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Post Info TOPIC: Did you have your abilty to cope with stress compromised during your rx?


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RE: Did you have your abilty to cope with stress compromised during your rx?
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hahahaha, yep... we can all relate to weird aches and pains and symptoms and feelings.. so yea, i am comfortably in my zone here with everyone

i love the smell of bacon



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

um, may-bee... it is that you just think the site saved your sanity, where it is really ... that you just fell in with a bunch of other insane people here you happen to feel comfortable with, can relate to, and with all this company you blend in and you just think you are sane? hahahha

I'M JES JOKIN 5!! sheesh. wink 

It's all the sane and mad people here that saves my bacon and that fer sure. C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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this forum saved my sanity before and after txbiggrinbiggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Hey John,

Thanks for sharing your experience with that. It helps others understand the complexities of this disease and how it not only affects the body, but our mind. I also had the fatigue and depression. We walked a similar path, with medication and a question about the future. Treatment is well worth the time and effort, especially now with the easier, shorter courses of care. That said, I would do the same old stuff I had to take, if that’s all there was. I’m so glad you’re doing better and continuing to make life the best it can be! Keep it up and bravo!



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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I was so tired during treatment stress wasn't an issue. Especially the second month I was so fatigued there were a couple of weeks I didn't have the energy to leave the house. Then on week 10 the fatigue went away seemingly overnight. Right now I feel better than I have in ten years.

I was diagnosed in 1990 when I was teaching at university and applied for disability insurance and was turned down without any reason and told to talk to my physician. That is when I discovered I had HCV. At that time many considered it a death sentence so little was known. Even as late as 2000 when I had a punch biopsy the resident told me fibrosis was not extensive and I had time. "How much time?" I asked, to which he responded "well, we don't know."

"When will there be a cure?"

"We don't know sorry."

My diagnosis led to depression and anxiety that had to be handled with meds last ten years. I frankly did not expect to reach 65 and I have lost friends to liver failure from HCV. Now that I am cured my shrink is weaning me off the meds, as the underlying cause is no longer a problem. Life is good now. I plan to enjoy the hell out of the time I have left.



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Male, 67, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24. 8/15/19 F2 8.8 kPa.

Tig


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Stress? What stress? Everything is fine.... Why, does it show?  no

 



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Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

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Dandyindeed wrote:

Im already living with a partner that I really do need to leave and have a hard time coping with when it comes to his emotional IQ.    Im afraid going into treatment is going to make me tired/cranky.    Im afraid I"ll end up throwing his stuff out into the parking lot upon which it'll be my fanny that gets evicted .  





 i hope you don't put off getting well... 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Good advice.  The main reason I came to this forum is that nobody else was getting what was going on.  How could they.  I think my closest people assumed that I would/could pull myself up by the boot straps.  They could count on me for that in the past until they saw that I couldn't pull myself up the stairs while taking Ribavirin.

It's true that you need to focus on yourself now more than usual.  it's not the best time to make decisions but it's good to take stock of the facts so you will know what to do next.  You'll know who's there for you in the end.  So go ahead and be crabby (I beat up my vacuum cleaner in a fit of rage).  I later said "sorry" and put it back together, just like my friendships.

Hang in there, but don't take any crap.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Dandy, If your experience on treatment is anything like mine, you may very well be tired A LOT. 

That might make you cranky too. But I figure you can probably handle it. Everyone is different they say, but I was super paranoid about side effects, and when I first got here I was asking all the same questions as you. 

Honestly, at day 15 I gotta tell ya, its really not that bad. The support here makes it easier and if you can structure your life such that youre eating and sleeping and exercising in all the right Goldilocks amounts (not too much not too little) chances are youre going to be fine. 

Plus its temporary. Theres light at the end of the tunnel! Youre gonna be better than ever when your liver gets cured!

Plus plus, what are you gonna do, NOT get treated? Thats just crazy talk. Im sure you just want to be prepared. I did too. I think if I had to do it over again I would read more of the on treatment and after treatment threads to get a realistic picture of what to expect. And then just do it. Because the alternative (not doing it) isnt really an option to my way of thinking. Youll be fine, I promise. 



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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yea, i had to do lots of focus work and meditation. i just told ppl close to me [work and home] that i was having side effects from the harvoni and couldn't handle a lot of stress.

just get by yourself as much as possible.. close the door and nap. watch tv. get away for awhile if you can [family, friends, hotel ].

you are saving your life so everything else is just background noise for now.

best wishes. 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Ive got to run so that I can get ready for work right now so my answer will be brief:

In short: YES. My stress tolerance is notoriously low during my decades with Hep C. I will write more later ... please hang in there

One thing to perhaps look into is MBSR I took a class at Kaiser and it practically saved my life when I was dealing with a monster coworker. 

My theory is that our bodies and minds are so preoccupied fighting a horrendous virus that we really dont have the capacity to handle unnecessary stress. Its all we can do to handle  the necessary stress of life, right?



-- Edited by Hoodietree on Wednesday 8th of August 2018 11:32:21 AM

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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Im already living with a partner that I really do need to leave and have a hard time coping with when it comes to his emotional IQ.    Im afraid going into treatment is going to make me tired/cranky.    Im afraid I"ll end up throwing his stuff out into the parking lot upon which it'll be my fanny that gets evicted .  






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