Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Slug in Peanut Butter


Senior Member

Status: Offline
Posts: 245
Date:
Slug in Peanut Butter
Permalink  
 


Hey Iris,

Keeping drinking more water, the heat gets to me,,,the water helps!



-- Edited by polosilver on Saturday 11th of August 2018 09:03:45 PM



-- Edited by polosilver on Saturday 11th of August 2018 09:04:15 PM

__________________

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.† 4 weeks AST 34 and ALT 31, SVR, Jan 2018.†

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.



Guru

Status: Offline
Posts: 1235
Date:
Permalink  
 

so, i really thot this was going to be about finding an actual slug in some peanut butter and was afraid to read it hahahaha, so glad i did read it.†biggrin



__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Iris,

I can't find it right now, but it was something to the effect of my brain synapsis being mired in, trying to fire, while swimming slo-mo up-current through a tar-sands muck puddle. heehee

Wasn't funny during though.

Suffering is all relative, to each his own, and it IS real (the suffering). No one should feel they have to compare themselves against another nor should we have to justify how much we are suffering as compared to another, like we are being judged, this is where we get those comments about how "maybe i shouldn' be complaining" about stuff. Our suffering should and needs to be explored, and that can be facilitated by sharing and comparing notes, but comparisons are only for yourself just to help figure out where you are, and to keep things in perspective and to learn from.

RC and I (and some others I am sure) said, gee don't we wish we had a nickle for everytime I wanted to know what normal was, to know what and how other people felt, so I have something to compare against - how i wished i could jump inside someone else body just for a little while and wear it around so as to know what they felt like, so I could know what i was feeling (comparatively).†

I cannot entirely blame the Vosevi for yuck feelings while on tretament (I was a sick person who started to take a powerful curative drug, period) - I took one of the newest super modern DAA's (and most of the modern DAA's boast much lower side profiles than the old time regimes). Vosevi's sides are near identical/similar (in part) to the Epclusa profile, except for the added third drug, a 3/4A (vox). Maybe the added 3/4A could have made a bit of a dif. Some of us do, and some of us don't suffer with fatigue, fog, or unwanted feelings that we chalk up to calling them sides from the drugs. I also had profound fatigue prior to treatment. Everyone is dif - sometimes just waaay to many variables to account for what causes what bad feelings while on tretament. Lamassu said his doc said he see this profound fatigue complaint in some of his "older" pts., so, who knows, is it strictly the drugs we are feeling, the drugs "sides" we are feeling, is it because of our age, how long we have been chronically ill, what parts of us are not operating up to snuff?

You WILL get to feeling better, for some people it happens blessedly fast, for others is it slow in fit and starts, but it will improve.†smile†C.

PS - I'm still thinkin bout gettin me one of them showers you got! Keep us posted how long those refills last, is yours the kind where the filter goes inside the handle of hand-held shower, or, is yours one of those where you put the filter inside the shower head itself - was your model called "Prestige"?†



-- Edited by Canuck on Saturday 11th of August 2018 06:37:00 PM



-- Edited by Canuck on Sunday 12th of August 2018 01:37:41 AM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 379
Date:
Permalink  
 

Cheddy wrote:

Hang in there, Iris. †It's not permanent. Yes, even more water in the heat. †You are not a woos. †Your a dragon slayer. †Look at you picture! †That's you. †Look at it again. Who wouldn't be hot and tired. Go easy on yourself, but move around when you can. †There's a peanut butter party in your future.


This made me smiiiiile and smile

Its not just a sweet thing to say, its accurate and wise!! Listen to cheddy Iris.

And way to go with the self care, too btw. I really hope that doesnt get lost in the peanut butter as it were . the swim and the retreat to your friends place with the pool (lucky!!) are AWESOME ways to do what everyone has been telling you to do so GREAT JOB KEEP TREATING YOURSELF GOOD!!

ps: I just noticed the plethora of emojis available here so be warned. I WILL use them



__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



Moderator

Status: Offline
Posts: 782
Date:
Permalink  
 

Hang in there, Iris. †It's not permanent. Yes, even more water in the heat. †You are not a woos. †Your a dragon slayer. †Look at you picture! †That's you. †Look at it again. Who wouldn't be hot and tired. Go easy on yourself, but move around when you can. †There's a peanut butter party in your future.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED



Guru

Status: Offline
Posts: 1107
Date:
Permalink  
 

Oh, by the way...it's all good STL, laughter is important in all this!! If I wasn't laughing I'd be crying. And Hoodie, I have noticed I am way less tolerable to stress. So I wondered if that was normal too.
Tig...lol, I'll take 2 slugs and call you on the grandson, good luck with him. Boy do remember those days!
Bb, Iris

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Tig


Admin

Status: Offline
Posts: 9106
Date:
Permalink  
 

Iris,†

Iíll trade you one slug in peanut butter for my 20 mo grandson. I could catch your slug, Iím not having much luck catching this little lightning bolt on steroids! Good grief, my legs might be lost forever, lol!

Me = yawn† † † † †Him =††



__________________

Tig

64 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 6+ years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

Signature Line Set Up/Abbreviations† †Payment Assistance



Guru

Status: Offline
Posts: 1235
Date:
Permalink  
 

iris, my days on treatment were tough too. i had some good days and some bad days; and i really couldn't over do it without having to rest for a few days after.

the magic beans are working hard and so is your body. yes, it is so much easier than the old days , but it is still a hard drug and deserves respect

so just remember that if you have a day of fun in the sun you may have a cpl days of fun in the air conditioned room making dolls. and that is ok

this is a strong treatment even if it seems easy enough ... so be a slug when you need to be.† no one is going to judge how it's going for you so please don't be hard on yourself.

i really took it easy and def was a slug

5



__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

Status: Offline
Posts: 1107
Date:
Permalink  
 

Yea but Canuk you had a much harsher treatment, right? I feel like a woose even complaining about it. Thought this was going to be a cake walk, others sdem to power through.† I have always had a bit of unatural fatigue after exertion and this was par, yet I was trying to be easy on myself. I wonder why my brain fog get worse when the body is worn out??

My problem may be the water? I'm trying really hard but fall short by a couple few chalices a day. Rarely am I reaching the 8 or 9 full goblets down the gullet daily

I'm up late(ish), was going to crash early but it is the quiet time around the house. Shower spa has been great, hope I feel more awake tomorrow, righf now I'm a bit dizzy, so I am going to bed.

Bb, Iris



-- Edited by Iris Dragonfly on Saturday 11th of August 2018 02:53:31 AM

__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

.. Iris, you said ... "†in a fogbank I couldn't shake and felt like a slug navigating peanut butter..." - oh don't I know THAT feeling well!

Well, i think it is STILL early days yet (early into the treatment course) and it should even out/improve for you, these weirdness(es) should/could decrease for you as you go along, that's what i am expecting for you and hoping for you† - BUT, still!, be real cautious with your energy (head and body energy levels) anyway. Conserve and pace (just on principal). Guided by just being plain overruled and dictated to by the mind and body (that is being run under the rules of Harvoni for the next while) over any ideas you may have to the contrary. Give in to the needs your mind and body are telling you are required to attend to at the moment. Other obvious factors that probably are not helping (that may be contributing to the foggy fatigue) is the ongoing stress and the HEAT)! Social, home, work and environmental pressures can add up, all combined, can makes things subtlely or dramatically worse.

So important, ALL these items (if you can make them keep happening for you) - lots of water running through you, keeping cool enough, enough rest/sleep, good diet and as stress free as possible.†

I did all of these things to the best of my ability, and all of it must have helped (some) with my fog/fatigue, but i think (if I had to narrow it down to just a couple important items, and I don't like to narrow them down, becasue i think they are ALL really important things to strive for!) is the water intake and the stress we put ourselves under.†

I am glad you had your good news labs at this juncture, and that you did go out to try and enjoy your friends pool invitation. You are progressing and doing well (and doing it well). It will get better.

You will relate to how I had described my fog during treatment, I will go and try and find those bits and post them back here for you when I do.

Hang in there Iris - keep things as simple as you can - are you still enjoying that new shower thingy, is the new drinking water filter making it easier to drink lots of water? Later, C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

Sorry Iris....... I know your are struggling a little at the moment. Hopefully it will be over soon and you will be feel better.

I was in the middle of breakfast and peanut butter was on the menu so it really cracked me up.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 227
Date:
Permalink  
 

ROFL Never heard anything like that before Iris.......Slug in peanut butter........ laughing.gif Trying to picture it or even hear you say it laughing.giflaughing.giflaughing.gif

but ehh just be a slug if that's what you feel like doing....You're Allowed!!!! Who wants to do laps anyway when its 105.....Floating and lounging sounds much more like the go to† me evileye.gif



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 379
Date:
Permalink  
 

Iris do I understand correctly from reading your sig that you are six weeks into a 12 week treatment? I think probably that is quite normal, but Im really sorry that youre struggling. I wonder if all the emotional stress takes a physical toll? Hang in there please check back soon with an update. Hope this resolved quickly!



-- Edited by Hoodietree on Friday 10th of August 2018 05:52:36 PM

__________________

F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God.†



Guru

Status: Offline
Posts: 1107
Date:
Permalink  
 

Holy cow, is this normal? Oh dang let me backmup, the brain fog is really hindersome.

Two days ago I went to my friends house for a swim, its been hot around 105, figured I really have to get off my butt and get a Little movement in my body.† Seemed swimming would be low impact. Aaaand I didn't really do laps, maybe a couple, mostly just treaded water and floated on my back. Went in the hot tub which was about 100 degrees not hot by hot tub standards.† Back in the pool, floated some more.†

That night I felt like rubber and was exhausted, went to bed early and slept late (it's usually too noisy to sleep beyond 6am around here) That morning I woke up in a fogbank I couldn't skake and felt like a slug navigating peanut butter. All day. Sat on the couch and made corn dollies and not much else. Went to bed early and got up late...again.†

Today I felt slightly better, I can think a little better, but dang. I can't just sit here on my butt for 3 months I'll be a giant blob of weak nothing.††

Bb, I. D.



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naÔve....UNTIL 7-01-18† !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.