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Post Info TOPIC: New Harvoni taker(i suppose)
Tig


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RE: New Harvoni taker(i suppose)
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ESTER? (Loudly wink)

 What’s happening over there across the Pond? Time for an update!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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hi karma, how's it going? are you busy with the wedding plans?

i hope you are doing well biggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Hi Karma!

Welcome aboard! These people here are FABULOUS!

I'm just starting week 3 of Mavyret, with little side effects. I have found that the days that I do not drink enough water, I get nauseated.. I may have a gallon in daily, but when I'm working outside in the heat, or hitting the gym, I HAVE to drink more than a gallon, or it's nausea and headaches for me. Otherwise, this has been a rather easy journey so far!

Good luck with your journey! Update us along the way, and don't be afraid to ask any questions here, I'm sure Tig or Canuck can answer anything for you, or guide you to any info you may need!



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45, F, Dx2000, VL 5.3M, ALT 113, AST 45, F0 (Blood work), GT 2 (? Couldn't establish subtype??), treatment naive, type 2 diabetic, recovering addict 11/22/02

RX Mavyret, 8 wks. SOT: 6/5/18. Liver function blood work at the end of week 3, for my Family Dr.  ALT 50, AST 24.

5wk-UND, EOT 7/30/18

 

Tig


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Here's a guide!

50CD6DC5-C105-4690-B21D-66D02E54C2B9.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hey Karma, 

Stay calm and steadfast, feel strong! you are ALREADY undoing this viral problem, right now, as we speak! - YOU and your doc are getting you all cured up, right now! - breathe a big sigh of relief and be very proud of yourself for getting yourself here - you have taken control of this situation and soon will be free to live your life without this virus hitching a ride with you any longer. Major accomplishment!!! Already 10 days started into your Harvoni, you are well on your way to a brand new freedom, you should strive to leave no time or place for worry now, you should be feeling great relief that you to got yourself to this stage, the same stage as the other folk, before you, who have been so wonderfully cured on Harvoni. Do not focus on the negatives, there are just waaaaay too many positives happening for you right now, there should not be time for negative thought - not at this joyous juncture - about to rid yourself of this pain in the butt infection for good. Best thing you may have ever done for yourself and your future life and health was to get yourself on this Harvoni. Good for you. And, 10 days in - I just betcha that magical harvoni is working miracles in you this very minute! Lucky, lucky gal you are to get the likes of harvoni!

So, yes drink lots of water, there are many drugs you can be on where it is always a good idea to do so (from aspirin or painkillers, or drugs such as antibiotics, or, anti-virals - like harvoni) and many other drugs too for that matter, it makes the taking of the drugs easier on the body and may help prevent sides as well - it's just good practise to do so, helps the body with absorbing, and transporting the drug to every nook and cranny, and keeps your body well flushed (just good for the kidneys and bowels). It's nice you have not felt any bad sides to speak of, many people do not feel too bad on these new DAA's.

Drink lots of water, try to eat and sleep well, strive to be as stress free and positive as you can, you will cured up in no time.

So, I was wondering before - are you on Harvoni for 8 weeks or 12 weeks? And what dates did the doc say he wanted you to have blood tests and visits with him during your treatment? 

If you have any other lab data to share, we can help you create a signature line with it - like (aside from knowing your age and that you are a GT1a), if you have any other stats/labs, such as viral load, ALT, AST, Fscore or what tests you have had done, that would be some good basic info to share in a signature line (see our signature lines for examples).

Yay for Karma, 10 days done! biggrin C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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ok so drinking water is seriosly important i cant help to be a bit pissed that i've been uninformed of this i listened really like my life depended on it when the hospital staff were explaining all i thought i needed to know but by no means did they emphizise how crucial that amount of water is important i think we might be a little behind the times over in Ireland so much appreciation on the info helps explains a few things so thanks again peace and love



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Tig


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It's important to strive for 3-4 liters of water per day. Those that don't tend to experience more side effects. These drugs require increased intake and most will experience headaches, increased joint discomfort and fatigue. 

Here's an article that helps to explain it.  

Water Intake and DAA’s



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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hi karma, i know how you feel about wanting to get it the first time around.

over here in the usa they will try other drugs, but one round is good for me , will know soon enough if it was enough for my liver

the water, yea read that on the internet too when my hubby was on harvoni, to drink lots of water...... but came here and found out that to aim for a gallon a day.

i started at half a gallon, went to a gallon til  about a week ago, and now doing at least 3 liters or a little more.

i'm doing well this way. had some ups and downs, all worth it for the sake of my liver and yes, sending that virus back to the dark hole it came from.

i also cleaned all my stuff with water @ 8oz + bleach at 2 Oz. . the formula is 10 to 1, but i ended up doing a little more bleach then washing it all real good with soap and water after. soaking half a day.  [electric razor heads, nail clippers, little facial hair trimmers, nose hair trimmers..... anything i wanted to keep. new tooth brushes etc, once i got non dectected at 4 weeks].

so glad you got started and are well on your way.... here we go to wellness!



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Thanks for all the welcomes you all seem like very intellectual and wordly people with a story or two to tell i'd say, i started the treatment on the 6/5/18 i didnt realise i had to drink so much water jesus they didnt tell me that at the clinic kinda panicing now ill just ring the clinic to double check and the Harvoni its all just very stress full because its so expensive and we only have one chance at this well i do(the way Irish health system works) please god buddha allah any god whose listening please let this horrible virus be rid of my bloodstream so i dont have to freak out every time i cut myself and start sanitising everthing like everyones life depends on it to all hep c sufferers this is no longer a death sentence but a motivation to start leadind new healthier lives peace and love to all fellow sufferers you all know the emotions im talking about, all we can do is never ever let the ignorant bastards grind us down.......and please god nevere go back to the dark place that vicious virus comes from......

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Welcome from me too.

Im glad your VL didnt drop enough for them to keep you on the interferon, the sides and after effects from that treatment was very brutal on a lot of people.  

Lovely that your partner is cured, hows he/she doing now? 

We are certainly getting cured at the best time, all those wonderful researchers have done it, and we are so lucky.  Yay

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Hi Karma,

Very glad to meet you. Glad you got the "easier" new DAA's (harvoni), too bad your partner had to get the hard old stuff, but very nice you helped him through it and he can help you now too, even though you said you are already finding your journey thus far on Harvoni has not presented you with side effects. See, you are living up to the "Karma" part of your name - you deserve an easier ride on the new DAA's, so did your partner, and so do all of us, it just didn't happen in time for him I guess. I think your partner is very happy for you that you got the likes of Harvoni, and not the stuff he had to do. You should be feeling NOT guilty about it, at all - we all deserve to be treated as easily as we can. smile 

So, what date was your first day of Harvoni? Is your treatment length 8 weeks or 12. What did the doc say (as far as how soon and how often) you would be getting blood tests through treatment?

Glad you joined us here. biggrin C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hi ester, welcome to the forum, it sure is helping me walk thru the harvoni's ups and downs.
yes, minimal sides for me too after having tried the interferon in the 90's. lucky for me my numbers didn't come down enough to keep me on it.......i was miserable.
when i'm having sides on harvoni it's usually also some other thing going on that makes me feel worse.
we are lucky indeed to have these new daa's

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Hi Ester,

Welcome to the forum.  These  "Magic Beans" are wonderful. Great you are having no side effects. I am on Epclusa and having very few issues. We are all so fortunate to be gaining treatment with these marvelous super drugs, wherever we are in the world,  and for so many of us for such a  small cost, particularly given the huge full cost of these treatments.

I haven't been a member long, but have found a lovely group of people, who don't judge and only try to help. Seems most of us have other issues besides our Hep. You are young with you whole life ahead of you. Look forward to hearing more for you soon.

 



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


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Hello Ester!

So glad to meet you and would like to welcome you into the group! We're so happy you found us and thrilled that you have started treatment. Harvoni is an excellent treatment regimen and will do the trick. We have many friends here that have taken the Harvoni Train to success. We even have a Harvoni Train discussion thread here on the forum and I'll give you the link so you can read the conversations. Lots of good discussions there.

I see you're living in Ireland. I would love to visit your beautiful country! What a lovely place it is, at least that's what I understand. Have you got extra room? We could all meet up and have a big Dragon stomping party! I'm sure your family would just love us, ha! Just kidding, maybe wink

I'm sure others will be along to say hi and welcome you to the forum. Lots of suggestions coming your way. Biggest one is to drink at least 3-4 liters of water everyday! That will keep the side effects at a minimum. Good luck!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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hey there i have just started on the harvoni treatment and i am pleasently surprised at the lack of side effects i gently helped my life partner go through the interferon and it was hell no sleep burning skin walks at 4am to cool down core temperature i almost feel kind of guilty about the ease in which Harvoni is doing its thing anyway i just wanted to see if others were feeling the same about there treatment or were suffering in some way because of some side effects i hope not,Peace and love to all my hep peeps out there biggrinbiggrin



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