Hep C Discussion Forum

Thanks Lamassa!

518 Thank you so much!

I made it!!!!!!7:00 p.m. I swallow the last 3pills of that amazing treatment!!!!! Feeling so accomplished!!!Thank you Tig for all the support !!How are you feeling?

Canuck ,it was so easy .When I first found out I was like thinking the whole world was ending.But hey it was a setback for a comeback and I am back Woo Woo.Thank you

Hey BG,

Tig points out here, and you and 5 were "yaying" over in the sidebar about it today - EOT tomorrow! -congrats!!  C.

Tig & Hoodietree thank y'all for the motivation and the positive vibes.Definetly hoping for positive news on Monday.I love this forum .I will keep y'all posted!

Hi Rose,

You sound very positive and upbeat, I like it! It’s great to hear about the improvements you’ve noticed along your journey and I’m certain they will continue. Your routine sounds far healthier than my own, I think I should follow your lead and get more active. I’ve found myself sinking further and further into my recliner this summer! My bad...  Binge watching TV has become my go to activity. I blame it on the summer heat   You give me inspiration, so I’ll try harder. 

Keep up the good work and following the excellent hydration schedule you’ve accomplished. Two gallons per day must keep things flowing nicely. Good for you! 

Hey BG,

I saw your hello from earlier today over in the sidebar - congrats on speedily getting near the end of your treatment! It won't be long now and you'll be getting some good and relieving news. So, you had your end of treatment (EOT) bloods drawn a little early, they do do that sometimes, especially on these shorter courses they put people on (like you on your 8 weeks of Mav), they sometimes check a little earlier than the actual EOT date. 

But even if you have NO detected virus showing from your early EOT testing, of course they are going to tell you to keep taking every single pill until you have finished them all. And even after you are finished your pills keep drinking lots of water, water is just plain good for us, but with the treatment that you are soon to complete, it is still a good idea to keep drinking well. Good for you and your kidneys to keep flushing your body out.

So, have you still been finding you have this abundance of energy? Did you experience insomnia or anything like that? Or, was it that you just found you had extra energy?

You mentioned leg pain? and you were wondered if this was just you and work related or if it was the hepc, that will be interesting in future to see if this improves for you - I hope so. Perhaps you will notice improvements in areas that you were not even aware of that were lacking in some ways - that's always good too!.

I am glad you did not seem to have too much trouble while being on the treatment, save perhaps for this "energy' thing, maybe that extra energy was a good thing, not a negative  ... I wasn't sure how you read that symptom. I think your sudden and unexpected diagnosis must have been quite a shock to you, as you mentioned dropping some weight before you got started on your treatment. Perhaps the weight loss even if it might have been in a stress reaction perhaps was overall a good thing? - maybe a few pounds were needed to be lost?, I hope you are not missing the pounds you lost. 

Once you are finished up and rid of this virus, you are free to work on areas of your health, unfettered by this culprit that was in all likelihood going to rob you more and more of your health. 

So glad your virus was discovered so you could get rid of it. Keep us posted. C.

Hi Rose! Glad to have you along this journey, with the rest of us!

I just finished Mavyret about 4 weeks ago, have 8 weeks to go until my 12 wk draw, but have been undetected since end of week 4. Glad you are doing so well on the treatment, if you'd have any questions, the folks here can most likely help you, if nothing else, you'll always get support, and a smile here :).

Good luck on the last half of your treatment, keep us posted how things are moving along! 

yay barbergirl. onto the 5th week

Nice BG!

We'll all wait with you, looking forward to seeing those good lab results from your Sept 1 draw.

While we are waiting, have a look at Tig's helpful link for setting up signature lines ... Signature Line Set Up/Abbreviations   C.

Hi B.G.,

Welcome here from me too. Glad you found us and this place, and glad you feel you have been learning a lot here. Me too, i have always been glad i found this place, nice folk here and lots of info, it helps. We all learn a lot from each other.

Good you posted your labs and shared your info, it would help if you put some of your (pre-treatment) stats, labs and info into a signature line like the rest of us do, assists greatly in ongoing communications.

Something like this? ... Recently diagnosed GT 2, VL 18,000? ALT 27, AT 24, Low Fscore. Tx Mavyret 8 weeks - SOT Aug ___ to EOT Sept ___, 2018.  

Then,  when you get your new lab results from Sept 1, add them to your sig. line for progress comparisons.

Tig mentioned hep A and B immunity, were those assessed for you before you started your hepc treatment?, and did you happen to get a "fibroSCAN" as well, and did they do an abdominal ultrasound on you?

From the sounds of your posts and your first post, it sound likes you are feeling no ill effect feelings from taking the anti-virals - that is great! It is true that some people do and some people do not feel the drugs/treatment. And same for having the hepc virus itself, in some people the disease seems silent.

Wonderful your virus was discovered so it could be treated and cause you no further harm.  C. 

Thank you much.Its nice to be able to talk to people about this silent virus that rears its dirty head when you not expecting it lol but I am happy to be on this wellness train!

welcome to the wellness train rose , these new daa drugs are heaven sent:

One of lab says Fibrosis score 0.31 and it says high .What do you think of that fibrosis score Tig?I appreciate your time.I am learning so much here.thanks

I just posted the blood work done before I started treatment .Thanks for having me here.I absolutely love having this forum to help me thru this .Thanks Iris

Edited for attachment size. They can be opened from the icon.

The bloodwork we are usually curious about are, the viral load, the liver enzymes (ALT and AST) and genotype. There are plenty of others, but those are always the important ones when starting and finishing. Tests can be done anytime, but typically before, at 4 weeks, the end of treatment and always at 12 weeks after ending treatment, or a combination of.

You mentioned a figure of 18,000. If that is actually your viral load, it’s very low and the reason you were prescribed 8 weeks of treatment. To provide some comparison, my viral load prior to starting treatment, was 5 Million. I took the old standard of care, 5 years ago, which included Interferon, Ribavirin and Victrelis, for 7 months. It was awful and I’m so glad you avoided such treatment drugs. One other bit of positive news is, genotype 2 is very receptive to treatment and I expect you to breeze through it, with glowing success!

Ask your doctor if they have checked your Hepatitis A and B immunity. It’s a good idea to have that checked and receive your immunizations against them. The last thing we need is to be exposed to and contract either form, after carrying Hep C around. They may have already done that, but it’s a good idea to get those vaccinations done. 

Hi Rose,

If you’re looking for extra information and discussion on Mavyret, use the search function at the top of the page and enter a keyword or two. We have a good bit of info here that you may find helpful. I’ll be glad to help if you need help tracking down anything.

When you have a moment, can you set up your signature line? You can include any number of things, genotype, pre treatment blood work, etc. There’s a link to directions in mine, if you need it. It helps to know a little history when replying to your posts, without needing to look back. It helps my aging (non existent) memory, too! You can see what some of us have done.

Nice to have 2 sons that are ER Nurses!  

Welcome Rose,

Lovely to have you join us. Sounds like your doing great. I finished Epclusa a month ago and have to wait 2 more months to know if it has worked. So many success stories here, we can all feel very positive we will succeed. 

Thank you so glad to be here with people going thru the same thing with us all having the goal of getting cured of this horrible virus.I am 4 weeks into the treatment and really cannot wait to see the next 4weeks go by and I pray that it is cleared out .I feel so truly blessed to .have gotten Mayvret.I know it is such a new drug and I have search all over to hear from people who was treated and their outcome.Cant find many reviews from people who got these meds so i will for sure keep posting here .to let everyone know how well it work for me.Thanks again

Welcome, BG! Glad you found us and hope you believe in the power of these awesome new drugs. They are the real deal and you WILL be successful. Enjoy that energy, and send me any you can’t use, lol! 

If you know some additional information about your genotype, history and blood work, please add it to your signature line (via the profile page or the link in mine) and tell us a little about yourself. If you have any questions, don’t hesitate to ask. I’m glad you’re here!