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Hep C Discussion Forum -> On Treatment -> Ugh. Constipated!
Post Info TOPIC: Ugh. Constipated!
5-1-18


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RE: Ugh. Constipated!
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yes hoodie, i was def looking for love in alllllllllllllll the wrong placescry

im so thankful that still small voice inside me said " i want to live and thrive and enjoy life " , and that i listened

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Ruh Roh indeed Tig. No worries though, Im on it. Ill be fine Im sure. 

Hey 5 - thanks for sharing about your membership in al anon. Those 12 little steps work wonders for folks like us dont they? No matter which side of the disease we gain access to them from. 

Lamont hoseclamp made me chuckle. 

Thank you friends

 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Tig


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Not the big D? That’s never any fun, but tbh, ever since they yanked my gallbladder in 2001, I’ve had nothing but the big D. no  I don’t know what it is about our misguided digestive tract, but here’s hoping yours improves quickly. If it doesn’t, ask your doctor if you can take something like Imodium to slow things down. My interaction checker says it’s okay, so ask your doctor, nurse or pharmacist for the okay. 

In my best Astro voice.

3D93C572-44FC-4B2D-BF93-5318EBA422E6.jpeg



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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5-1-18


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now you get to eat more cheeeeeeeese biggrinbiggrinbiggrin

i came by my C during my questionable years, i got into alanon first then came to my own decision about my lifestyle. so glad i did, i lived long enough to have the daa's yay for me



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Well now I seem to be having the opposite problem. I think Id rather be constipated than this situation. Diarrhea is no fun at all. Constipation is no picnic, but TBH its more managable and less inconvenient than the opposite. I mean lets be honest, LOL biggrin

Glad this will all be behind me at some point.  



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Iris Dragonfly


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Really Cheddy? That's great news , after what you and Lamont said, I have hope that perhaps a nice sandwich, or soda cracker, noodle soup, spaghetti...heck all pasta! (gluten free pasta just sucks) maybe a doughnut? ummmmmm will be in my future? Pretty please? Pretty, pretty please?

this is great... only here can we really talk about our guts! BB, Iris

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Cheddy


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Come to think of it, all of my digestive disturbances went away, too.

 

Try "Smooth Move" tea.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
LamontCranston


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It should be OK (docusate) , although I like senna better, or the "big gun", Milk O Magnesia.

Everyone will chime in  and say ..."Drink more water", and that can't hurt either. Try not to use the same thing all the the time, they say it can make you dependent on laxatives over time.

I had chronic hoseclamp for 3 years, but it abated about 9 months after I was cured by Epclusa. Must've been a connection to the HepC, or at least it seemed that way.

 

 



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Lamont Cranston "Only the Shadow knows."

70 years old, retired IT Network support 33 years continuous sobriety in AA, ,DX'd in '99 with MS, DX'd with HCV 2, 2b , F0-F1 3/17/2017 VL 5.7m Started EPCLUSA 7/28/17

No Virus Detected on November 20, 2017 3 months after EOT
Hoodietree


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Very helpful lamassu, thank you!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
lamassu


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If Miralax does not work next step up is Senokot S then if still constipated just one 5 mg Dulcolax (really ... take two at your peril .. only one 5 mg bisacodyl tab first:)

For my chronic constipation I have found I can pretty much avoid laxatives by taking a 100 mg magnesium citrate capsule with breakfast and dinner and make sure I eat at least 50 g fiber a day, most of it insoluble from Fiber One cereal at breakfast then also some soluble fiber from 24 g Metamucil daily. Hope this helps.



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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.
Tig


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Trust in Ol Scruffy! He’s a wise Dragon Slayer from waaaayyy back, lol! Me included... wink



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hoodietree


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OK, scruff! youre right of course I am not ungrateful, and I too came by Hep C the questionable way. How I wound up making those choices is cause for concern and self reflection. Having done that I feel confident stating that will never happen again. Now its time for forgiveness and positivity which Im finding in abundance here thanks to people like you

thanks



-- Edited by Hoodietree on Thursday 9th of August 2018 12:05:02 PM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Scruffy


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Hoodie

Ungrateful...get that thought out of your head. You just picked the right time for treatment. BUT there are some ppl here who got hepc from shall we say questionable practices myself included.

If they were to become re-infected because of that then that would be ungrateful.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Iris Dragonfly


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Oooo, shards of glass and razor blades soaked in hot sauce, OUCH. Seems like the drug had the word incinerate right in there. Yowieeeeee



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Hoodietree


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I know Im fortunate and I really want to stay that way. I hope I dont seem terribly ungratefu. Thank you scruffy and everyone, especially all you veterans of previous treatment regimens.



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Tig


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Hey Scruffy,

The horror that was “Incivek”...

I encourage people, after reading through this link, to use our search function and look through the old posts here on the forum. You will find some unsettling stories related to the first of the new drugs offered to combat this disease. The description Scruffy left is spot on and nothing could be closer to the truth. That was a short five years ago. The new DAA’s can cause some issues, but nothing like those old standards of care. Calling them harsh is understated...



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Scruffy


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Hi hoodie

Weirdo?? I don't think so. 4-5 years ago we had a lot of "back door" posts here. There was one med that caused really bad back door side effects.  I'm sure Tig remembers those  "every time I have a BM its like shards of glass and razor blades soaked in hot sauce" posts. When I get constipated I guzzle some olive oil on an empty stomach pr prune juice.

Best wishes for you.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
5-1-18


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not strange at all hoodie, sooner or later we come here with things we couldn't imagine talking about on a forum..........

there are good answers heree from ppl who have walked the road



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Awww thanks cheddy! So many supportive words of wisdom here, for all problems large and small. So nice. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Cheddy


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Nope, not weird, just human.  Try mixing fiber buds cereal into yogurt, maybe a little milk.  Or maybe just the cereal.  It's a good idea to keep things moving.  I assume you have been properly barraged with the need to drink moooore water.

Hang in there, one step at a time, one solution after another.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Hoodietree


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Thanks for thinking about me Tig, all is well. It was just that one day over the weekend that my morning coffee didnt do the trick. So I posted here AND emailed my doc. Doc was out of town till Monday and I had made an educated guess that stool softener was probably fine to take. Welp Im pleased to report that it was fine, it did the trick, AND my doc said it was ok (docusate sodium 250mg x up to 4 per day). 

Butt* I also went to the drugstore and stocked up on: 1 fleet saline enema, MIRALAX, and some fleet glycerine suppositories just in case this becomes an issue that I need to manage on a regular basis. 

Does the fact that talking about this stuff doesnt bother me at all make me a weirdo?

*heh. 



-- Edited by Hoodietree on Wednesday 8th of August 2018 12:18:41 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Tig


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Hey Hoodie,

Any luck? Asking for a friend! Hope things are moving right along now, with your list of supplies at the ready! One word of advice, always buy the double ply in times like this...

wink



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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5-1-18


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my heart goes out to you hoodie , i had some rough days on my harvoni and kept finding good solutions to get thru them. you are in the right place to find some good suggestions.  5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0
Hoodietree


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Thanks boxers and Tig!

Im putting fleet enemas and miralax on my CVS shopping list for tomorrow. I have a 30% off coupon, so yay biggrin

Oh and PRUNES thanks Iris!!

-- Edited by Hoodietree on Sunday 5th of August 2018 01:30:15 AM



-- Edited by Hoodietree on Sunday 5th of August 2018 01:31:20 AM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
boxers


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I have always suffered from constipation but thought I would die on treatment, Miralax for me is the magic bullet. It works naturally, not all the cramping etc. but most importantly it works.



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65 yo female

dx. 1996

TX with interferon/riba 2001..failed

Uncompromised 2015

TX with Harvoni  2015..virus undet.

Meld 14 7/2017  TIPS 1/2017

 

TP 5/12/18 
Tig


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That shouldn’t be a problem. I can tell you what works the best though and most people cringe at the thought, an enema... A Fleets Saline enema is the magic butt bomb! Trust me, they work really well when nothing else works! When I was on treatment and on pain management, nothing would move without a little saline dynamite... wink



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hoodietree


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Thanks Iris, Ill let yall know what the doc says I went ahead and took it anyway confuse Problem solved for now



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
Iris Dragonfly


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 Well maybe the old throwback would work, a bowl of stewed prunes?

Hope your feeling better soon aww 

Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Hoodietree


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confuse

I emailed my doctor already. Till I get a reply, Does anyone know if stool softener (docusate sodium) is ok ti take while on treatment (Epclusa). TIA



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 
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