that temporary blip in your lipase very long - it was good (over in your STP post) that Tig relayed about how these lipase abberations can "just occur" while on treatment, and are often short-lived.

Yes, you and STP will have to make due knowing your docs are pleased with your nice normalized crashed ALT's and AST's - revealing and heralding how beautifully the epclusa is working for you two. Sigh, I guess we will all have to patiently wait until your SVR12 UND before we can really have your first UND party - but in all good guessing, both of you were likely UND right soon to when your ALT dropped.

When you made your recent post over in STP, I did read your old/old/old posts and noted you had been around (a member) for some time, so I am really glad you are posting again, but "on treatment" better yet, and on epclusa, you gotter made bud! biggrin And, alllll-most done too! Won't be long now. C.

Ew, gee, 2 biopsies, I didn't catch that the first time I was reading about your hx, I thought you had just had the one biopsy at first - man what a way to find out you are "not too shabby" in that dept.  



-- Edited by Canuck on Saturday 16th of June 2018 06:43:18 AM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
5-1-18


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hi mike, so glad you got your thread going and are doing well on the magic beans.sun:

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
SeeTheLight


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Hi Mike,

Glad to see you now have a thread too. Your results look just great. Like you I had no real symptoms but they now know that can rapidly change, and by the time the symptoms become apparent there is a lot of liver damage. I think we are both very lucky to have got onto treatment early on before that happens.

All the best with your Lovely Magic Beans. I'm now at 6 1/2 weeks and feeling good. We know they are doing what they should and wiping out these bugs we have been plagued with for way to many years.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND
Tig


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Looks great, Mike! Just a few details is all it takes to make things clear. Thanks!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mikenan


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Hi Tig.  Ya that was a typo it should have read GGT.  Thanks for picking up on it.  Checked out the signature site but not sure what to enter.  Thanks.  Mike



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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23
Tig


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Hi Mike,

Thanks for starting your own thread. It's easier to follow one's progress when we do that. I also appreciate you providing your lab value history. Adding your start date (SOT) and end of treatment date (EOT) helps, too.  Is it possible to add it in your signature line? I mentioned that this week in a news blast and if you need direction, there's a link in my signature that will help you set it up. If you would rather, I can do it for you. Doing so allows all of that to follow your future posts and we don't have to look back to find your history. It helps but is up to you.

Your labs have improved nicely. I also took Milk Thistle for years after I failed treatment the first time around. Some say it's not helpful, but I think like you do, it helped. The way I treated my liver for 20 years after diagnosis, it had to have helped. Those that believe in it, claim it helps to reduce the inflammatory processes that HCV causes. It isn't a magic bullet, but a bit of soft armor, if you will. I still suffered considerable damage, but it took longer than some to affect me. Maybe I got lucky (I did) or maybe it helped. Only the Milk Thistle God knows for sure!

I looked for a test called the GGM and came up short. Are you sure it isn't GGT? That's generally the test we see used in our cases. Your number indicates the results a GGT would typically present. Just checking.... STL schooled me on a new one yesterday! I thought I knew it all, ha, ha. Always something new!

Keep heading in the right direction and you'll be pulling into the end of treatment station in no time!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mikenan


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Hi everyone.  Decided to start my own thread and post results before and ongoing.  I appreciate it STL for using your posts lately and I want to thank all of you that have sent me words of encouragement.  I have been a member of the forum for a long time but never got around to posting very often.  I will give you a bit of my history.  I am a 66 year old male.   I was first diagnosed with Hep C in 2002.  I contracted it back in the early 70s.  I have been fortunate that the disease had not progressed rapidly over the years.  When first diagnosed I was told that it was Geno 2 but I don't remember what the viral load was.  My first test results were GGM 31, Bilirubin 11, AST 44, ALT 66. My first biopsy showed stage 1.  I then started taking milkthistle and stopped recently as I was starting treatment.  I guess milkthistle works as my pre treatment results were still good after 30 years.  GGM 20, Bilirubin 10, AST 28, ALT 25.  I had a biopsy last Nov and it still showed stage 1.  My results after my first 4 weeks on Epclusa were Bilirubin 11, ALT 16 but i was also given a Lipase test that came back 2.5 times the norm at 150.  I had a video conference with my doctor and he decided to send me for my 8 week tests and I got the results this morning.  Creatinine 85, eGFR 82, Bilirubin 8, ALT 17, AST 23, Lipase 56.  The Lipase test dropped dramatically.  Three months after I finish my teatment i will go for the RNA test.  Then hopefully the disease will be gone.  I pray daily for those of us with this disease that everyone gets cured.  

 



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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23
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